{"id":24403,"date":"2025-04-30T09:00:41","date_gmt":"2025-04-30T13:00:41","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=24403"},"modified":"2025-04-30T11:28:03","modified_gmt":"2025-04-30T15:28:03","slug":"lines-of-connection-paths-to-progress-this-cf-awareness-month-its-time-to-crossoutcf","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/lines-of-connection-paths-to-progress-this-cf-awareness-month-its-time-to-crossoutcf\/","title":{"rendered":"Ba\u011flant\u0131 Hatlar\u0131, \u0130lerlemeye Giden Yollar: Bu KF Fark\u0131ndal\u0131k Ay\u0131nda, #CrossOutCF Zaman\u0131"},"content":{"rendered":"<p>Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 2025 geldi ve Emily's Entourage'da (EE) kistik fibrozis (KF) toplulu\u011funun sars\u0131lmaz ruhunu kutluyoruz. Bu ay, KF toplulu\u011funu tan\u0131mlayan azim, cesaret ve amans\u0131z \"pes etmeme\" tutumundan besleniyor ve bizi net, boyun e\u011fmez bir hedefe do\u011fru y\u00f6nlendiriyor: kimsenin KF ile ya\u015famak zorunda olmad\u0131\u011f\u0131 bir d\u00fcnya.<\/p>\n<p>EE her y\u0131l, i\u015fi bitirmek ve KF'li her bireyin kendi hayat kurtar\u0131c\u0131 tedavisine sahip olmas\u0131n\u0131 sa\u011flamak i\u00e7in cesur bir taahh\u00fct olan \"Cross Out CF\" temas\u0131n\u0131 benimsiyor. \u0130stisna yok. Mazeret yok. Bu y\u0131l daha da ileri giderek, KF toplulu\u011funun zengin perspektif ve deneyim mozai\u011fi i\u00e7inde hayati ba\u011flant\u0131lar ve ortak hedefimize do\u011fru ilerleme yollar\u0131 olarak \u00e7izgilerin g\u00fcc\u00fcne odaklan\u0131yoruz. KF toplulu\u011fu kusurlu bir geni payla\u015f\u0131yor olsa da, kendisini dayan\u0131kl\u0131l\u0131\u011f\u0131, yarat\u0131c\u0131l\u0131\u011f\u0131 ve KF'den ar\u0131nm\u0131\u015f bir gelecek in\u015fa etme konusundaki sars\u0131lmaz kararl\u0131l\u0131\u011f\u0131yla da tan\u0131ml\u0131yor.<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter wp-image-24409 size-full\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-scaled.png\" alt=\"\" width=\"2560\" height=\"1289\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-scaled.png 2560w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-300x151.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-1024x516.png 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-768x387.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-1536x774.png 1536w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-2048x1032.png 2048w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-18x9.png 18w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-2025_Cross-Out-CF_Newsletter-Banner-600x302.png 600w\" sizes=\"(max-width: 2560px) 100vw, 2560px\" \/><\/p>\n<h3>Ba\u011flant\u0131, Perspektif ve Olas\u0131l\u0131k Ay\u0131<\/h3>\n<p>May\u0131s ay\u0131 boyunca, KF toplulu\u011funun bir par\u00e7as\u0131 olman\u0131n ger\u00e7ekte ne anlama geldi\u011fini ara\u015ft\u0131r\u0131yor ve \u00e7e\u015fitli k\u00fcresel perspektiflerden \u00e7e\u015fitli, incelikli ve g\u00fc\u00e7l\u00fc hikayeleri kutluyoruz. Bu ay, KF toplulu\u011funu \u015fekillendiren ya\u015fanm\u0131\u015f deneyimleri g\u00fc\u00e7lendirmekle ilgili. KF'nin kimlik, inovasyon ve ba\u011flant\u0131 ile nas\u0131l kesi\u015fti\u011fini ke\u015ffederken, kalan engellerle de y\u00fczle\u015fece\u011fiz. Teredd\u00fcts\u00fcz bir misyonla - KF'yi tamamen ortadan kald\u0131rmak - hikayeleri bu hareketi ileriye ta\u015f\u0131yan bireylerin ve ailelerin seslerini y\u00fckseltece\u011fiz.<\/p>\n<p>Bu, kolektif g\u00fcc\u00fcm\u00fcz\u00fcn, farkl\u0131 bak\u0131\u015f a\u00e7\u0131lar\u0131m\u0131z\u0131n ve KF'den ar\u0131nm\u0131\u015f bir gelecek i\u00e7in durmak bilmeyen aray\u0131\u015f\u0131m\u0131z\u0131n bir kutlamas\u0131d\u0131r.<\/p>\n<ul>\n<li>Ki\u015fisel zorluklar\u0131n\u0131 eyleme d\u00f6n\u00fc\u015ft\u00fcren, kendileri ve KF toplulu\u011fu i\u00e7in savunuculuk yaparak \u00f6nc\u00fcl\u00fck eden KF'li ki\u015filer.