{"id":598,"date":"2012-05-07T19:56:51","date_gmt":"2012-05-08T02:56:51","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=598"},"modified":"2023-12-20T04:28:01","modified_gmt":"2023-12-20T09:28:01","slug":"may-is-cf-awareness-month","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/may-is-cf-awareness-month\/","title":{"rendered":"May\u0131s KF Fark\u0131ndal\u0131k Ay\u0131!"},"content":{"rendered":"<div dir=\"ltr\">Herkese merhaba,<\/div>\n<p>&nbsp;<\/p>\n<p dir=\"ltr\">Mutlu May\u0131slar! Bu ay \u00f6zellikle \u00f6nemli bir ay \u00e7\u00fcnk\u00fc May\u0131s Ulusal Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131. KF ABD'de sadece 30.000 ki\u015fiyi etkilemektedir, bu da bir\u00e7ok insan\u0131n KF'yi daha \u00f6nce duymad\u0131\u011f\u0131 anlam\u0131na gelmektedir. Bu ay, arkada\u015flar\u0131m\u0131z\u0131 ve KF'nin ne oldu\u011fu, neleri i\u00e7erdi\u011fi, uzun vadeli etkilerinin neler oldu\u011fu ve neden bir an \u00f6nce tedaviye ihtiyac\u0131m\u0131z oldu\u011fu konusunda e\u011fitmek i\u00e7in bir f\u0131rsatt\u0131r.<\/p>\n<p>Fark\u0131ndal\u0131\u011f\u0131 art\u0131rmak ve ses getirmek amac\u0131yla, t\u00fcm ay boyunca Twitter'da g\u00fcnl\u00fck KF ger\u00e7ekleri, hikayeleri, haberleri, ilhamlar\u0131 ve foto\u011fraflar\u0131 payla\u015f\u0131yoruz. Sohbete kat\u0131lmak i\u00e7in bizi @EmsEntourage4CF adresinden takip edin!<\/p>\n<p dir=\"ltr\">Buna ek olarak, sizden KF hakk\u0131ndaki bilgileri yaymam\u0131za yard\u0131mc\u0131 olman\u0131z\u0131 istiyoruz. \u0130\u015fte yard\u0131m edebilece\u011finiz baz\u0131 yollar:<\/p>\n<div dir=\"ltr\">\n<ul>\n<li><strong>Emily's Entourage'a ba\u011f\u0131\u015f yap\u0131n<\/strong><\/li>\n<ul>\n<li><a href=\"https:\/\/www.paypal.com\/us\/cgi-bin\/webscr?cmd=_flow&amp;SESSION=2rhVuhw4_UYB5Pi9YMsQW2d83RQwBeRc486SrKww15gj0JJV1oIPg7VmbX8&amp;dispatch=5885d80a13c0db1f8e263663d3faee8d195a86f1d217942f7415cf1b2a661693\">\u015eimdi ba\u011f\u0131\u015f yap\u0131n!<\/a><\/li>\n<\/ul>\n<li><strong>Emily's Entourage ti\u015f\u00f6rt\u00fc sat\u0131n al\u0131n<\/strong><\/li>\n<ul>\n<li><a href=\"https:\/\/www.emilysentourage.org\/tr\/buy-an-ee-tshirt\/\">Bir ti\u015f\u00f6rt al\u0131n!<\/a><\/li>\n<\/ul>\n<li><strong>Toplulu\u011funuzda veya \u00fcniversitenizde EV i\u00e7in bir ba\u011f\u0131\u015f toplama etkinli\u011fi d\u00fczenleyin<\/strong><\/li>\n<ul>\n<li><a href=\"https:\/\/www.emilysentourage.org\/tr\/contact\/\">Fikrinizle birlikte bize bir mesaj g\u00f6nderin!<\/a><\/li>\n<\/ul>\n<li><strong>KF hakk\u0131nda fark\u0131ndal\u0131k yaratmak i\u00e7in Facebook veya Twitter'da bir mesaj yay\u0131nlay\u0131n<\/strong><\/li>\n<ul>\n<li>\u00d6rnek Facebook G\u00f6nderisi:<\/li>\n<ul>\n<ul>\n<li>ABD'de 30.000 Kistik Fibrozis hastas\u0131 ve 10 milyon KF geni ta\u015f\u0131y\u0131c\u0131s\u0131 bulunmaktad\u0131r. May\u0131s ay\u0131ndaki Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 \u015ferefine, KF'ye kar\u015f\u0131 m\u00fccadelede bir fark yaratmaya yard\u0131mc\u0131 olmak i\u00e7in neler yapabilece\u011finizi g\u00f6r\u00fcn.