{"id":27068,"date":"2026-08-25T10:25:21","date_gmt":"2026-08-25T14:25:21","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=27068"},"modified":"2026-09-08T17:20:27","modified_gmt":"2026-09-08T21:20:27","slug":"step-inside-the-crystal-palace-tickets-on-sale-for-emilys-entourages-2026-gala","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/step-inside-the-crystal-palace-tickets-on-sale-for-emilys-entourages-2026-gala\/","title":{"rendered":"Kristal Saray\u0131n \u0130\u00e7ine Ad\u0131m At\u0131n: Emily's Entourage'\u0131n 2026 Galas\u0131 \u0130\u00e7in Biletler Sat\u0131\u015fta"},"content":{"rendered":"<p style=\"text-align: center;\"><i><span style=\"font-weight: 400;\">Tarihin en b\u00fcy\u00fck mimari ba\u015far\u0131lar\u0131ndan birinden ilham alan s\u00fcr\u00fckleyici bir ak\u015fam, kistik fibroz hastalar\u0131 i\u00e7in hayat kurtar\u0131c\u0131 at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rmak amac\u0131yla Philadelphia'n\u0131n de\u011fi\u015fim \u00f6nc\u00fclerine ev sahipli\u011fi yapacak.<\/span><\/i><\/p>\n<p><b><a href=\"https:\/\/www.emilysentourage.org\/tr\/phillygala26\/\" target=\"_blank\" rel=\"noopener\"><img fetchpriority=\"high\" decoding=\"async\" class=\"alignright wp-image-27072\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2026-Gala-Invite-Social-Media_EBlast-Card-B-1250x2042-1-184x300.webp\" alt=\"\" width=\"490\" height=\"800\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2026-Gala-Invite-Social-Media_EBlast-Card-B-1250x2042-1-184x300.webp 184w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2026-Gala-Invite-Social-Media_EBlast-Card-B-1250x2042-1-627x1024.webp 627w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2026-Gala-Invite-Social-Media_EBlast-Card-B-1250x2042-1-768x1255.webp 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2026-Gala-Invite-Social-Media_EBlast-Card-B-1250x2042-1-940x1536.webp 940w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2026-Gala-Invite-Social-Media_EBlast-Card-B-1250x2042-1-7x12.webp 7w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2026-Gala-Invite-Social-Media_EBlast-Card-B-1250x2042-1-600x980.webp 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2026-Gala-Invite-Social-Media_EBlast-Card-B-1250x2042-1.webp 1175w\" sizes=\"(max-width: 490px) 100vw, 490px\" \/><\/a>PHILADELPHIA, PA<span style=\"font-weight: 400;\">-<\/span>25 A\u011fustos 2026<\/b><span style=\"font-weight: 400;\">\u2014170 y\u0131ldan uzun bir s\u00fcre \u00f6nce Londra'daki Crystal Palace, \u00e7\u0131\u011f\u0131r a\u00e7an inovasyon ile insan dehas\u0131n\u0131n ola\u011fan\u00fcst\u00fc ba\u015far\u0131lar\u0131n\u0131n gelece\u011fi \u015fekillendirmek \u00fczere bir araya geldi\u011fi bir yer olarak uluslararas\u0131 bir olas\u0131l\u0131k simgesi haline geldi.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Bu Ekim ay\u0131nda o ruh Philadelphia'ya geliyor.