<\/li>\n<li>Zorluklar kar\u015f\u0131s\u0131nda g\u00fczellikler yaratan hayalperestlerin ve eylemcilerin.<\/li>\n<li>Ne pahas\u0131na olursa olsun, \u00e7ocuklar\u0131na ba\u015far\u0131l\u0131 olmalar\u0131 i\u00e7in gereken her \u015feyi vermek i\u00e7in da\u011flar\u0131 yerinden oynatan sonsuz azimli ebeveynlerin.<\/li>\n<li>Hayatlar\u0131n\u0131 en son bilimi yenilik\u00e7i tedavilere d\u00f6n\u00fc\u015ft\u00fcrmeye adayan, ki\u015fisel kay\u0131plarla hareket eden ara\u015ft\u0131rmac\u0131lardan.<\/li>\n<\/ul>\n<p>Ve son 10%'de, cesaretle umutlar\u0131n\u0131 koruyan ve at\u0131l\u0131mlar\u0131n\u0131 beklerken ilerlemeye devam edenlerin.<\/p>\n<p>Bu seslerin her biri bu hareketin kalp at\u0131\u015flar\u0131d\u0131r. Bunlar bizi harekete ge\u00e7iren insanlar. Bunlar bize ilham veren hikayeler. Bu topluluk, KF toplulu\u011funun 100%'si i\u00e7in KF'nin \u00fcst\u00fcn\u00fc \u00e7izdi\u011fimiz ve kimsenin geride kalmad\u0131\u011f\u0131 bir gelecek yaratmak i\u00e7in bir araya gelen topluluktur.<\/p>\n<h3>Nas\u0131l Kat\u0131labilirsiniz<\/h3>\n<p>Bu ay eylemle ilgili - \u00e7\u00fcnk\u00fc ilerleme kendi kendine ger\u00e7ekle\u015fmiyor. Payla\u015ft\u0131\u011f\u0131n\u0131z her g\u00f6nderi, anlatt\u0131\u011f\u0131n\u0131z her hikaye ve ba\u015flatt\u0131\u011f\u0131n\u0131z her sohbet bizi KF'nin tarih oldu\u011fu bir gelece\u011fe yakla\u015ft\u0131r\u0131yor.<\/p>\n<p data-wp-editing=\"1\"><img decoding=\"async\" class=\"aligncenter wp-image-24411\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B-819x1024.png\" alt=\"\" width=\"402\" height=\"502\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B-819x1024.png 819w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B-240x300.png 240w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B-768x960.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B-1229x1536.png 1229w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B-10x12.png 10w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B-440x550.png 440w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B-600x750.png 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Post-1-B.png 1638w\" sizes=\"(max-width: 402px) 100vw, 402px\" \/><\/p>\n<ul>\n<li aria-level=\"1\"><b>Ba\u011flant\u0131da Kal\u0131n<\/b>: Sosyal medyada takip edin (<a href=\"https:\/\/www.facebook.com\/EmilysEntourage\" target=\"_blank\" rel=\"noopener\">Facebook<\/a> | <a href=\"https:\/\/www.instagram.com\/emilysentourage\/\" target=\"_blank\" rel=\"noopener\">Instagram<\/a> | <a href=\"https:\/\/www.linkedin.com\/company\/emilysentourage\/\" target=\"_blank\" rel=\"noopener\">LinkedIn<\/a> | <a href=\"https:\/\/x.com\/EmilysEntourage\/\" target=\"_blank\" rel=\"noopener\">X<\/a>) ve <a href=\"https:\/\/www.emilysentourage.org\/tr\/eeupdates\/\" target=\"_blank\" rel=\"noopener\">bizim i\u00e7in kaydolun <em>EE Insider<\/em> B\u00fclten<\/a> Ki\u015fisel yolculuklar ve savunuculuk \u00e7abalar\u0131ndan \u00e7\u0131\u011f\u0131r a\u00e7an bilime ve toplulu\u011fun g\u00fcc\u00fcne kadar KF ile ya\u015fam\u0131n her g\u00fcn yeni bir y\u00f6n\u00fcne \u0131\u015f\u0131k tutuyoruz.<\/li>\n<li aria-level=\"1\"><b>Sohbete Kat\u0131l\u0131n<\/b>: Sizin hikayeniz \u00f6nemli. #CrossOutCF kullanarak KF ile ilgili deneyiminizi payla\u015f\u0131n ve d\u00fcnyaya at\u0131l\u0131mlar\u0131n neden bekleyemeyece\u011fini g\u00f6stermemize yard\u0131mc\u0131 olun.<\/li>\n<li aria-level=\"1\"><b>Harekete Ge\u00e7in<\/b>: Ba\u011f\u0131\u015fta bulunun, destek olun, sesinizi duyurun - ne kadar b\u00fcy\u00fck ya da k\u00fc\u00e7\u00fck olursa olsun her eylem bizi biti\u015f \u00e7izgisine bir ad\u0131m daha yakla\u015ft\u0131r\u0131r.