{"id":6033,"date":"2017-05-15T11:46:04","date_gmt":"2017-05-15T15:46:04","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=6033"},"modified":"2018-02-14T12:04:55","modified_gmt":"2018-02-14T17:04:55","slug":"10-ways-you-can-help-ee","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/10-ways-you-can-help-ee\/","title":{"rendered":"EE'ye Yard\u0131mc\u0131 Olabilece\u011finiz 10 Yol"},"content":{"rendered":"

Yeni veya uzun s\u00fcredir Entourage \u00fcyelerinden s\u0131k s\u0131k \"nas\u0131l yard\u0131m edebilirim?\" sorusunu al\u0131yoruz. May\u0131s ay\u0131n\u0131n KF Fark\u0131ndal\u0131k Ay\u0131 olmas\u0131 nedeniyle, May\u0131s ay\u0131 boyunca ve t\u00fcm y\u0131l boyunca Emily's Entourage'a nas\u0131l yard\u0131mc\u0131 olabilece\u011finizi vurgulamak istedik:<\/p>\n

1. Bir GE \u015eampiyonu Olun<\/b><\/p>\n

Emily's Entourage Champions kampanyas\u0131, KF'yi tedavi etme aray\u0131\u015f\u0131nda fark yaratmaya yard\u0131mc\u0131 olan gen\u00e7 profesyonel liderleri tan\u0131r ve alk\u0131\u015flar. Hay\u0131rsever ruhlar\u0131 ve toplumsal kat\u0131l\u0131mlar\u0131 nedeniyle aday g\u00f6sterilen EE \u015eampiyonlar\u0131, $1.500 ba\u011f\u0131\u015f toplama hedefine ula\u015fmak i\u00e7in ki\u015fisel a\u011flar\u0131ndan yararlanmakta ve \u00f6vg\u00fcye de\u011fer \u00e7abalar\u0131 nedeniyle y\u0131ll\u0131k galam\u0131zda onurland\u0131r\u0131lmaktad\u0131r. En \u00e7ok para toplayan \u015eampiyon, \"Y\u0131l\u0131n EE \u015eampiyonu\" olarak adland\u0131r\u0131l\u0131r.<\/p>\n

\"\"2. Bar\/Bat Mitzvah Projenizi Aday\u0131n<\/b><\/p>\n

A\u015fkenaz Yahudilerinin yakla\u015f\u0131k 25'te 1'i Kistik Fibrozis ta\u015f\u0131y\u0131c\u0131s\u0131d\u0131r. Bir Bar veya Bat Mitzvah projesi, bu az bilinen ger\u00e7e\u011fin fark\u0131ndal\u0131\u011f\u0131n\u0131 yaymak ve Emily's Entourage i\u00e7in fon toplamak i\u00e7in m\u00fckemmel bir f\u0131rsatt\u0131r. Toplanan fonlar, KF'nin A\u015fkenaz mutasyonu i\u00e7in yeni tedaviler ve bir tedavi i\u00e7in yap\u0131lan ara\u015ft\u0131rmalar\u0131 h\u0131zland\u0131rmaktad\u0131r.<\/p>\n

3. \"EE D\u00fcnyan\u0131n Neresinde?\" Kampanyas\u0131na Kat\u0131l\u0131n Kampanyas\u0131na Kat\u0131l\u0131n<\/strong><\/p>\n

Kistik Fibrozis fark\u0131ndal\u0131\u011f\u0131n\u0131 yaymak ve bu hastal\u0131\u011f\u0131 yok etmek i\u00e7in ivme kazanmak amac\u0131yla d\u00fcnyay\u0131 mora boyarken \"Emily's Entourage d\u00fcnyan\u0131n neresinde?\" kampanyam\u0131za kat\u0131l\u0131n! Emily's Entourage ti\u015f\u00f6rt\u00fcn\u00fcz\u00fc veya atletinizi harika bir yerde giyin ve bir foto\u011fraf \u00e7ekin. Sosyal medyada payla\u015f\u0131n ve bizi etiketleyin ya da admin@emilysentourage.org adresine e-posta ile g\u00f6nderin. \u015eimdiye kadar harika maceralar ya\u015fad\u0131k! #WhereInTheWorldIsEE adresinden takip edin.<\/p>\n