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Biletler resmi olarak sat\u0131\u015fta: <\/span><a href=\"https:\/\/www.emilysentourage.org\/tr\/phillygala26\/\" target=\"_blank\" rel=\"noopener\"><b>2026 Emily's Entourage Gala Gecesi: <\/b><b><i>Kristal Saray<\/i><\/b><\/a><span style=\"font-weight: 400;\">, tarihinde ger\u00e7ekle\u015fen <\/span><b>22 Ekim 2026 Per\u015fembe<\/b><span style=\"font-weight: 400;\">. Onursal Ba\u015fkanlar Joel Nierman, Erin Shanahan ve ailesinin liderli\u011finde ger\u00e7ekle\u015ftirilecek olan etkinlik, <\/span><b>Philadelphia's Fairmount Park'\u0301taki \u00e7arp\u0131c\u0131 ve simgesel yeni bir kapal\u0131 mekanda\u2014Bah\u00e7\u0131vanl\u0131k Merkezi'nde. Konuklar, ilk kez, ola\u011fan\u00fcst\u00fc bir gece i\u00e7in d\u00f6n\u00fc\u015ft\u00fcr\u00fclm\u00fc\u015f devasa cam seras\u0131n\u0131n i\u00e7ine ad\u0131m atacaklar <\/b><b><i>Kristal Saray<\/i><\/b><b>.<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Mimari inovasyondaki bu ba\u015far\u0131dan ilham alan bu y\u0131lki gala, y\u00fczlerce tutkulu de\u011fi\u015fim \u00f6nc\u00fcs\u00fcn\u00fc bir araya getirecek <\/span><b>Mevcut mutasyona y\u00f6nelik tedavilerden fayda g\u00f6rmeyen yakla\u015f\u0131k 10% kistik fibroz (CF) hastas\u0131 i\u00e7in hayat kurtaran \u00e7\u0131\u011f\u0131r a\u00e7\u0131c\u0131 geli\u015fmeleri h\u0131zland\u0131rmak.<\/b><span style=\"font-weight: 400;\"> Bu tedaviler, CF hastalar\u0131n\u0131n yakla\u015f\u0131k 90%\u2019sinin hayat\u0131n\u0131 k\u00f6kten de\u011fi\u015ftirmi\u015f olsa da, geri kalan 10%\u2019lik kesimdeki ki\u015filer, umut dolu ancak giderek azalan bir nefesle, ilerleyen ve ya\u015fam\u0131 tehdit eden bir hastal\u0131kla m\u00fccadele etmeye devam ediyor.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Emily's Entourage (EE), yaln\u0131zca ara\u015ft\u0131rmalar\u0131 finanse ederek de\u011fil; en umut vadedici bilimsel f\u0131rsatlar\u0131 belirleyerek, farkl\u0131 disiplinlerden uzmanlar\u0131 bir araya getirerek ve ke\u015fiflerin klinik ara\u015ft\u0131rmalara do\u011fru ilerlemesini h\u0131zland\u0131rarak Kistik Fibrozis (KF) tedavilerinin gelece\u011fini \u015fekillendirmeye yard\u0131mc\u0131 oluyor. 2011'den bu yana EE, \u015fu kadar tutardan fazla fon toplad\u0131: <\/span><b>$22 milyon<\/b><span style=\"font-weight: 400;\">, fonlanan <\/span><b>42 \u00e7\u0131\u011f\u0131r a\u00e7an ara\u015ft\u0131rma projesi<\/b><span style=\"font-weight: 400;\">, ve \u015fundan fazlas\u0131n\u0131n \u00fcretilmesine yard\u0131mc\u0131 oldu: <\/span><b>$73 milyon tutar\u0131nda ek finansman<\/b><span style=\"font-weight: 400;\"> Kistik fibrozisli hi\u00e7bir bireyin geride kalmad\u0131\u011f\u0131 bir gelece\u011fe do\u011fru ilerlemeyi h\u0131zland\u0131rmak i\u00e7in.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cOrijinal Crystal Palace, ileri d\u00fczey bilim, teknoloji ve yarat\u0131c\u0131l\u0131\u011f\u0131n neler yapabilece\u011finin kan\u0131t\u0131 olarak duruyordu,\u201d dedi <\/span><b>Emily Kramer-Golinkoff, MBE<\/b><span style=\"font-weight: 400;\">, EE\u2019nin kurucu orta\u011f\u0131 ve son 10% a\u015famas\u0131nda olan bir CF hastas\u0131.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cAyn\u0131 ruh, EE\u2019de yapt\u0131\u011f\u0131m\u0131z her \u015feye ilham kayna\u011f\u0131 oluyor. Son a\u015famadaki 10% projesinde yer alan bizler i\u00e7in, bu \u00e7\u0131\u011f\u0131r a\u00e7an geli\u015fmelerin bir an \u00f6nce ger\u00e7ekle\u015fmesi b\u00fcy\u00fck \u00f6nem ta\u015f\u0131yor. Umut vaat eden yeni yakla\u015f\u0131mlar\u0131 destekleyerek ve optimum b\u00fcy\u00fcme i\u00e7in gerekli ko\u015fullar\u0131 yaratarak, son 10% i\u00e7in hayat kurtaran ilerlemeleri h\u0131zland\u0131rabilece\u011fimize inan\u0131yoruz.