Rencontrez les champions de l'EENY 2021
About The Champions The Emily’s Entourage (EE) Champions campaign recognizes philanthropic leaders helping to make a difference in the mission to speed life-saving breakthroughs and... Lire la suite
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
2025 EE GALA
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
BASE DE DONNÉES DES PATIENTS
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Éducation et communauté : Lignes de vie pour vivre avec la FK
We are honored to share voices from the Cystic Fibrosis (CF) community as part of our blog series for CF Awareness Month. Today’s guest writer... Lire la suite
PRENEZ UN MARQUEUR ET #CROSSOUTCF : LE MOIS DE MAI EST LE MOIS DE LA SENSIBILISATION À LA MUCOVISCIDOSE
During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a common mission to... Lire la suite
Semaine européenne des maladies rares 2021 : "Rare is Everywhere" (Le rare est partout)
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to raise awareness for... Lire la suite
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