{"id":2457,"date":"2015-04-29T17:37:20","date_gmt":"2015-04-30T00:37:20","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=2457"},"modified":"2023-12-20T02:46:32","modified_gmt":"2023-12-20T07:46:32","slug":"make-some-noise-may-is-cystic-fibrosis-awareness-month","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/make-some-noise-may-is-cystic-fibrosis-awareness-month\/","title":{"rendered":"Biraz G\u00fcr\u00fclt\u00fc Yap\u0131n: May\u0131s Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131!"},"content":{"rendered":"<p>Emily's Entourage, May\u0131s ay\u0131n\u0131n Ulusal Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 olarak tan\u0131nmas\u0131na ve kutlanmas\u0131na yard\u0131mc\u0131 olmak i\u00e7in bir\u00e7ok \u015fey planlad\u0131! \u0130ster sad\u0131k bir EE \u00fcyesi olun ister bu harika ekibe yeni kat\u0131lm\u0131\u015f olun, l\u00fctfen bir dakikan\u0131z\u0131 ay\u0131rarak inan\u0131lmaz Emily'mizi ve Kistik Fibrozisli herkesi kurtarmaya yard\u0131mc\u0131 olmak i\u00e7in yaratabilece\u011finiz fark hakk\u0131nda bilgi edinin:<\/p>\n<p><strong>- KELIMEYI YAYMAK<\/strong><br \/>\nT\u00fcm ay boyunca Facebook, Instagram ve Twitter'da heyecan verici duyurular yaparak, KF'li ya\u015fama bir bak\u0131\u015f atarak ve bu Entourage'\u0131n birlikte ne kadar durdurulamaz oldu\u011funu g\u00f6stererek \u00e7\u0131lg\u0131na d\u00f6nece\u011fiz.<br \/>\nBize kat\u0131l\u0131n <a href=\"https:\/\/www.facebook.com\/EmilysEntourage?utm_source=The+EE+Insider&amp;utm_campaign=d4d1b5026d-CF+Awareness+Month_May2015&amp;utm_medium=email&amp;utm_term=0_68d2179a03-d4d1b5026d-\" target=\"_blank\" rel=\"noopener noreferrer\">Facebook<\/a>, Instagram ve <a href=\"https:\/\/twitter.com\/emsentourage4cf?utm_source=The+EE+Insider&amp;utm_campaign=d4d1b5026d-CF+Awareness+Month_May2015&amp;utm_medium=email&amp;utm_term=0_68d2179a03-d4d1b5026d-\" target=\"_blank\" rel=\"noopener noreferrer\">Twitter<\/a> bu kas\u0131rga hareketinin bir par\u00e7as\u0131 olmak i\u00e7in. Sosyal medyadaki payla\u015f\u0131mlar\u0131 be\u011fenip payla\u015farak ve bu haberi arkada\u015flar\u0131n\u0131za ve ailenize yayarak KF'nin profilini y\u00fckseltebilir, Emily's Entourage'\u0131n etkisini art\u0131rabilir ve bizi tedaviye \u00e7ok daha fazla yakla\u015ft\u0131rabilirsiniz. Her \u015fey h\u0131zl\u0131 bir t\u0131klamayla ba\u015fl\u0131yor.<\/p>\n<p><strong>- FACEBOOK FOTO\u011eRAFINIZI DE\u011eI\u015eTIRIN<\/strong><br \/>\nMay\u0131s ay\u0131 boyunca Facebook profilinizi veya kapak foto\u011fraf\u0131n\u0131z\u0131 de\u011fi\u015ftirerek KF'ye \u00e7are bulma hedefimizde EE'nin yan\u0131nda oldu\u011funuzu g\u00f6sterin. Sadece \u015fu adrese gidin <a href=\"https:\/\/www.facebook.com\/EmilysEntourage?utm_source=The+EE+Insider&amp;utm_campaign=d4d1b5026d-CF+Awareness+Month_May2015&amp;utm_medium=email&amp;utm_term=0_68d2179a03-d4d1b5026d-\" target=\"_blank\" rel=\"noopener noreferrer\">EE Facebook sayfas\u0131<\/a>May\u0131s CF Fark\u0131ndal\u0131k profilini veya kapak foto\u011fraf\u0131n\u0131 indirin ve ard\u0131ndan hesab\u0131n\u0131za y\u00fckleyin. FB toplulu\u011funa Entourage'\u0131m\u0131z\u0131n ne kadar b\u00fcy\u00fck ve g\u00fc\u00e7l\u00fc oldu\u011funu g\u00f6sterelim!