\u201d \u0130\u015fte bu <\/span><i><span style=\"font-weight: 400;\">Kristal Saray<\/span><\/i><span style=\"font-weight: 400;\"> ...t\u00fcm bunlardan ibarettir.\u201d<\/span><\/p>\n<h2><b>Hayranl\u0131k, Kutlama ve Etki Dolu Bir Ak\u015fam<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Misafirleri yarat\u0131c\u0131l\u0131k ve ke\u015fif ruhuna kapt\u0131rmak i\u00e7in tasarlanm\u0131\u015ft\u0131r, <\/span><i><span style=\"font-weight: 400;\">Kristal Saray<\/span><\/i><span style=\"font-weight: 400;\"> \u00f6zelli\u011fine sahip olacak:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Kristal Saray'\u0131n ruhunun hayat buldu\u011fu muhte\u015fem bir sera ortam\u0131<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Gourmet yemekler ve el yap\u0131m\u0131 kokteyller<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">\u0130lerlemenin arkas\u0131ndaki insanlar\u0131 ve bilimi kutlayan g\u00fc\u00e7l\u00fc hik\u00e2ye anlat\u0131m\u0131<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Ak\u015fam boyunca canl\u0131 e\u011flence ve unutulmaz anlar<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Tek ola\u011fan\u00fcst\u00fc bir misyon etraf\u0131nda birle\u015fmi\u015f canl\u0131 bir topluluk<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Sat\u0131n al\u0131nan her bilet, bir sonraki \u00e7\u0131\u011f\u0131r a\u00e7\u0131c\u0131 geli\u015fmenin ko\u015fullar\u0131n\u0131n yarat\u0131lmas\u0131na yard\u0131mc\u0131 olur ve Kistik Fibrozisli (KF) her bireyin daha b\u00fcy\u00fck hayaller kurabilece\u011fi, daha uzun ya\u015fayabilece\u011finden ve geride kalmaktan asla korkmayaca\u011f\u0131 bir gelece\u011fe bizi daha da yakla\u015ft\u0131r\u0131r.<\/span><\/p>\n<h2><b>Etkinlik Detaylar\u0131<\/b><\/h2>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/phillygala26\/\" target=\"_blank\" rel=\"noopener\"><b>Emily\u2019s Entourage Gala Gecesi: <\/b><b><i>Kristal Saray<\/i><\/b><\/a><\/p>\n<p><b>Tarih:<\/b><span style=\"font-weight: 400;\"> 22 Ekim 2026 Per\u015fembe<\/span><\/p>\n<p><b>Yeni Kapal\u0131 Mekan:<\/b><span style=\"font-weight: 400;\"> Bah\u00e7ecilik Merkezi, Fairmount Park, Philadelphia<\/span><\/p>\n<p><b>K\u0131yafet<\/b><span style=\"font-weight: 400;\"> Kokteyl<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Gen\u00e7 Profesyonel biletleri (35 ya\u015f ve alt\u0131) <\/span><b>$150<\/b><span style=\"font-weight: 400;\">, ve Genel Giri\u015f biletleri <\/span><b>$250<\/b><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Bilet sat\u0131n al\u0131n veya daha fazla bilgi edinin: <\/span><a href=\"http:\/\/www.emilysentourage.org\/tr\/phillygala26\/\" target=\"_blank\" rel=\"noopener\"><b>www.emilysentourage.org\/phillygala26<\/b><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The Evening with Emily's Entourage galas\u0131 a\u015fa\u011f\u0131dakiler taraf\u0131ndan m\u00fcmk\u00fcn k\u0131l\u0131nm\u0131\u015ft\u0131r<\/span><b> Ana sponsor Vertex Pharmaceuticals, Inc.<\/b><span style=\"font-weight: 400;\">; <\/span><b>R\u00fcya Tak\u0131m sponsoru Boehringer Ingelheim<\/b><span style=\"font-weight: 400;\">ve <\/span><b>Violet; 4D Molecular Therapeutics, The Medi-Dose\u00ae Group ve Viatris Inc. \u015firketlerine sponsor olmaktad\u0131r,<\/b><span style=\"font-weight: 400;\"> di\u011ferleri aras\u0131nda.