\"\"4. AmazonSmile'da Se\u00e7ti\u011finiz Hay\u0131r Kurumu Olarak Emily's Entourage'\u0131 Se\u00e7in<\/strong><\/p>\n

Al\u0131\u015fveri\u015finizi iyili\u011fe d\u00f6n\u00fc\u015ft\u00fcr\u00fcn! AmazonSmile'dan al\u0131\u015fveri\u015f yapt\u0131\u011f\u0131n\u0131zda Amazon, al\u0131\u015fveri\u015finizin y\u00fczde $0,5'ini Emily's Entourage'a ba\u011f\u0131\u015fl\u0131yor. \u00dcr\u00fcnlerinizin fiyat\u0131 de\u011fi\u015fmez ve Amazon Prime da dahil olmak \u00fczere di\u011fer t\u00fcm Amazon programlar\u0131na dahildir. Bu ger\u00e7ekten bir kazan\u00e7! A\u015fa\u011f\u0131daki ad\u0131mlar\u0131 izleyerek AmazonSmile hesab\u0131n\u0131z\u0131 bug\u00fcn olu\u015fturun:<\/p>\n

    \n
  1. smile.amazon.com adresinde oturum a\u00e7\u0131n<\/li>\n
  2. Sayfan\u0131n \u00fcst k\u0131sm\u0131ndaki navigasyonda \"Hesab\u0131n\u0131z\" b\u00f6l\u00fcm\u00fcne gidin ve ard\u0131ndan Hay\u0131r Kurumunuzu De\u011fi\u015ftirme se\u00e7ene\u011fini se\u00e7in.<\/li>\n
  3. Yard\u0131m kurulu\u015funuzu \"Kistik Fibrozis Ara\u015ft\u0131rma Fonu\" olarak de\u011fi\u015ftirin (EE'nin resmi olarak kay\u0131tl\u0131 ad\u0131!)<\/li>\n<\/ol>\n

    5. #TeamEE'de Maraton, Bisiklet Yar\u0131\u015f\u0131 veya Di\u011fer Atletik Etkinliklere Kat\u0131l\u0131n<\/b><\/p>\n

    \u0130ster yar\u0131 veya tam maraton, ister 5K, 30 veya 100 mil bisiklet yar\u0131\u015f\u0131, hatta triatlon olsun, b\u00fcy\u00fck bir atletik ba\u015far\u0131ya kat\u0131l\u0131m\u0131n\u0131z\u0131 #TeamEE ve KF'yi tedavi etme aray\u0131\u015f\u0131m\u0131z ad\u0131na yapmaktan daha anlaml\u0131 hale getirmenin daha iyi bir yolu yoktur. Ailenizden ve arkada\u015flar\u0131n\u0131zdan yakla\u015fan yar\u0131\u015f\u0131n\u0131z \u015ferefine Emily's Entourage'a ba\u011f\u0131\u015fta bulunmalar\u0131n\u0131 isteyin.<\/p>\n

    \"\"6. El\u00e7i Olun<\/b><\/p>\n

    \u0130nsanlar\u0131n kocaman kalpleri oldu\u011funa ve yard\u0131m etmek istediklerine inan\u0131yoruz, ancak ilk etapta bizden haberleri yoksa kimse dahil olamaz! Bu nedenle Emily's Entourage'\u0131n ad\u0131n\u0131 duyurmak, KF'yi tedavi etmeye y\u00f6nelik cesur aray\u0131\u015f\u0131m\u0131zda sava\u015f\u0131n yar\u0131s\u0131d\u0131r. Etkimizi en \u00fcst d\u00fczeye \u00e7\u0131karmak i\u00e7in, sosyal medyay\u0131 veya tercih etti\u011finiz ileti\u015fim platformunu kullanarak EE hakk\u0131nda bilgi yayman\u0131n belirli bir yolunu i\u00e7eren ve ayda bir defadan fazla olmayan bir e-posta almak i\u00e7in kaydolan bir grup insan olan EE El\u00e7ilerini ba\u015flatt\u0131k! De\u011fi\u015fim taahh\u00fcd\u00fcn\u00fcz\u00fc eyleme d\u00f6n\u00fc\u015ft\u00fcrmenin kolay bir yoludur! EE El\u00e7isi olarak kat\u0131lmak i\u00e7in kaydolun\u00a0Burada<\/a>!<\/p>\n

