{"id":6008,"date":"2017-05-05T08:47:23","date_gmt":"2017-05-05T12:47:23","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=6008"},"modified":"2023-12-20T04:58:12","modified_gmt":"2023-12-20T09:58:12","slug":"eat-a-cookie-find-a-cure","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/eat-a-cookie-find-a-cure\/","title":{"rendered":"Bir Kurabiye Ye, Bir Tedavi Bul"},"content":{"rendered":"

Zaman zaman EE toplulu\u011funun bir par\u00e7as\u0131 olan konuk blog yazarlar\u0131n\u0131 blogumuza benzersiz sesleriyle katk\u0131da bulunmalar\u0131 i\u00e7in davet ediyoruz. Bug\u00fcn\u00fcn konuk blog yazar\u0131, bu lezzetli kurabiye ba\u011f\u0131\u015f kampanyas\u0131 gibi pek \u00e7ok EE b\u00fcy\u00fcl\u00fc an\u0131n\u0131n arkas\u0131ndaki yarat\u0131c\u0131 zihin olan uzun zamand\u0131r EE hazinesi Julie Zibelman!\u00a0<\/span><\/em><\/p>\n

Ne zaman bana bu kadar yak\u0131ndan nas\u0131l ba\u011fland\u0131\u011f\u0131m sorulsa <\/span>Emily'nin \u00c7evresi<\/b> ve mor E'lerin arkas\u0131ndaki KG ailesinin en canl\u0131 an\u0131s\u0131 her zaman akl\u0131ma geliyor. \u00a0<\/span><\/p>\n

Narberth Park'ta bir Cumartesi \u00f6\u011fleden sonras\u0131yd\u0131. Daha \u00f6nce bir\u00e7ok kez yapt\u0131\u011f\u0131m Narberth CF ko\u015fusunun sabah\u0131yd\u0131. Bir ama\u00e7 u\u011fruna ko\u015fmak benim i\u00e7in yabanc\u0131 bir \u015fey de\u011fildi ama kesinlikle hi\u00e7bir ama\u00e7 kalbime yak\u0131n de\u011fildi.<\/span><\/p>\n

Bu Cumartesi sahan\u0131n her yerinde EE'ler vard\u0131. \u00a0<\/span><\/p>\n

Daha \u00f6nce duymu\u015ftum. <\/span>Emily'nin \u00c7evresi<\/b> ve hatta \"o\" Emily ile tan\u0131\u015fm\u0131\u015f ama \"\u0130K\u0130 \"yi hi\u00e7 bir araya getirmemi\u015fti. \u00a0<\/span><\/p>\n

Bu <\/span>Emily<\/i><\/b> Tan\u0131d\u0131\u011f\u0131m bir m\u00fc\u015fteriydi. Penn Medicine'\u0131n Pazarlama Departman\u0131nda canl\u0131, azimli bir pazarlama irtibat g\u00f6revlisi. \u00a0<\/span><\/p>\n

Ben onun sat\u0131c\u0131s\u0131yd\u0131m ve bir\u00e7ok kez promosyon \u00fcr\u00fcnleri ve giyim e\u015fyalar\u0131 sa\u011flad\u0131m. Etkile\u015fimlerimiz hassas, kusursuz ve titizdi. Bunun EE'nin y\u00fcz\u00fc oldu\u011funa asla inanmazd\u0131m. <\/span>Emily<\/i><\/b>.<\/i>\u00a0Asla. <\/span><\/p>\n

Bu Cumartesi sabah\u0131, komuta subay\u0131 s\u00fcr\u00fcy\u00fc y\u00f6netiyordu. V\u00fccudunun ve y\u00fcz\u00fcn\u00fcn her yerinde EE vard\u0131. Emily Kramer-Golinkoff'un annesi ve temsilcisi olan Liza Kramer, Narberth park\u0131n\u0131n tam ortas\u0131nda ekibe komuta etti. \u00a0<\/span><\/p>\n

