{"id":6016,"date":"2017-05-02T13:04:13","date_gmt":"2017-05-02T17:04:13","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=6016"},"modified":"2023-12-20T05:56:30","modified_gmt":"2023-12-20T10:56:30","slug":"ready-or-not-its-cf-awareness-month","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/ready-or-not-its-cf-awareness-month\/","title":{"rendered":"Haz\u0131r Olun ya da Olmay\u0131n... KF Fark\u0131ndal\u0131k Ay\u0131"},"content":{"rendered":"

\u0130\u015fte geldi, i\u015fte geldi... y\u0131l\u0131n en sevdi\u011fimiz ay\u0131! May\u0131s Ulusal Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 ve ger\u00e7ek Emily's Entourage tarz\u0131nda, toplumu onurland\u0131rmak ve fark\u0131ndal\u0131\u011f\u0131 orman yang\u0131n\u0131 gibi yaymak i\u00e7in B\u00dcY\u00dcK oluyoruz! \u0130ster uzun s\u00fcredir destek\u00e7i olun, ister bu g\u00fc\u00e7l\u00fc Entourage'da yeni olun, t\u00fcm ay boyunca harekete ge\u00e7ebilece\u011finiz ve KF'yi tedavi etme aray\u0131\u015f\u0131m\u0131z\u0131 ilerletebilece\u011finiz say\u0131s\u0131z yol var.<\/p>\n

\"\"<\/p>\n

PAYLA\u015eMAK \u00d6NEMSEMEKTI\u0307R<\/span><\/strong>
\nKF Fark\u0131ndal\u0131k Ay\u0131 \u015ferefine EE, May\u0131s ay\u0131n\u0131 KF ile ilgili ger\u00e7ekleri, ilham\u0131 ve umudu yayarak ge\u00e7irecek\u00a0Facebook<\/a>, Instagram,\u00a0Twitter<\/a>ve\u00a0Snapchat<\/a>! Tek yapman\u0131z gereken fark\u0131ndal\u0131\u011f\u0131 art\u0131rmak ve EE'nin mesaj\u0131n\u0131 yaymak i\u00e7in bir g\u00f6nderiyi be\u011fenmek veya payla\u015fmak ve kim bilir belki de yol boyunca yeni Entourage \u00fcyeleri edinirsiniz!<\/p>\n

Peki bu ay sizi neler bekliyor? KF hakk\u0131nda hi\u00e7 bilmedi\u011finiz \u015feyleri \u00f6\u011frenmeyi, EE'nin ger\u00e7ekten nas\u0131l k\u00fcreselle\u015fti\u011fini g\u00f6rmeyi ve sadece iyi bir \u00f6nlem i\u00e7in baz\u0131 sevimli bebek EE'lere hayran kalmay\u0131 d\u00f6rt g\u00f6zle bekleyin!<\/p>\n

Hi\u00e7bir \u015feyi ka\u00e7\u0131rmad\u0131\u011f\u0131n\u0131zdan emin olmak i\u00e7in sosyal medyay\u0131 takip edin:
\nFacebook:<\/strong>\u00a0@Emily's Entourage<\/a>
\nInstagram:\u00a0<\/strong>@EmilysEntourage
\nTwitter:\u00a0<\/strong>@EmilysEntourage<\/a>
\nSnapchat:\u00a0<\/strong>@EmilysEntourage<\/a><\/p>\n

BIZE FACEBOOK KAPA\u011eINIZI \u00d6D\u00dcN\u00c7 VERIN<\/span><\/strong>
\nMay\u0131s ay\u0131 i\u00e7in Facebook kapak foto\u011fraf\u0131n\u0131z\u0131 de\u011fi\u015ftirerek EE'ye destek s\u00f6z\u00fc verin. Facebook d\u00fcnyas\u0131na bu durdurulamaz Entourage'\u0131n g\u00fcc\u00fcn\u00fc ve dayan\u0131\u015fmas\u0131n\u0131 g\u00f6sterelim!<\/p>\n

Kapak Foto\u011fraf\u0131n\u0131z\u0131 Ba\u011f\u0131\u015flamak \u0130\u00e7in Talimatlar:\u00a0<\/strong>
\n1. EE'nin kapak foto\u011fraf\u0131n\u0131 g\u00f6r\u00fcnt\u00fcleyin\u00a0Burada<\/a>
\n2. Sa\u011f alt k\u00f6\u015fedeki se\u00e7eneklere t\u0131klay\u0131n ve \"indir \"i se\u00e7in
\n3. Profilinize gidin ve sol \u00fcst k\u00f6\u015fedeki \"kapak foto\u011fraf\u0131n\u0131 g\u00fcncelle\" se\u00e7ene\u011fine t\u0131klay\u0131n
\n4. EE'nin kapak foto\u011fraf\u0131n\u0131 y\u00fckleyin ve i\u015fte! Fark\u0131ndal\u0131\u011f\u0131 i\u015fte b\u00f6yle yay\u0131yorsunuz!<\/p>\n

AKILLANIN<\/strong><\/span>
\nKF Fark\u0131ndal\u0131k Ay\u0131 tamamen e\u011fitimle ilgilidir, hem EE'nin hem de KF olan g\u00f6r\u00fcnmez hastal\u0131\u011f\u0131n perde arkas\u0131na bir bak\u0131\u015f sa\u011flamak i\u00e7in perdeyi kald\u0131r\u0131r.<\/p>\n

