{"id":25393,"date":"2025-07-01T09:00:11","date_gmt":"2025-07-01T13:00:11","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=25393"},"modified":"2025-07-01T09:47:09","modified_gmt":"2025-07-01T13:47:09","slug":"run-with-heart-race-for-breakthroughs-join-team-ee-at-the-2025-philadelphia-marathon-weekend-to-support-people-with-cystic-fibrosis","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/run-with-heart-race-for-breakthroughs-join-team-ee-at-the-2025-philadelphia-marathon-weekend-to-support-people-with-cystic-fibrosis\/","title":{"rendered":"Kalbinizle Ko\u015fun. At\u0131l\u0131mlar i\u00e7in Yar\u0131\u015f. Kistik Fibrozisli Ki\u015fileri Desteklemek \u0130\u00e7in 2025 Philadelphia Maratonu Hafta Sonunda EE Tak\u0131m\u0131na Kat\u0131l\u0131n"},"content":{"rendered":"<p style=\"text-align: center;\"><i><span style=\"font-weight: 400;\">EE Tak\u0131m\u0131na kat\u0131larak 2025 Philadelphia Maratonu Hafta Sonunun her bir kilometresini, halen tedavi bekleyen kistik fibrozis hastalar\u0131 i\u00e7in hayat kurtar\u0131c\u0131 at\u0131l\u0131mlara ivme kazand\u0131r\u0131n.<\/span><\/i><\/p>\n<p><b><img fetchpriority=\"high\" decoding=\"async\" class=\"alignright wp-image-25396 size-medium-portfolio\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EmilysEntouragePhiladelphiaMarathon2023-108-650x530.jpg\" alt=\"\" width=\"650\" height=\"530\" \/>Philadelphia, PA<\/b><span style=\"font-weight: 400;\">-1 Temmuz 2025-Mevcut mutasyon hedefli tedavilerden faydalanamayan kistik fibrozisli (KF) bireyler i\u00e7in ara\u015ft\u0131rmalar\u0131 h\u0131zland\u0131ran yenilik\u00e7i bir 501(c)(3) kurulu\u015fu olan Emily's Entourage (EE), 21-23 Kas\u0131m 2025 tarihlerinde d\u00fczenlenecek olan 2025 Philadelphia Maratonu Hafta Sonu i\u00e7in EE Tak\u0131m\u0131na kat\u0131lmak \u00fczere kay\u0131tlar\u0131n a\u00e7\u0131ld\u0131\u011f\u0131n\u0131 duyurmaktan gurur duyar.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u0130ster ilk kez ko\u015fuyor olun ister deneyimli bir atlet, Team EE'nin her yar\u0131\u015f i\u00e7in \u00f6nl\u00fckleri mevcuttur. <\/span><span style=\"font-weight: 400;\">Rothman Ortopedi 8K<\/span><span style=\"font-weight: 400;\">, <\/span><span style=\"font-weight: 400;\">Dietz &amp; Watson Philadelphia Yar\u0131 Maratonu<\/span><span style=\"font-weight: 400;\">ve <\/span><span style=\"font-weight: 400;\">AACR Philadelphia Maratonu<\/span><span style=\"font-weight: 400;\">. ABD'deki en iyi 10 maratondan birinin canl\u0131 fonunda yer alan Philadelphia Maratonu Hafta Sonu, d\u00fcz, h\u0131zl\u0131 parkuru, tarihi manzaras\u0131 ve elektrikli topluluk ruhuyla bilinen sevilen bir etkinliktir.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Ancak bu bir yar\u0131\u015ftan \u00e7ok daha fazlas\u0131, hayat kurtarma yar\u0131\u015f\u0131.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Team EE ile ko\u015ftu\u011funuz her mil, mevcut mutasyon hedefli tedavilerin geride b\u0131rakt\u0131\u011f\u0131 son 10% kistik fibrozis (KF) hastas\u0131 i\u00e7in hayat kurtaran at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rmaya yard\u0131mc\u0131 olur. Son y\u0131llarda kaydedilen ilerlemeler pek \u00e7ok ki\u015finin durumunu de\u011fi\u015ftirmi\u015f olsa da, binlerce ki\u015fi hala ya\u015fam\u0131 tehdit eden, ilerleyici bir genetik hastal\u0131kla ve etkili tedavilerden yoksun bir \u015fekilde ya\u015famaya devam ediyor.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Emily's Entourage'\u0131n Kurucu Orta\u011f\u0131 Emily Kramer-Golinkoff, \"KF toplulu\u011funun son 10%'sinde yer alan biri olarak, her g\u00fcn nefesimi, hayallerimi, arkada\u015flar\u0131m\u0131 ve gelece\u011fimi \u00e7alan amans\u0131z bir hastal\u0131kla kar\u015f\u0131 kar\u015f\u0131ya uyan\u0131yorum\" diyor. \"\u0130\u015fte bu y\u00fczden ko\u015fuyoruz - sadece biti\u015f \u00e7izgisini ge\u00e7mek i\u00e7in de\u011fil, KF'li her bireyin \u00f6zg\u00fcrce nefes alabilece\u011fi ve hak ettikleri dolu dolu, canl\u0131 hayatlar\u0131 ya\u015fayabilece\u011fi bir gelecek yaratmak i\u00e7in.\"<\/span><\/p>\n<p><span style=\"font-weight: 400;\">EE Tak\u0131m\u0131na kat\u0131larak \u015funlar\u0131 alacaks\u0131n\u0131z:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Emily's Entourage yar\u0131\u015f ti\u015f\u00f6rt\u00fc ve hediye \u00e7antas\u0131<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Ba\u015flang\u0131\u00e7\/biti\u015f \u00e7izgisinde ikramlar\u0131n sunuldu\u011fu belirlenmi\u015f bir tak\u0131m alan\u0131na eri\u015fim<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Yar\u0131\u015f g\u00fcn\u00fc y\u00fcrek ve minnettarl\u0131k dolu bir tezah\u00fcrat ekibi<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Ba\u015far\u0131l\u0131 olman\u0131za yard\u0131mc\u0131 olacak bir ba\u011f\u0131\u015f toplama ara\u00e7 seti, \u015fablonlar ve