{"id":2507,"date":"2015-05-18T17:55:25","date_gmt":"2015-05-19T00:55:25","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=2507"},"modified":"2023-12-19T02:06:51","modified_gmt":"2023-12-19T07:06:51","slug":"for-one-day-a-short-walk-in-emilys-shoes","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/for-one-day-a-short-walk-in-emilys-shoes\/","title":{"rendered":"Sadece Bir G\u00fcnl\u00fc\u011f\u00fcne: Emily'nin KF'li Ya\u015fam\u0131na \u0130\u00e7eriden Bir Bak\u0131\u015f"},"content":{"rendered":"<p><em>Sadece bir g\u00fcnl\u00fc\u011f\u00fcne KF ile ya\u015faman\u0131n nas\u0131l bir \u015fey oldu\u011funu hi\u00e7 merak ettiniz mi? Saatlerce t\u0131bbi tedavi g\u00f6rmek ve hastal\u0131k komplikasyonlar\u0131na katlan\u0131rken ayn\u0131 zamanda profesyonel bir kariyer ve aktif bir sosyal ya\u015famla hokkabazl\u0131k yapmak? Bug\u00fcn tam da bunu ba\u015farm\u0131\u015f birinden \u00e7ok \u00f6zel bir blog yaz\u0131s\u0131 payla\u015faca\u011f\u0131z.<br \/>\n<\/em><\/p>\n<p><em><img decoding=\"async\" class=\"alignright wp-image-2515 size-thumbnail\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10671445_10152765611983559_723464175276699495_n-e1432008273182-150x150.jpg\" alt=\"Kathryn Shadows Emily Just for a Day\" width=\"150\" height=\"150\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10671445_10152765611983559_723464175276699495_n-e1432008273182-150x150.jpg 150w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10671445_10152765611983559_723464175276699495_n-e1432008273182-300x300.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10671445_10152765611983559_723464175276699495_n-e1432008273182-100x100.jpg 100w\" sizes=\"(max-width: 150px) 100vw, 150px\" \/>Kathryn Burn, kocas\u0131, iki k\u00f6pe\u011fi ve 18 ayl\u0131k o\u011fluyla birlikte San Francisco'da ya\u015f\u0131yor. #CF1G\u00fcn\u00fc s\u0131ras\u0131nda k\u0131sa bir s\u00fcreli\u011fine i\u015finden ka\u00e7may\u0131 ba\u015fard\u0131.\u00a0<a href=\"https:\/\/www.smartpatients.com\/\" target=\"_blank\" rel=\"noopener\">Ak\u0131ll\u0131 Hastalar<\/a>hastalar ve bak\u0131c\u0131lar\u0131 i\u00e7in \u00e7evrimi\u00e7i bir topluluk olan Kistik Fibrozis ile ya\u015faman\u0131n nas\u0131l bir \u015fey oldu\u011funa sadece bir g\u00fcnl\u00fc\u011f\u00fcne \u00f6zel bir bak\u0131\u015f atan bir \u00f6\u011frenci olun.\u00a0<\/em><\/p>\n<p><em>2 Nisan'da Kathryn ve Emily birlikte e\u015fsiz bir g\u00fcn\u00fc payla\u015ft\u0131lar ve bug\u00fcn Kathryn, Emily's Entourage i\u00e7in yazd\u0131\u011f\u0131 g\u00fczel bir konuk blog yaz\u0131s\u0131nda bu deneyime verdi\u011fi tepkiyi nezaketle payla\u015f\u0131yor.<\/em><\/p>\n<p>\" adl\u0131 harika bir projenin par\u00e7as\u0131 olma ayr\u0131cal\u0131\u011f\u0131na sahibim.<a href=\"https:\/\/www.emilysentourage.org\/tr\/for-one-day-a-short-walk-in-emilys-shoes\/\" target=\"_blank\" rel=\"noopener\">Sadece Bir G\u00fcnl\u00fc\u011f\u00fcne<\/a>\". Hastal\u0131kla ya\u015fayan \u00f6\u011fretmenleri, \u00f6\u011fretmenlerinin yerinde bir g\u00fcn\u00fcn nas\u0131l ge\u00e7ti\u011fini daha iyi anlamak isteyen \u00f6\u011frencilerle e\u015fle\u015ftiriyor. Benim \u00f6\u011fretmenim Emily'ydi ve e\u015fle\u015ftirme konusunda daha \u015fansl\u0131 olamazd\u0131m. <a href=\"https:\/\/twitter.com\/hashtag\/CF1day\" target=\"_blank\" rel=\"noopener\">#CF1g\u00fcn<\/a>.