Blogumuz t\u00fcm ay boyunca \u00f6zel blog yaz\u0131lar\u0131yla dolup ta\u015facak! Emily'nin s\u0131n\u0131f arkada\u015flar\u0131ndan birinin Anneler G\u00fcn\u00fc'n\u00fc kutlayan konuk blogunu, EE'nin nefes kesen 2. Y\u0131ll\u0131k NYC Etkinli\u011finin \u00f6zetini ve EE'nin arkas\u0131ndaki s\u00fcperstarlardan baz\u0131lar\u0131n\u0131n spot \u0131\u015f\u0131klar\u0131n\u0131 g\u00f6r\u00fcn.<\/p>\n

Ayr\u0131ca, KF ve EE'nin KF'yi iyile\u015ftirme \u00e7al\u0131\u015fmalar\u0131 hakk\u0131nda fark\u0131ndal\u0131k yaratmak i\u00e7in retweetleyebilece\u011finiz, KF hakk\u0131nda g\u00fcn\u00fcn ger\u00e7e\u011fi niteli\u011finde bilgiler i\u00e7eren bir Twitter payla\u015f\u0131m\u0131 yapaca\u011f\u0131z!<\/p>\n

EMILY I\u0307LE CANLI SORU-CEVAP OTURUMU<\/strong><\/span>
\nEmily ile 22 May\u0131s Pazartesi g\u00fcn\u00fc saat 13:00'te ger\u00e7ekle\u015ftirece\u011fimiz Facebook Canl\u0131 Soru-Cevap oturumunda bize kat\u0131l\u0131n. Oturum s\u0131ras\u0131nda KF ve EE hakk\u0131ndaki sorular\u0131n\u0131z\u0131 yan\u0131tlayacak! Unutmak istemedi\u011finiz bir sorunuz mu var? Endi\u015felenmeyin! Sorular\u0131n\u0131z\u0131 \u00e7evrimi\u00e7i formumuz arac\u0131l\u0131\u011f\u0131yla \u00f6nceden g\u00f6nderebilirsiniz\u00a0Burada<\/a>.<\/p>\n

ALI\u015eVERI\u0307\u015e YAPIN VE GERI\u0307 VERI\u0307N<\/span><\/strong>
\nHay\u0131r kurumunuz olarak Emily's Entourage'\u0131 se\u00e7ti\u011finizde Amazon Smile, al\u0131\u015fveri\u015finizin 0,5%'sini EE'ye geri ba\u011f\u0131\u015flayacakt\u0131r. Al\u0131\u015fveri\u015f sepetlerinizden Amazon Smile'dan \u015fimdiden $1,500'\u00fcn \u00fczerinde ba\u011f\u0131\u015f toplad\u0131k! T\u0131klay\u0131n\u00a0Burada<\/a>\u00a0EE'yi Amazon Smile hay\u0131r kurumunuz yapmak i\u00e7in.<\/p>\n

BA\u011eI\u015e YAPMAK<\/strong><\/span>
\nKF Fark\u0131ndal\u0131k Ay\u0131 tamamen fark\u0131ndal\u0131kla ilgilidir ve fark\u0131ndal\u0131ktan sonraki ad\u0131m\u0131n eylem oldu\u011funu biliyoruz - at\u0131l\u0131mlar yapmak ve hayat kurtarmak i\u00e7in KF ara\u015ft\u0131rmalar\u0131n\u0131n h\u0131z\u0131n\u0131 art\u0131rmak. Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 \u015ferefine b\u00fcy\u00fck ya da k\u00fc\u00e7\u00fck bir ba\u011f\u0131\u015f yapmay\u0131 d\u00fc\u015f\u00fcn\u00fcn! Ayl\u0131k ba\u011f\u0131\u015f kutusunu i\u015faretlemek, yorulmak bilmeyen tedavi aray\u0131\u015f\u0131m\u0131za s\u00fcrekli deste\u011finizi g\u00f6stermenin bir ba\u015fka yoludur. Ba\u011f\u0131\u015f yapabilirsiniz\u00a0Burada<\/a>.<\/p>\nBA\u011eI\u015e YAPMAK<\/a>","protected":false},"excerpt":{"rendered":"

\u0130\u015fte geldi, i\u015fte geldi... y\u0131l\u0131n en sevdi\u011fimiz ay\u0131! May\u0131s Ulusal Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 ve ger\u00e7ek Emily's Entourage tarz\u0131nda, toplumu onurland\u0131rmak ve fark\u0131ndal\u0131\u011f\u0131 orman yang\u0131n\u0131 gibi yaymak i\u00e7in B\u00dcY\u00dcK oluyoruz! \u0130ster uzun s\u00fcredir destek\u00e7i olun, ister bu g\u00fc\u00e7l\u00fc Entourage'da yeni olun, harekete ge\u00e7menin say\u0131s\u0131z yolu var... <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":750,"featured_media":6017,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-6016","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NewCoverPhoto.png","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6016","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/750"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=6016"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6016\/revisions"}],"predecessor-version":[{"id":20500,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6016\/revisions\/20500"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/6017"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=6016"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=6016"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=6016"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}