{"id":447,"date":"2012-02-02T08:46:41","date_gmt":"2012-02-02T15:46:41","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=447"},"modified":"2023-12-19T01:30:43","modified_gmt":"2023-12-19T06:30:43","slug":"exciting-new-cf-drug-approval","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/exciting-new-cf-drug-approval\/","title":{"rendered":"Heyecan verici yeni KF ilac\u0131 onay\u0131!"},"content":{"rendered":"

Herkese merhaba,<\/p>\n

Emily's Entourage'da hepimizin son derece heyecan duydu\u011fu baz\u0131 B\u00dcY\u00dcK haberleri sizlerle payla\u015fmak istiyoruz. Bu hafta ba\u015f\u0131nda, FDA'n\u0131n Kistik Fibrozis'in (KF) alt\u0131nda yatan genetik sorunu d\u00fczeltecek \u0130LK ila\u00e7 olan Kalydeco adl\u0131 yeni bir ilac\u0131 onaylad\u0131\u011f\u0131 duyuruldu. Ancak ila\u00e7, belirli bir genetik mutasyona (G551D) sahip olan KF pop\u00fclasyonunun yaln\u0131zca 4%'sine yard\u0131mc\u0131 olacakt\u0131r. Ne yaz\u0131k ki, Emily de dahil olmak \u00fczere KF ile ya\u015fayan 96% ki\u015fi hala hayat kurtar\u0131c\u0131 tedavilerini bekliyor.<\/p>\n

Bu muazzam haberle birlikte, t\u00fcm ba\u011f\u0131\u015f toplama \u00e7abalar\u0131m\u0131z\u0131n neden bu kadar \u00f6nemli oldu\u011funu bir kez daha hat\u0131rlam\u0131\u015f olduk. Toplad\u0131\u011f\u0131m\u0131z para bunun gibi hayat de\u011fi\u015ftiren ara\u015ft\u0131rmalara fon sa\u011fl\u0131yor. Bu inan\u0131lmaz ke\u015fif bize \u00e7ok yak\u0131n oldu\u011fumuzu g\u00f6steriyor, ancak hen\u00fcz o noktada de\u011filiz. Emily'nin ve KF'li di\u011fer herkesin de hayat de\u011fi\u015ftiren bir tedaviden faydalanabilmesi i\u00e7in \u00e7abalamaya ve g\u00fc\u00e7l\u00fc bir \u015fekilde ba\u011f\u0131\u015f toplamaya devam etmeliyiz. Ba\u011f\u0131\u015f yaparak ve Emily's Entourage mesaj\u0131n\u0131 yaymaya devam ederek bize yard\u0131mc\u0131 olabilirsiniz.<\/p>\n

Emily's Entourage'dan hepimiz, devam eden deste\u011finiz i\u00e7in te\u015fekk\u00fcr ederiz!<\/p>\n

-Emily's Entourage<\/p>\n

 <\/p>\n

CFF bas\u0131n a\u00e7\u0131klamas\u0131n\u0131 okuyun: https:\/\/www.cff.org\/News\/News-Archive\/2012\/FDA-Approves-Kalydeco-(VX-770)-%E2%80%94-First-Drug-That-Targets-the-Underlying-Cause-of-Cystic-Fibrosis\/<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Hi all, We have some HUGE news to share with you that all of us at Emily’s Entourage are extremely excited about. Early this week, it was announced that the FDA approved a new drug, Kalydeco, which is the FIRST EVER drug to correct the underlying genetic problem in Cystic Fibrosis (CF). However, the drug… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[6],"tags":[],"class_list":["post-447","post","type-post","status-publish","format-standard","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/447","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=447"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/447\/revisions"}],"predecessor-version":[{"id":20229,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/447\/revisions\/20229"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=447"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=447"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=447"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}