<a title=\"http:\/\/bit.ly\/EmsEnt\" href=\"https:\/\/www.emilysentourage.org\/tr\/\" rel=\"nofollow noopener\" target=\"_blank\" url=\"http:\/\/bit.ly\/EmsEnt\">http:\/\/bit.ly\/EmsEnt<\/a><\/li>\n<\/ul>\n<\/ul>\n<li>\u00d6rnek Twitter G\u00f6nderisi:<\/li>\n<ul>\n<ul>\n<li>ABD'de ortalama ya\u015fam s\u00fcresi: 80 y\u0131l. KBY hastalar\u0131 i\u00e7in ortalama ya\u015fam s\u00fcresi: 30'lar\u0131n ortas\u0131. BI\u0307R TEDAVI\u0307YE I\u0307HTI\u0307YACIMIZ VAR. STAT. <a href=\"https:\/\/www.emilysentourage.org\/tr\/\">http:\/\/bit.ly\/E<wbr>msEnt <\/wbr><\/a>#CFA Fark\u0131ndal\u0131kAy\u0131<\/li>\n<li>May\u0131s #CFA Fark\u0131ndal\u0131k Ay\u0131! 10 milyon Amerikal\u0131n\u0131n #CysticFibrosis geni ta\u015f\u0131y\u0131c\u0131s\u0131 oldu\u011funu biliyor muydunuz?\u00a0<a title=\"http:\/\/bit.ly\/EmsEnt\" href=\"https:\/\/www.emilysentourage.org\/tr\/\" rel=\"nofollow noopener\" target=\"_blank\" url=\"http:\/\/bit.ly\/EmsEnt\">http:\/\/bit.ly\/EmsEnt<\/a><\/li>\n<li>Genetik taramadaki ilerlemelere ra\u011fmen, 1000 yeni <a title=\"#CysticFibrosis\" href=\"https:\/\/twitter.com\/#%21\/search\/%23CysticFibrosis\" data-query-source=\"hashtag_click\"><s>#<\/s><strong>KistikFibrozis<\/strong><\/a>\u00a0her y\u0131l te\u015fhis ediliyor <a title=\"http:\/\/bit.ly\/EmsEnt\" href=\"https:\/\/www.emilysentourage.org\/tr\/\" rel=\"nofollow noopener\" target=\"_blank\" url=\"http:\/\/bit.ly\/EmsEnt\">http:\/\/bit.ly\/EmsEnt<\/a>\u00a0#CFA Fark\u0131ndal\u0131kAy\u0131<\/li>\n<\/ul>\n<\/ul>\n<\/ul>\n<\/ul>\n<p>Her zaman oldu\u011fu gibi, inan\u0131lmaz deste\u011finiz i\u00e7in te\u015fekk\u00fcr ederiz! Fark\u0131ndal\u0131\u011f\u0131 yayarak KF ile m\u00fccadelede bir fark yaratabiliriz.<\/p>\n<div dir=\"ltr\">-EE<\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Herkese merhaba, Mutlu May\u0131slar! Bu ay \u00f6zellikle \u00f6nemli bir ay \u00e7\u00fcnk\u00fc May\u0131s Ulusal Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131. KF ABD'de sadece 30.000 ki\u015fiyi etkilemektedir, bu da bir\u00e7ok insan\u0131n KF'yi daha \u00f6nce duymad\u0131\u011f\u0131 anlam\u0131na gelmektedir. Bu ay, arkada\u015flar\u0131m\u0131z\u0131 ve KF hakk\u0131nda e\u011fitmek i\u00e7in bir f\u0131rsatt\u0131r - ne oldu\u011fu, ne... <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/may-is-cf-awareness-month\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_hide_featured_image":false,"_jetpack_featured_image_duplicate_dismissed":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[6],"tags":[],"class_list":["post-598","post","type-post","status-publish","format-standard","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/598","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=598"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/598\/revisions"}],"predecessor-version":[{"id":20430,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/598\/revisions\/20430"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=598"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=598"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=598"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}