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p><b>Emily'nin \u00c7evresi Hakk\u0131nda<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Emily\u2019s Entourage (EE), mevcut mutasyona y\u00f6nelik tedavilerden fayda g\u00f6rmeyen kistik fibroz (CF) hastalar\u0131 aras\u0131nda hastal\u0131\u011f\u0131n son a\u015famas\u0131nda (10%) bulunan bireyler i\u00e7in yeni tedaviler ve bir \u00e7are bulunmas\u0131na y\u00f6nelik ara\u015ft\u0131rmalar\u0131 h\u0131zland\u0131ran yenilik\u00e7i bir 501(c)3 kurulu\u015fudur. 2011 y\u0131l\u0131ndan bu yana Emily\u2019s Entourage, milyonlarca dolarl\u0131k ara\u015ft\u0131rma hibesi da\u011f\u0131tm\u0131\u015f, klinik a\u015famadaki bir CF gen terapisi \u015firketi kurmu\u015f, klinik denemelere kat\u0131l\u0131m\u0131 h\u0131zland\u0131rmak amac\u0131yla CF Clinical Trial Connect (CTC) adl\u0131 k\u00fcresel hasta veritaban\u0131n\u0131 ve klinik deneme e\u015fle\u015ftirme program\u0131n\u0131 geli\u015ftirmi\u015f ve y\u00fcksek etkili ara\u015ft\u0131rma ve ila\u00e7 geli\u015ftirme \u00e7al\u0131\u015fmalar\u0131n\u0131 te\u015fvik etmek i\u00e7in d\u00fcnya \u00e7ap\u0131nda giri\u015fimlere \u00f6nc\u00fcl\u00fck etmi\u015ftir. Kurulu\u015f, New York Times, STAT, CNN, People ve daha fazlas\u0131 dahil olmak \u00fczere ulusal medyada yer alm\u0131\u015ft\u0131r. Daha fazla bilgi i\u00e7in <\/span><a href=\"https:\/\/www.emilysentourage.org\/tr\/\"><span style=\"font-weight: 400;\">emilysentourage.org<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><b>Medya \u0130leti\u015fim<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Hannah Kleckner<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Pazarlama ve \u0130leti\u015fim Direkt\u00f6r\u00fc<\/span><\/p>\n<p><span style=\"font-weight: 400;\">hannah@emilysentourage.org<\/span><\/p>\n<p><br style=\"font-weight: 400;\" \/><br style=\"font-weight: 400;\" \/><\/p>","protected":false},"excerpt":{"rendered":"<p>An immersive evening inspired by one of history&#8217;s great feats of architecture will bring together Philadelphia&#8217;s changemakers to accelerate lifesaving breakthroughs for people with cystic fibrosis. PHILADELPHIA, PA\u2014August 25, 2026\u2014More than 170 years ago, London&#8217;s Crystal Palace became an international icon of possibility\u2014a place where groundbreaking innovation and extraordinary feats of human ingenuity came together&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/step-inside-the-crystal-palace-tickets-on-sale-for-emilys-entourages-2026-gala\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1719,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[178],"tags":[233,273,234],"class_list":["post-27068","post","type-post","status-publish","format-standard","hentry","category-press-releases","tag-ee-gala","tag-evening-with-emilys-entourage","tag-gala"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/27068","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1719"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=27068"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/27068\/revisions"}],"predecessor-version":[{"id":27113,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/27068\/revisions\/27113"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=27068"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=27068"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=27068"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}