Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
May is Cystic Fibrosis (CF) Awareness Month, a time for the entire CF community to come together to advocate, spread awareness, share personal stories, and... Lire la suite
On April 6, 2022, Emily’s Entourage (EE) presented an informational webinar to share the findings of its inaugural global survey on the health and perspectives... Lire la suite
In February 2022, we announced that Emily’s Entourage (EE) awarded $440,000 in funding for two new grants to advance cystic fibrosis (CF) research and drug... Lire la suite
Emily’s Entourage (EE) is pleased to announce that its first-ever, global survey on the health and perspectives of people with cystic fibrosis (CF) that do... Lire la suite
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