<\/p>\n<p><strong>- BA\u011eI\u015e YAPIN<\/strong><br \/>\nFark\u0131ndal\u0131k bu ay\u0131n odak noktas\u0131d\u0131r (ne de olsa ba\u015fl\u0131kta yer almaktad\u0131r), ancak ger\u00e7ekte KF ara\u015ft\u0131rmalar\u0131n\u0131n h\u0131z\u0131n\u0131 ve hayat kurtarma \u015fans\u0131n\u0131 art\u0131ran \u015fey finansmand\u0131r. <a href=\"https:\/\/www.emilysentourage.org\/tr\/donate\/\" target=\"_blank\" rel=\"noopener noreferrer\">EE'nin web sitesi \u00fczerinden ba\u011f\u0131\u015f yap\u0131n<\/a> - ve l\u00fctfen yeni tedaviler ve bir tedavi aray\u0131\u015f\u0131m\u0131z\u0131 ilerletmek i\u00e7in mesaj\u0131 a\u011f\u0131n\u0131zla payla\u015f\u0131n.<\/p>\n<p>KF Fark\u0131ndal\u0131k Ay\u0131 ayn\u0131 zamanda EE'ye dahil olman\u0131n yollar\u0131yla da doludur. Philadelphia b\u00f6lgesindeyseniz bu yerel etkinliklere ve destekleyici olma yollar\u0131na g\u00f6z at\u0131n:<\/p>\n<p><strong>Sava\u015f\u00e7\u0131 Anneler ve Arkada\u015flar\u0131:<\/strong> <strong>Mindful Yoga<\/strong> 3 May\u0131s Pazar, saat 10:00-\u00f6\u011flen<br \/>\nEmily's Entourage'\u0131 desteklemek i\u00e7in bilin\u00e7li yoga, topluluk ruhu ve i\u00e7eceklerle dolu bir sabah. En iyi yerel e\u011fitmenler, Stephen Groff'un canl\u0131 m\u00fczi\u011fi ve Firinji taraf\u0131ndan ba\u011f\u0131\u015flanan ikramlar e\u015fli\u011finde bir saatlik, her seviyeden yoga dersini y\u00f6netecek.<\/p>\n<p>Konum: Ardmore Toyota, 219 E Lancaster Ave, Ardmore PA<br \/>\n<em>Not: Kay\u0131t gerekli de\u011fildir; $25 ba\u011f\u0131\u015f \u00f6nerilmektedir.<\/em><\/p>\n<p><strong>Penn Yetim Hastal\u0131klar\u0131 Merkezi'nin Milyon Dolarl\u0131k Bisiklet S\u00fcr\u00fc\u015f\u00fc<\/strong> 9 May\u0131s Cumartesi, saat 8'de<br \/>\nNadir hastal\u0131klara y\u00f6nelik ara\u015ft\u0131rmalar\u0131 desteklemek i\u00e7in 12, 35 veya 75 millik bir bisiklet s\u00fcr\u00fc\u015f\u00fc. T\u00fcm dolarlar EE tak\u0131m\u0131na ba\u011f\u0131\u015fland\u0131 <span style=\"text-decoration: underline;\"><strong>$50K ile e\u015fle\u015ftirilecektir<\/strong><\/span> Kistik Fibrozis'in nadir g\u00f6r\u00fclen sa\u00e7ma mutasyonlar\u0131 \u00fczerine yap\u0131lan ara\u015ft\u0131rmalar i\u00e7in. Daha fazla bilgi i\u00e7in <a href=\"https:\/\/www.milliondollarbikeride.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">www.milliondollarbikeride.org<\/a>.<\/p>\n<p>Konum: Highline Park, 3160 Chestnut Street, Philadelphia PA<br \/>\n<em>http:\/\/www.alumni.upenn.edu\/MDBR2015 adresinden kaydolun ve \"Emily's Entourage \"\u0131 se\u00e7in: Kistik Fibrozis\" se\u00e7ene\u011fini se\u00e7in. Bisiklet\u00e7iler ba\u011f\u0131\u015f toplama \u015fart\u0131yla veya \u015farts\u0131z kay\u0131t yapt\u0131rabilirler.<\/em><\/p>\n<p><strong>Insomnia Cookies Ba\u011f\u0131\u015f Toplama Sat\u0131\u015f\u0131<\/strong> Kararla\u015ft\u0131r\u0131lacak tarih<br \/>\nBelirli bir Insomnia Cookies lokasyonundan lezzetli kurabiyeler sat\u0131n al\u0131n ve elde edilen gelirin bir k\u0131sm\u0131 do\u011frudan EE'ye ba\u011f\u0131\u015flanacakt\u0131r. Ayr\u0131nt\u0131l\u0131 bilgi Facebook, Instagram ve Twitter \u00fczerinden sa\u011flanacakt\u0131r.<\/p>\n<p><strong>Emily's Entourage'\u0131n bu y\u0131l neler yapt\u0131\u011f\u0131n\u0131 merak ediyor musunuz? Deste\u011finiz EE'ye g\u00fc\u00e7 verdi:<\/strong><\/p>\n<ul>\n<li>2011'deki ba\u015flang\u0131c\u0131m\u0131zdan bu yana $1 M\u0130LYON fonu a\u015ft\u0131k!!!