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignleft wp-image-2508 size-full\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/photo-3-e1432008674856.jpg\" alt=\"photo 3\" width=\"321\" height=\"706\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/photo-3-e1432008674856.jpg 321w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/photo-3-e1432008674856-136x300.jpg 136w\" sizes=\"(max-width: 321px) 100vw, 321px\" \/>O sabah saat 6'da uyand\u0131\u011f\u0131mda \u00e7oktan 23 mesaj alm\u0131\u015ft\u0131m. Bu sadece ba\u015flang\u0131\u00e7t\u0131. Emily g\u00fcn boyunca bana mesajlar, foto\u011fraflar ve videolar g\u00f6ndererek ne yapt\u0131\u011f\u0131n\u0131 ve neden yapt\u0131\u011f\u0131n\u0131 payla\u015ft\u0131.<\/p>\n<p>Neb\u00fcliz\u00f6r ve yelek gibi baz\u0131 b\u00fcy\u00fck \u015feyleri biliyordum. Ancak KF ile ya\u015fayan biriyle tam bir g\u00fcn\u00fc payla\u015ft\u0131\u011f\u0131n\u0131zda, \"Kistik\" ve \"Fibrozis\" kelimeleri aras\u0131ndaki beyaz bo\u015flu\u011fun ger\u00e7ekten ne kadar geni\u015f oldu\u011funu ve sadece insani bir ba\u011flant\u0131n\u0131n bu bo\u015flu\u011fu anlamla doldurabilece\u011fini ke\u015ffediyorsunuz.<\/p>\n<p>Emily mesajlar\u0131yla, foto\u011fraflar\u0131yla ve videolar\u0131yla benim i\u00e7in bu bo\u015flu\u011fu doldurdu. Bana bir neb\u00fclizat\u00f6r\u00fcn ger\u00e7ekte neye benzedi\u011fini; ona ba\u011fl\u0131yken nas\u0131l \u00e7al\u0131\u015f\u0131laca\u011f\u0131n\u0131; neb\u00fclize ederken nas\u0131l sevimli bir selfie \u00e7ekilece\u011fini; toplu ta\u015f\u0131ma ara\u00e7lar\u0131na binerken veya kahve al\u0131rken hastalanmaktan nas\u0131l ka\u00e7\u0131n\u0131laca\u011f\u0131n\u0131 ve g\u00fcnl\u00fck rutinin sa\u011fl\u0131kl\u0131 kalman\u0131n b\u00fcy\u00fck resmini nas\u0131l olu\u015fturdu\u011funu \u00f6\u011fretti. Bana terapinin hayata nas\u0131l uyum sa\u011flad\u0131\u011f\u0131n\u0131, hayat\u0131n terapiye nas\u0131l uyum sa\u011flad\u0131\u011f\u0131n\u0131 ve t\u00fcm bunlar boyunca nas\u0131l pozitif ve ne\u015feli kalaca\u011f\u0131m\u0131 \u00f6\u011fretti.<\/p>\n<p>Ve bizi ne \u015fa\u015f\u0131rtt\u0131 biliyor musunuz? Bir \u00f6\u011fretmenin de \u00f6\u011frenebilece\u011fi ger\u00e7e\u011fi. Emily, g\u00fcn\u00fcn\u00fc yarg\u0131lama korkusu olmadan payla\u015fman\u0131n \u015fa\u015f\u0131rt\u0131c\u0131 derecede kolay oldu\u011funu ke\u015ffetti - payla\u015fman\u0131n hayat\u0131m\u0131 zenginle\u015ftirdi\u011fini ve kendi rutininde daha fazla var olmas\u0131n\u0131 sa\u011flad\u0131\u011f\u0131n\u0131 \u00f6\u011frendi.<\/p>\n<p>Emily ve ben, \"Sadece Bir G\u00fcn \"\u00fcm\u00fcz sona ermi\u015f olsa da, ba\u011flant\u0131 kurmay\u0131 b\u0131rakmak istemedi\u011fimize karar verdik. \u00c7ok \u00f6zel bir zaman se\u00e7tik, telefon alarmlar\u0131m\u0131z\u0131 her g\u00fcn o zamana kurduk ve birbirimize o anda ne yapt\u0131\u011f\u0131m\u0131z\u0131n foto\u011fraf\u0131n\u0131 g\u00f6nderece\u011fiz.<\/p>\n<p>Denemenizi tavsiye ederim \"Just <img decoding=\"async\" class=\"alignright wp-image-2511 size-medium\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/photo-4-300x297.jpg\" alt=\"photo 4\" width=\"300\" height=\"297\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/photo-4-300x297.