{"id":5903,"date":"2017-04-14T00:16:38","date_gmt":"2017-04-14T04:16:38","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=5903"},"modified":"2020-01-08T20:28:27","modified_gmt":"2020-01-09T01:28:27","slug":"a-glimpse-into-life-with-chronic-illness","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/a-glimpse-into-life-with-chronic-illness\/","title":{"rendered":"Kronik Hastal\u0131kla Ya\u015fama Bir Bak\u0131\u015f"},"content":{"rendered":"

Kistik Fibrozis gibi ciddi bir kronik hastal\u0131\u011fa sahip olman\u0131n ger\u00e7ekte nas\u0131l bir his oldu\u011funu hi\u00e7 merak ettiniz mi?<\/p>\n

\"\"

Hastanede mola zaman\u0131<\/p><\/div>\n

Christine Miserandino'nun \"Spoon Theory\" (Ka\u015f\u0131k Teorisi) adl\u0131 kitab\u0131, kronik hastal\u0131klar d\u00fcnyas\u0131nda, sa\u011fl\u0131kl\u0131 insanlara hastal\u0131kl\u0131 ya\u015fama dair bir bak\u0131\u015f a\u00e7\u0131s\u0131 sundu\u011fu i\u00e7in efsane say\u0131l\u0131r (\u00f6yle ki kronik hastal\u0131\u011f\u0131 olanlar genellikle kendilerini sevecen bir \u015fekilde \"spoonies\" olarak adland\u0131r\u0131rlar). Lupus hastas\u0131 gen\u00e7 bir kad\u0131n olan Christine, hasta olmakla sa\u011fl\u0131kl\u0131 olmak aras\u0131ndaki \u00f6nemli bir fark\u0131 ustal\u0131kla ortaya koyuyor: her g\u00fcn enerjinizi nas\u0131l harcayaca\u011f\u0131n\u0131z konusunda dikkatlice d\u00fc\u015f\u00fcnmek ve zor kararlar almak zorunda kalmak-<\/span>geri kalan\u0131m\u0131z\u0131n sadece kan\u0131ksad\u0131\u011f\u0131 bir \u015fey.<\/p>\n

Bu kararlar genellikle \u00e7ama\u015f\u0131r y\u0131kamak ya da yemek yapmak, market al\u0131\u015fveri\u015fine gitmek ya da spor salonuna gitmek aras\u0131nda se\u00e7im yapmak gibi temel \u015feylere dayan\u0131yor. S\u0131n\u0131rl\u0131 bir enerji rezervine sahip olan Emily ve onun gibiler, enerji harcamalar\u0131 s\u00f6z konusu oldu\u011funda s\u00fcrekli olarak \u00f6nceliklerini belirlemek zorundad\u0131r ve bu konuda riskler y\u00fcksektir. \u00d6rne\u011fin Emily'nin s\u0131n\u0131r\u0131n\u0131 a\u015fmas\u0131, akci\u011fer kanamas\u0131, iltihaplanma ve akci\u011fer enfeksiyonu riskinin artmas\u0131 gibi ciddi sonu\u00e7lara yol a\u00e7abilir.<\/p>\n

\"\"

T\u00fcm ka\u015f\u0131klar bitti.<\/p><\/div>\n

Haplar\u0131n ve t\u0131bbi tedavilerin, doktor randevular\u0131n\u0131n ve hastanede kal\u0131\u015f s\u00fcrelerinin \u00f6tesinde, Emily i\u00e7in KF'nin g\u00fcnl\u00fck bazda en zor k\u0131sm\u0131 genellikle enerjisi \u00fczerindeki etkisidir. Enerjinin \u00e7ok s\u0131n\u0131rl\u0131 ve de\u011ferli bir kaynak oldu\u011fu ortaya \u00e7\u0131kt\u0131. \u00c7o\u011fu zaman g\u00f6zleri b\u00fcy\u00fck, h\u0131rslar\u0131 daha da b\u00fcy\u00fck oluyor ve v\u00fccudu buna ayak uyduram\u0131yor.<\/p>\n

\"\"

Uzun bir g\u00fcn\u00fcn sonunda uykulu \u00fc\u00e7 k\u0131z karde\u015f<\/p><\/div>\n

O y\u00fczden okuyun. Ve bir dahaki sefere Emily'yi g\u00f6rd\u00fc\u011f\u00fcn\u00fczde ona o g\u00fcnk\u00fc ka\u015f\u0131k say\u0131s\u0131n\u0131n ne oldu\u011funu sorun. Verece\u011fi yan\u0131t kar\u015f\u0131s\u0131nda olduk\u00e7a \u015fa\u015f\u0131raca\u011f\u0131n\u0131za bahse gireriz.<\/p>\n

Buradan okuyun >> Christine Miserandino taraf\u0131ndan yaz\u0131lan Ka\u015f\u0131k Teorisi<\/a><\/p>\n

\"\"

Klinik deney randevular\u0131 ve testlerle dolu b\u00fcy\u00fck bir g\u00fcnden \u00f6nce ka\u015f\u0131klar\u0131n\u0131 sakl\u0131yor<\/p><\/div>","protected":false},"excerpt":{"rendered":"

Kistik Fibrozis gibi ciddi bir kronik hastal\u0131\u011fa sahip olman\u0131n ger\u00e7ekte nas\u0131l bir his oldu\u011funu hi\u00e7 merak ettiniz mi? Christine Miserandino'nun \u201cKa\u015f\u0131k Teorisi\u201d, kronik hastal\u0131klar d\u00fcnyas\u0131nda, sa\u011fl\u0131kl\u0131 insanlara hastal\u0131kl\u0131 ya\u015fama dair bir bak\u0131\u015f a\u00e7\u0131s\u0131 kazand\u0131rd\u0131\u011f\u0131 i\u00e7in efsanevi say\u0131l\u0131r (\u00f6yle ki kronik hastal\u0131\u011f\u0131 olanlar genellikle kendilerini sevecen bir \u015fekilde \u201cka\u015f\u0131k\u00e7\u0131\u201d olarak adland\u0131r\u0131rlar). Gen\u00e7 bir... <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1281,"featured_media":5908,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_hide_featured_image":false,"_jetpack_featured_image_duplicate_dismissed":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1,6],"tags":[],"class_list":["post-5903","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","category-emilys-entourage-blog"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_1544.jpg","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/5903","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=5903"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/5903\/revisions"}],"predecessor-version":[{"id":14103,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/5903\/revisions\/14103"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/5908"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=5903"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=5903"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=5903"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}