<\/li>\n<li>Biyoteknoloji, akademi, ila\u00e7 ve Kistik Fibrozis Vakf\u0131'ndan d\u00fcnyan\u0131n en iyi KF beyinleri ile Sa\u00e7ma Kistik Fibrozis Mutasyonlar\u0131 \u00fczerine bilimsel bir sempozyuma ev sahipli\u011fi yapmak<\/li>\n<li><a href=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/SHS_7463.jpg\"><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter size-medium wp-image-2460\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/SHS_7463-300x200.jpg\" alt=\"SHS_7463\" width=\"300\" height=\"200\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/SHS_7463-300x200.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/SHS_7463-600x400.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/SHS_7463-1024x683.jpg 1024w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a>Y\u00fcr\u00fctme Kurulu ve komiteleri yeniden bi\u00e7imlendirerek organizasyon yap\u0131s\u0131n\u0131 resmile\u015ftirmek<\/li>\n<li>Daha \u015f\u0131k bir g\u00f6r\u00fcn\u00fcm, kullan\u0131m\u0131 daha kolay navigasyon ve yeni interaktif \u00f6zelliklerle yenilenmi\u015f bir web sitesi tasar\u0131m\u0131 ba\u015flat\u0131n<\/li>\n<li>Emily'nin 30 ya\u015f\u0131na gelece\u011fe dair yeni bir umutla girmesine yard\u0131mc\u0131 olun!!!!<\/li>\n<\/ul>\n<p><a href=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_058.jpg\"><img decoding=\"async\" class=\"aligncenter size-medium wp-image-2461\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_058-300x200.jpg\" alt=\"20141213_emilys_birthday_058\" width=\"300\" height=\"200\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_058-300x200.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_058-600x400.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_058-1024x683.jpg 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_058.jpg 1200w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<p>Ve millet, i\u015fimiz hen\u00fcz bitmedi. Bu ay daha heyecan verici duyurular geliyor!<\/p>\n<p>Emily'nin CF \u00fcyesi olmayan bir arkada\u015f\u0131n\u0131n g\u00f6lgesinde kald\u0131\u011f\u0131 \"Sadece bir g\u00fcnl\u00fc\u011f\u00fcne\" kampanyas\u0131, yeni Y\u00f6netim Kurulu \u00fcyesi spotlar\u0131 ve daha fazlas\u0131 dahil olmak \u00fczere ay boyunca \u00f6zel blog g\u00f6nderileri i\u00e7in bizi izlemeye devam edin. Ve bu kadar da de\u011fil! Ayr\u0131ca Instagram'da haftal\u0131k yo\u011fun bir foto\u011fraf program\u0131 ve Twitter'da her g\u00fcn yeni bir CF ger\u00e7e\u011fi ile aktif olaca\u011f\u0131z.<\/p>\n<p><a href=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/May-is-CF-Awareness-Month-Collage.jpg\"><img decoding=\"async\" class=\"aligncenter size-medium wp-image-2464\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/May-is-CF-Awareness-Month-Collage-300x300.jpg\" alt=\"May is CF Awareness Month Collage\" width=\"300\" height=\"300\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/May-is-CF-Awareness-Month-Collage-300x300.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/May-is-CF-Awareness-Month-Collage-100x100.jpg 100w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/May-is-CF-Awareness-Month-Collage-600x600.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/May-is-CF-Awareness-Month-Collage-150x150.jpg 150w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/May-is-CF-Awareness-Month-Collage.jpg 864w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><\/p>\n<p>Ve son olarak...<br \/>\n<strong>TARI\u0307HI\u0307 KAYDET<\/strong> Emily's Entourage ile 4. Geleneksel Ak\u015fam Galas\u0131 i\u00e7in 5 Aral\u0131k 2015 Cumartesi g\u00fcn\u00fc. Takvimlerinizi i\u015faretleyin ve arkada\u015flar\u0131n\u0131za s\u00f6yleyin!