{"id":431,"date":"2012-01-24T17:04:11","date_gmt":"2012-01-25T00:04:11","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=431"},"modified":"2012-01-24T19:35:49","modified_gmt":"2012-01-25T02:35:49","slug":"emilys-entourage-presents-a-hefty-check-to-the-cff","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/emilys-entourage-presents-a-hefty-check-to-the-cff\/","title":{"rendered":"Emily's Entourage CFF'ye (y\u00fckl\u00fc) bir \u00e7ek takdim ediyor!"},"content":{"rendered":"

Sevgili EE blog okuyucular\u0131,<\/p>\n

Ne f\u0131rt\u0131nal\u0131 bir g\u00fcnd\u00fc! Sabah tam 7:30'da annem, babam, Julia ve ben Philly'den Starbucks kahveleri ve heyecan ve beklentiyle k\u00f6p\u00fcren kalplerle ayr\u0131ld\u0131k.<\/p>\n

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Uykulu Coby, New Orleans'tan Baltimore'a giden bir u\u00e7a\u011fa bindi.<\/p>\n

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Baltimore'da bulu\u015ftuk ve Bethesda, MD'deki Kistik Fibrozis Vakf\u0131 ulusal ofisine do\u011fru yolumuza devam ettik. Hatta oraya bo\u015f vaktimiz bile vard\u0131! Coby ve Julia B\u00dcY\u00dcK \u00e7eke bir g\u00f6z att\u0131lar. Son mebla\u011f\u0131 her g\u00f6rd\u00fc\u011f\u00fcm\u00fczde bizi hayrete d\u00fc\u015f\u00fcr\u00fcyor - $83,233.822. Ortak bir ama\u00e7 i\u00e7in bir araya geldi\u011fimizde - bu durumda Kistik Fibrozis ara\u015ft\u0131rmalar\u0131 i\u00e7in para toplamak - bir toplulu\u011fun neler yapabilece\u011fini temsil ediyor.<\/p>\n

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\u00d6\u011fle saatlerinde Vak\u0131f ofisine girdik. Heyecanl\u0131yd\u0131k, gergindik, ne bekleyece\u011fimizden emin de\u011fildik ve sadece her \u015feyi anlamaya \u00e7al\u0131\u015f\u0131yorduk.<\/p>\n

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Dr. Beall taraf\u0131ndan kar\u015f\u0131land\u0131k, kendisi efsaneye uygun olarak tam anlam\u0131yla enerji ve co\u015fku sa\u00e7\u0131yordu. Bize bir konferans odas\u0131na kadar e\u015flik etti ve burada g\u00fcn boyunca Dr. Preston Campbell, Gina Shewe, Steve Rich, Eileen Miley ve birka\u00e7 ki\u015fi daha bize kat\u0131ld\u0131.<\/p>\n

Ve b\u00f6ylece ba\u015flad\u0131.<\/p>\n

\u0130la\u00e7 geli\u015ftirme hatt\u0131n\u0131 uzun uzun tart\u0131\u015ft\u0131k, bizi tedaviye yakla\u015ft\u0131rmak i\u00e7in g\u00f6sterdikleri inan\u0131lmaz \u00e7abalar i\u00e7in derin minnettarl\u0131\u011f\u0131m\u0131z\u0131 ifade ettik ve Vakf\u0131n kritik ila\u00e7lar\u0131 ihtiyac\u0131 olan insanlara ula\u015ft\u0131rmak i\u00e7in yapt\u0131\u011f\u0131 etkileyici giri\u015fimler hakk\u0131nda bilgi edindik. \u0130simsiz ba\u011f\u0131\u015f\u00e7\u0131ya \"te\u015fekk\u00fcr\" videomuzu grupla payla\u015ft\u0131k ve bir kopyas\u0131n\u0131 (bir kartla birlikte!) ailesine g\u00f6ndermesi i\u00e7in Gina'ya b\u0131rakt\u0131k. B\u00dcY\u00dcK \u00e7eki Dr. Beall'a t\u00f6renle teslim ettikten sonra birka\u00e7 foto\u011fraf i\u00e7in poz verdik. $83,233.82!! Bu inan\u0131lmaz toplam\u0131 h\u00e2l\u00e2 akl\u0131m\u0131z alm\u0131yor!<\/p>\n

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CFF ekibiyle g\u00f6r\u00fc\u015ft\u00fckten sonra, KF'nin tedavisine giden yolda b\u00f6ylesine kararl\u0131, vizyoner, \u015fefkatli, azimli, zeki ve ola\u011fan\u00fcst\u00fc insanlara sahip oldu\u011fumuz i\u00e7in kendimizi onurland\u0131r\u0131lm\u0131\u015f ve rahatlam\u0131\u015f hissetti\u011fimizi s\u00f6ylerken san\u0131r\u0131m t\u00fcm ailem ad\u0131na konu\u015fuyorum.<\/p>\n

Bu inan\u0131lmaz g\u00fcn\u00fc m\u00fcmk\u00fcn k\u0131ld\u0131\u011f\u0131n\u0131z i\u00e7in hepinize te\u015fekk\u00fcr ederiz. Siz olmasayd\u0131n\u0131z bunlar\u0131n H\u0130\u00c7B\u0130R\u0130N\u0130 yapamazd\u0131k!<\/p>\n

Sevgi, minnettarl\u0131k ve tedavi i\u00e7in bolca umutla,<\/p>\n

Emily<\/p>","protected":false},"excerpt":{"rendered":"

Dearest EE blog readers, What a whirlwind of a day! At 7:30 am sharp, my mom, dad, Julia and I left Philly geared with Starbucks coffee and hearts bubbling with excitement and\u00a0anticipation. A sleepy Coby boarded a Baltimore-bound flight all the way from New Orleans. We met in Baltimore and continued on our way to… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[6],"tags":[],"class_list":["post-431","post","type-post","status-publish","format-standard","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/431","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=431"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/431\/revisions"}],"predecessor-version":[{"id":446,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/431\/revisions\/446"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=431"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=431"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=431"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}