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/photo-4-100x100.jpg 100w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/photo-4-150x150.jpg 150w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/photo-4.jpg 538w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>Bir G\u00fcnl\u00fc\u011f\u00fcne\" bir \u00f6\u011fretmen veya bir \u00f6\u011frenci olarak. Bu, bir ba\u015fkas\u0131n\u0131n ayakkab\u0131lar\u0131yla y\u00fcr\u00fcmek, d\u00fcnyay\u0131 farkl\u0131 bir g\u00f6zle g\u00f6rmek ve bu arada kendi g\u00f6zlerinizi a\u00e7\u0131p zenginle\u015ftirmek i\u00e7in bir f\u0131rsatt\u0131r. Ya da sadece birini d\u00fc\u015f\u00fcnmek i\u00e7in bir zaman se\u00e7in ve ard\u0131ndan bir metin veya foto\u011fraf arac\u0131l\u0131\u011f\u0131yla ba\u011flant\u0131 kurun. E\u011fer bir hastaysan\u0131z, sizi d\u00fc\u015f\u00fcnen birine ula\u015f\u0131n. E\u011fer bir arkada\u015f ya da aile \u00fcyesiyseniz, onlar\u0131n ne yapt\u0131\u011f\u0131n\u0131 d\u00fc\u015f\u00fcnebilirsiniz - \u00f6nemli olan g\u00fcnl\u00fck anlar... G\u00fcnl\u00fck anlar, ger\u00e7ek ba\u011flant\u0131lar her \u015feydir. Bug\u00fcn g\u00fcnl\u00fck an\u0131m\u0131 g\u00f6ndermeyi ve almay\u0131 d\u00f6rt g\u00f6zle bekliyorum. Size de bir denemenizi \u00f6neririm.<\/p>\n<p>-Kathryn Burn<\/p>\n<p><em>Kathryn, deneyimlerini bizimle payla\u015ft\u0131\u011f\u0131n i\u00e7in \u00e7ok te\u015fekk\u00fcr ederim!<\/em><\/p>\n<p><em>\u015eimdi, #CFAwarenessMonth \u015ferefine, S\u0130ZE KF'li ya\u015fama daha samimi bir bak\u0131\u015f sunmak istiyoruz. Bu nedenle, Emily'nin g\u00fcnl\u00fck ya\u015fam\u0131na \u00f6zel eri\u015fim sa\u011flamak i\u00e7in bir sahne arkas\u0131 video serisi ba\u015flat\u0131yoruz. \u0130lk videomuz Emily'nin sabah rutinini takip ediyor - onun i\u00e7in di\u015flerini f\u0131r\u00e7alay\u0131p kap\u0131dan \u00e7\u0131kmaktan \u00e7ok daha fazlas\u0131. <\/em><\/p>\n<p><em>Bir g\u00f6z at\u0131n, fark\u0131ndal\u0131\u011f\u0131n yay\u0131lmas\u0131na yard\u0131mc\u0131 olmak i\u00e7in \u00f6zg\u00fcrce payla\u015f\u0131n ve ne d\u00fc\u015f\u00fcnd\u00fc\u011f\u00fcn\u00fcz\u00fc bize bildirin!!! Ayr\u0131ca, serinin bir sonraki b\u00f6l\u00fcm\u00fc i\u00e7in bizi izlemeye devam edin!<\/em><\/p>\n<p><iframe src=\"https:\/\/www.youtube.com\/embed\/t2uhJhiPuKo?rel=0&amp;showinfo=0\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>","protected":false},"excerpt":{"rendered":"<p>Sadece bir g\u00fcnl\u00fc\u011f\u00fcne KF ile ya\u015faman\u0131n nas\u0131l bir \u015fey oldu\u011funu hi\u00e7 merak ettiniz mi? Saatlerce t\u0131bbi tedavi g\u00f6rmek ve hastal\u0131k komplikasyonlar\u0131na katlan\u0131rken ayn\u0131 zamanda profesyonel bir kariyer ve aktif bir sosyal ya\u015famla hokkabazl\u0131k yapmak? Bug\u00fcn tam da bunu yapan birinden \u00e7ok \u00f6zel bir blog yaz\u0131s\u0131 payla\u015faca\u011f\u0131z. Kathryn... <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/for-one-day-a-short-walk-in-emilys-shoes\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":59,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2507","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/2507","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/59"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=2507"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/2507\/revisions"}],"predecessor-version":[{"id":20244,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/2507\/revisions\/20244"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=2507"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=2507"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=2507"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}