Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way... Lire la suite
Emily’s Entourage is pleased to announce a new board/committee structure as we move from a startup nonprofit to a more developed, sustainable organization with real,... Lire la suite
Emily’s Entourage has many things planned to help recognize and celebrate the month of May as National Cystic Fibrosis Awareness Month! Whether you’re a loyal... Lire la suite
Two weeks after the biggest Entourage gathering yet and we’re still flying high, just like those little hot air balloons on our EE tees. We’re... Lire la suite
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