Hi\u00e7 teredd\u00fct etmeden, bu olay\u0131n temeline inmem gerekti\u011fini biliyordum. <\/span>Entourage<\/b>misyonu ve insanlar\u0131. Klandan sadece ikisiyle, Liza ve EE Ba\u015fkan\u0131, benim kahramanlar kahraman\u0131m Annie Kramer-Golinkoff ile tan\u0131\u015ft\u0131ktan sonra ba\u011fland\u0131m.<\/span><\/p>\n

Emily, Kistik Fibrozis ve bir tedavi bulma konusunda farkl\u0131l\u0131k yaratmak i\u00e7in devam eden pek \u00e7ok macera hakk\u0131nda h\u0131zl\u0131 ve \u00e7ok hevesli bir \u015fekilde bilgilendirildim. T\u00fcm bunlar\u0131n ortas\u0131nda Liza benim hakk\u0131mda daha fazla \u015fey \u00f6\u011frenmeye \u00e7al\u0131\u015f\u0131yordu. Kim oldu\u011fumu, \u00e7ocuklar\u0131m, k\u00f6peklerim, i\u015fim hakk\u0131nda ve beni tan\u0131tmak i\u00e7in. Bu, daha \u00f6nce hi\u00e7 hissetmedi\u011fim, an\u0131nda hayranl\u0131k duydu\u011fum ve bir par\u00e7as\u0131 olmay\u0131 \u00e7ok istedi\u011fim bir enerji g\u00fcc\u00fcne \u00e7arpmak gibiydi. \u0130\u00e7erideydim.<\/span><\/p>\n

Emily'nin \u00c7evresi<\/b> nadir g\u00f6r\u00fclen Kistik Fibrozis mutasyonu i\u00e7in bir tedavi bulma yolunda \u00f6nc\u00fcl\u00fck ederek \u015fimdiden milyonlar topluyor. Bu sadece Emily'ye de\u011fil, daha \u00f6nce \u00e7ok az ara\u015ft\u0131rman\u0131n yap\u0131ld\u0131\u011f\u0131 sa\u00e7ma mutasyonlara sahip pek \u00e7ok ki\u015fiye yard\u0131mc\u0131 oluyor.<\/span><\/p>\n

S\u00fcrekli g\u00fc\u00e7, azim ve topluluk sayesinde tedaviye ula\u015faca\u011f\u0131z. Entourage'\u0131m\u0131za g\u00fcvenerek oraya ula\u015faca\u011f\u0131z. Yol boyunca yap\u0131lan her k\u00fc\u00e7\u00fck ba\u011f\u0131\u015f bir fark yarat\u0131r, i\u015fte bu y\u00fczden Emily's Entourage kurabiyelerini satarak \u00fczerimize d\u00fc\u015feni yap\u0131yoruz!<\/p>\n

\"\"<\/p>\n

Kurabiyeler herkesin sevdi\u011fi bir \u015feydir ve \u015fimdi bu taze pi\u015fmi\u015f kurabiyeleri hediye olarak g\u00f6nderebilir veya kendiniz i\u00e7in bir set sipari\u015f edebilir ve gelirin do\u011frudan Emily's Entourage'a gidece\u011fini bilerek kendinizi \u015f\u0131martabilirsiniz.<\/span><\/p>\n

Bir kutu kap\u0131n Burada<\/a>\u00a0- Her katk\u0131 bizi tedaviye bir ad\u0131m daha yakla\u015ft\u0131r\u0131yor.<\/span><\/p>\n

\"\"<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today\u2019s guest blogger is longtime EE treasure\u00a0Julie Zibelman, the creative mind behind so many EE magical moments — like this delicious cookie fundraiser!\u00a0 Whenever I\u2019ve been asked how I became so closely… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":750,"featured_media":6010,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-6008","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CookiesMain.png","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6008","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/750"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=6008"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6008\/revisions"}],"predecessor-version":[{"id":20487,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/6008\/revisions\/20487"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/6010"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=6008"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=6008"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=6008"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}