<\/p>\n<p>Facebook, Twitter, Instagram ve blogumuzdaki faaliyetler e\u011flenceli ve \u015fakac\u0131 olsa da, hepsi basit bir ama\u00e7 i\u00e7indir: ses getirmek ve KF konusunda fark\u0131ndal\u0131k yaratmak, b\u00f6ylece bu korkun\u00e7 hastal\u0131\u011fa bir kez ve herkes i\u00e7in son verebiliriz.<br \/>\nOraya ula\u015fma \u00e7abalar\u0131m\u0131za kat\u0131lacak m\u0131s\u0131n\u0131z?!<\/p>\n<p><strong>CF FARKINDALIK AYI KAPAK FOTO\u011eRAFI:<\/strong><br \/>\n<a href=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE_CF-Awareness-Month_Cover-Photo.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-medium wp-image-2458\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE_CF-Awareness-Month_Cover-Photo-300x111.jpg\" alt=\"EE_CF Awareness Month_Cover Photo\" width=\"300\" height=\"111\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE_CF-Awareness-Month_Cover-Photo-300x111.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE_CF-Awareness-Month_Cover-Photo-600x222.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE_CF-Awareness-Month_Cover-Photo.jpg 850w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><br \/>\n<strong>CF FARKINDALIK AYI PROFI\u0307L FOTO\u011eRAFI:<\/strong><\/p>\n<p><a href=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/madewithOver.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-medium wp-image-2468\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/madewithOver-300x200.jpg\" alt=\"madewithOver\" width=\"300\" height=\"200\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/madewithOver-300x200.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/madewithOver-600x400.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/madewithOver-1024x682.jpg 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/madewithOver.jpg 1922w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Emily's Entourage, May\u0131s ay\u0131n\u0131n Ulusal Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 olarak tan\u0131nmas\u0131na ve kutlanmas\u0131na yard\u0131mc\u0131 olmak i\u00e7in bir\u00e7ok \u015fey planlad\u0131! \u0130ster sad\u0131k bir EE \u00fcyesi olun, ister bu harika ekibe yeni kat\u0131lm\u0131\u015f olun, l\u00fctfen bir dakikan\u0131z\u0131 ay\u0131rarak inan\u0131lmaz Emily'mizi ve herkesi kurtarmaya yard\u0131mc\u0131 olmak i\u00e7in yaratabilece\u011finiz fark hakk\u0131nda bilgi edinin... <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/make-some-noise-may-is-cystic-fibrosis-awareness-month\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":59,"featured_media":3626,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1,6],"tags":[],"class_list":["post-2457","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_0581.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/2457","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/59"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=2457"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/2457\/revisions"}],"predecessor-version":[{"id":20332,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/2457\/revisions\/20332"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/3626"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=2457"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=2457"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=2457"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}