Appréciez chaque sourire : Vivre avec la fibrose kystique
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Lire la suite
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
2025 EE GALA
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
BASE DE DONNÉES DES PATIENTS
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
EE attribue plus de $400 000 à la recherche sur la mucoviscidose
Emily’s Entourage (EE) is thrilled to announce that two new research grants and one stimulus grant have been awarded to a group of highly respected... Lire la suite
L'homme le plus chanceux du monde : Aimer une femme atteinte de fibrose kystique
From time to time we invite guest bloggers who are part of the Emily’s Entourage community to contribute their unique voices to our blog. In... Lire la suite
Trouver l'espoir dans la perte : devenir une mère fibro-kystique
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Lire la suite
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