uzman rehberli\u011fi<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">#TeamEE'nin bir par\u00e7as\u0131 olmak i\u00e7in size neyin ilham verdi\u011fini payla\u015farak EE'nin blogunda ve\/veya sosyal medyada \u00f6ne \u00e7\u0131kma f\u0131rsat\u0131<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Kilometrelerinizi hayat kurtaran at\u0131l\u0131mlar i\u00e7in ivmeye d\u00f6n\u00fc\u015ft\u00fcrme \u015fans\u0131<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Bir \u00f6nl\u00fckten, bir ko\u015fudan daha fazlas\u0131 - kat\u0131l\u0131m\u0131n\u0131z, en \u00e7ok ihtiyac\u0131 olan ve zaman\u0131 t\u00fckenmekte olan ki\u015filer i\u00e7in acil at\u0131l\u0131m yar\u0131\u015f\u0131na g\u00fc\u00e7 vermeye yard\u0131mc\u0131 olur.<\/span><\/p>\n<p><b>Kendinizden daha b\u00fcy\u00fck bir \u015fey i\u00e7in ko\u015fmaya haz\u0131r m\u0131s\u0131n\u0131z?<\/b><\/p>\n<p><span style=\"font-weight: 400;\">EE Ekibine kat\u0131l\u0131n ve en \u00f6nemli biti\u015f \u00e7izgisini ge\u00e7memize yard\u0131mc\u0131 olun: KF'siz bir gelecek.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Daha fazla bilgi edinmek ve kaydolmak i\u00e7in l\u00fctfen \u015fu adresi ziyaret edin <\/span><a href=\"https:\/\/www.emilysentourage.org\/tr\/join-team-ee\/\"><span style=\"font-weight: 400;\">https:\/\/www.emilysentourage.org\/join-team-ee\/<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Her milin \u00f6nemli olmas\u0131n\u0131 sa\u011flayal\u0131m.<\/span><\/p>\n<p><b>Emily'nin \u00c7evresi Hakk\u0131nda<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Emily's Entourage, mevcut mutasyon hedefli tedavilerden faydalanamayan kistik fibrozis (KF) pop\u00fclasyonunun son 10%'sindeki bireyler i\u00e7in yeni tedaviler ve bir tedavi ara\u015ft\u0131rmas\u0131n\u0131 h\u0131zland\u0131ran yenilik\u00e7i bir 501(c)3't\u00fcr. Emily's Entourage 2011 y\u0131l\u0131ndan bu yana milyonlarca dolarl\u0131k ara\u015ft\u0131rma hibesi vermi\u015f, \u015fu anda klinik a\u015famada olan bir KF gen terapisi \u015firketini kurmu\u015f, Clinical Trial Connect (CTC) hasta veri taban\u0131n\u0131 ve klinik deneylere kat\u0131l\u0131m\u0131 h\u0131zland\u0131rmak i\u00e7in bir klinik deney e\u015fle\u015ftirme program\u0131n\u0131 geli\u015ftirmi\u015f ve y\u00fcksek etkili ara\u015ft\u0131rma ve ila\u00e7 geli\u015ftirmeyi te\u015fvik etmek i\u00e7in d\u00fcnya \u00e7ap\u0131nda \u00e7abalara \u00f6nc\u00fcl\u00fck etmi\u015ftir. Kurulu\u015f, New York Times, STAT, CNN, People ve daha fazlas\u0131 dahil olmak \u00fczere ulusal medyada yer alm\u0131\u015ft\u0131r. Daha fazla bilgi i\u00e7in <\/span><a href=\"https:\/\/www.emilysentourage.org\/tr\/\"><span style=\"font-weight: 400;\">emilysentourage.org<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><b>Medya \u0130leti\u015fim<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Hannah Kleckner<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Pazarlama ve \u0130leti\u015fim Direkt\u00f6r\u00fc<\/span><\/p>\n<p><a href=\"mailto:hannah@emilysentourage.org\"><span style=\"font-weight: 400;\">hannah@emilysentourage.org<\/span><\/a><\/p>\n<p><br style=\"font-weight: 400;\" \/><br style=\"font-weight: 400;\" \/><\/p>","protected":false},"excerpt":{"rendered":"<p>Join Team EE to turn every mile of the 2025 Philadelphia Marathon Weekend into momentum for lifesaving breakthroughs for those with cystic fibrosis still waiting for a cure. Philadelphia, PA\u2014July 1, 2025\u2014Emily\u2019s Entourage (EE), an innovative 501(c)(3) organization accelerating research for individuals with cystic fibrosis (CF) who do not benefit from existing mutation-targeted therapies, is&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/run-with-heart-race-for-breakthroughs-join-team-ee-at-the-2025-philadelphia-marathon-weekend-to-support-people-with-cystic-fibrosis\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1719,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"both","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[178],"tags":[197,220,221,222,219],"class_list":["post-25393","post","type-post","status-publish","format-standard","hentry","category-press-releases","tag-cf-research","tag-fundraise","tag-philadelphia-marathon","tag-philly-marathon","tag-team-ee"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/25393","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1719"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=25393"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/25393\/revisions"}],"predecessor-version":[{"id":25401,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/25393\/revisions\/25401"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=25393"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=25393"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=25393"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}