<\/li>\n<\/ul>\n<p>#CrossOutCF oldu\u011fumuz bir gelecek yaratmak, hayat kurtaran at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rmaya ba\u011fl\u0131d\u0131r - \u00e7\u00fcnk\u00fc \u00e7ok fazla ki\u015fi hala beklemektedir. Bu topluluktaki her hik\u00e2ye, her bak\u0131\u015f a\u00e7\u0131s\u0131, her ses bizi birbirimize ba\u011flayan, y\u00fckselten ve ileriye g\u00f6t\u00fcren bir \u00e7izgidir. Birlikte noktalar\u0131 birle\u015ftirelim, \u00e7izgileri olu\u015ftural\u0131m, bilimi daha h\u0131zl\u0131 ilerleten ve KF toplulu\u011funun 100%'si i\u00e7in hayat kurtaran at\u0131l\u0131mlara yol a\u00e7an a\u011f\u0131 \u00e7izelim.<\/p>\n<p><b>Y\u00fcksek sesle konu\u015fun. Ac\u0131mas\u0131z olun. \u0130lerlemeyi sa\u011flayan ba\u011flant\u0131 olun. CF'nin \u00fcst\u00fcn\u00fc birlikte \u00e7izelim.<\/b><\/p>\n<h3 style=\"text-align: center;\">KF Fark\u0131ndal\u0131k Ay\u0131 Sponsorlar\u0131m\u0131za Te\u015fekk\u00fcr Ederiz<\/h3>\n<p>C\u00f6mert 2025 Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 kampanya sponsorlar\u0131m\u0131za te\u015fekk\u00fcr etmek istiyoruz! \"KF'nin \u00fcst\u00fcn\u00fc \u00e7izmek\" ve bu hastal\u0131\u011f\u0131n hikayesini sonsuza dek yeniden yazmak i\u00e7in \u00e7al\u0131\u015f\u0131rken deste\u011finiz bizim i\u00e7in d\u00fcnyalara bedel.<\/p>\n<p><img decoding=\"async\" class=\"aligncenter wp-image-24414\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/2025-CFA-Sponsors-Updated--1024x950.png\" alt=\"\" width=\"850\" height=\"788\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/2025-CFA-Sponsors-Updated--1024x950.png 1024w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/2025-CFA-Sponsors-Updated--300x278.png 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/2025-CFA-Sponsors-Updated--768x712.png 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/2025-CFA-Sponsors-Updated--13x12.png 13w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/2025-CFA-Sponsors-Updated--600x557.png 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/2025-CFA-Sponsors-Updated-.png 1354w\" sizes=\"(max-width: 850px) 100vw, 850px\" \/><\/p>","protected":false},"excerpt":{"rendered":"<p>Cystic Fibrosis Awareness Month 2025 is here, and at Emily\u2019s Entourage (EE), we\u2019re celebrating the unwavering spirit of the cystic fibrosis (CF) community. This month is fueled by grit, courage, and the relentless &#8220;no-quit&#8221; attitude that defines the CF community, driving us toward one clear, unyielding goal: a world where no one has to live&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/lines-of-connection-paths-to-progress-this-cf-awareness-month-its-time-to-crossoutcf\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1719,"featured_media":24424,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"%%post_title%%","_seopress_titles_desc":"%%post_excerpt%%","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[6],"tags":[52,197,209,7,137],"class_list":["post-24403","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-emilys-entourage-blog","tag-cf-awareness","tag-cf-research","tag-cfa","tag-cystic-fibrosis","tag-cystic-fibrosis-awareness-month"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CFA-2025.png","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/24403","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1719"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=24403"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/24403\/revisions"}],"predecessor-version":[{"id":24513,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/24403\/revisions\/24513"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/24424"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=24403"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=24403"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=24403"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}