    7. Fitness S\u0131n\u0131f\u0131 D\u00fczenlemek \u0130\u00e7in Yerel Bir St\u00fcdyo Bulun<\/b><\/p>\n

    Emily's Entourage, y\u0131l boyunca geliri do\u011frudan vakfa ba\u011f\u0131\u015flanan fitness derslerine ev sahipli\u011fi yapmaktad\u0131r. Yerel bir spor salonuna veya fitness st\u00fcdyosuna \u00fcyeyseniz, EE yarar\u0131na bir yard\u0131m dersine ev sahipli\u011fi yapmak isteyip istemeyeceklerini sormay\u0131 d\u00fc\u015f\u00fcn\u00fcn.<\/p>\n

    \"\"8. Mesaj\u0131m\u0131z\u0131 Payla\u015f\u0131n<\/strong><\/p>\n

    \u00c7ok fazla vaktiniz yoksa yapabilece\u011finiz basit bir \u015fey de mesaj\u0131m\u0131z\u0131 arkada\u015flar\u0131n\u0131z, aileniz ve i\u015f arkada\u015flar\u0131n\u0131zla payla\u015fmakt\u0131r. Videomuzu izleyin\u00a0Burada<\/a>\u00a0ve a\u011f\u0131n\u0131zla payla\u015fmak i\u00e7in Facebook'ta yay\u0131nlay\u0131n.<\/p>\n

    9. Bir Salon Toplant\u0131s\u0131na Ev Sahipli\u011fi Yap\u0131n<\/b><\/p>\n

    Emily's Entourage ve Kistik Fibrozis ile m\u00fccadelemiz hakk\u0131nda daha fazla bilgi edinmek i\u00e7in ailenizi, arkada\u015flar\u0131n\u0131z\u0131 ve i\u015f arkada\u015flar\u0131n\u0131z\u0131 samimi bir geceye davet edin. Bu etkinliklerde genellikle Emily ve doktoru ya da Bilimsel Dan\u0131\u015fma Kurulunun bir \u00fcyesi en son ara\u015ft\u0131rma ve t\u0131bbi g\u00fcncellemeleri sunacaklard\u0131r.<\/p>\n

    \"\"10. Limonata Stand\u0131 veya Kek Sat\u0131\u015f\u0131 Yap\u0131n<\/b><\/p>\n

    En gen\u00e7 EE \u00fcyelerimiz i\u00e7in, kurulu\u015fu destekleyebilecekleri hala bir yol var. Bir limonata stand\u0131 ya da kermes d\u00fczenlemek Emily's Entourage i\u00e7in ek fon yaratman\u0131n harika bir yoludur. Hi\u00e7bir ba\u011f\u0131\u015f \u00e7ok k\u00fc\u00e7\u00fck de\u011fildir!<\/p>\n

    \"\"\u0130lgileniyor musunuz?<\/strong><\/p>\n

    Yukar\u0131da listelenen faaliyetler veya kendinize ait yepyeni bir fikir arac\u0131l\u0131\u011f\u0131yla Emily's Entourage'a daha fazla dahil olmak istiyorsan\u0131z, a\u015fa\u011f\u0131daki ileti\u015fim butonundan bize ula\u015f\u0131n!<\/p>\nB\u0130ZE ULA\u015eIN<\/a>","protected":false},"excerpt":{"rendered":"

    We often get asked the question from new or long time Entourage members, “how can I help?”\u00a0With May being CF Awareness Month, we wanted to highlight how you could help Emily’s Entourage during the month of May and all year long: 1. Become An EE Champion The Emily\u2019s Entourage Champions campaign recognizes and applauds young… <\/p>\n

    <\/div>\n

    Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":750,"featured_media":4944,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_hide_featured_image":false,"_jetpack_featured_image_duplicate_dismissed":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-6033","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0211_2.jpg","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6033","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/750"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=6033"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6033\/revisions"}],"predecessor-version":[{"id":6055,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6033\/revisions\/6055"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/4944"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=6033"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=6033"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=6033"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}