{"id":23966,"date":"2024-12-04T10:33:51","date_gmt":"2024-12-04T14:33:51","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=23966"},"modified":"2024-12-04T10:33:51","modified_gmt":"2024-12-04T14:33:51","slug":"racing-toward-a-cure-team-ee-shines-in-the-2024-philadelphia-marathon","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/racing-toward-a-cure-team-ee-shines-in-the-2024-philadelphia-marathon\/","title":{"rendered":"Tedaviye Do\u011fru Yar\u0131\u015f: EE Tak\u0131m\u0131 2024 Philadelphia Maratonunda Parl\u0131yor"},"content":{"rendered":"

\"\"<\/p>\n

Philadelphia Maratonu hafta sonunda kelimelere d\u00f6k\u00fclmesi zor bir sihir vard\u0131r - havay\u0131 dolduran kararl\u0131l\u0131k, heyecan ve kalbin kar\u0131\u015f\u0131m\u0131. Bu y\u0131l, EE Tak\u0131m\u0131 bu sihri 30 kay\u0131tl\u0131 ko\u015fucu<\/b> Mevcut mutasyon hedefli tedavilerden yararlanamayan kistik fibrozis (KF) toplulu\u011funun son 10%'si i\u00e7in hayat kurtaran at\u0131l\u0131mlar\u0131 ve tedaviyi h\u0131zland\u0131rmak i\u00e7in Philadelphia sokaklar\u0131na \u00e7\u0131k\u0131yor.<\/p>\n

\"\"23-24 Kas\u0131m 2024 tarihleri aras\u0131nda binlerce ko\u015fucu 8K, yar\u0131 maraton ve tam maratona kat\u0131l\u0131rken \u015fehir heyecanla \u00e7alkaland\u0131. Bunlar\u0131n aras\u0131nda, KF'li herkesin derin nefes alabilece\u011fi ve \u00f6zg\u00fcrce ya\u015fayabilece\u011fi bir gelecek yaratma ortak misyonuyla kararl\u0131l\u0131klar\u0131 ve cesaretleri k\u00f6r\u00fcklenen EE Tak\u0131m\u0131n\u0131n ola\u011fan\u00fcst\u00fc bireyleri de vard\u0131.<\/p>\n

Her EE Tak\u0131m\u0131 ko\u015fucusu sadece yar\u0131\u015f hafta sonunun fiziksel zorlu\u011funu de\u011fil, ayn\u0131 zamanda 8K i\u00e7in $500, yar\u0131 maraton i\u00e7in $750 ve tam maraton i\u00e7in $1,500 ba\u011f\u0131\u015f toplama s\u00f6z\u00fc vererek bir ba\u011f\u0131\u015f toplama zorlu\u011funu da \u00fcstlendi. Bu fonlar, KF toplumunun hala hayat kurtar\u0131c\u0131 at\u0131l\u0131mlar bekleyen son 10%'si i\u00e7in tedaviler geli\u015ftirmeyi ama\u00e7layan en son ara\u015ft\u0131rmalar\u0131 beslemek i\u00e7in kritik \u00f6neme sahiptir. EE Ekibi, \u00f6zverileri sayesinde bu hayati misyonu ileriye ta\u015f\u0131mak i\u00e7in $37,000'den fazla ba\u011f\u0131\u015f toplad\u0131.<\/p>\n

Ko\u015fucularla birlikte dokuz<\/b> devletler,<\/strong> EE Tak\u0131m\u0131 ko\u015fucular\u0131n\u0131n bu y\u0131lki kadrosunda tan\u0131d\u0131k y\u00fczler ve yeni kat\u0131l\u0131mlar bir araya geldi ve hepsi de KF toplulu\u011funun gelece\u011fini de\u011fi\u015ftirmeye y\u00f6nelik ortak bir kararl\u0131l\u0131kla birle\u015fti. \u0130ster 8K ko\u015fusunun sabah\u0131n serin havas\u0131nda m\u00fccadele etsinler, ister maratonun son d\u00fczl\u00fc\u011f\u00fcnde sebat etsinler, EE Tak\u0131m\u0131'n\u0131n g\u00fcc\u00fc ve ruhu tam anlam\u0131yla sergileniyordu.<\/p>\n

Emily's Entourage'\u0131n kurucu orta\u011f\u0131 Emily Kramer-Golinkoff, \"EE Tak\u0131m\u0131 ko\u015fucular\u0131n\u0131n her birine, bu yolculu\u011fun her ad\u0131m\u0131nda y\u00fcreklerini ortaya koyduklar\u0131 i\u00e7in te\u015fekk\u00fcr ederim,\" dedi. \"Ko\u015fmak KF'ye kar\u015f\u0131 en b\u00fcy\u00fck meydan okuma eylemi gibi geliyor. KF toplulu\u011funun son 10%'si i\u00e7in hayat kurtaran tedaviler ve bir tedavi geli\u015ftirmek \u00fczere hayat\u0131m\u0131z\u0131n yar\u0131\u015f\u0131nday\u0131z ve siz bizi bu nihai biti\u015f \u00e7izgisine iten g\u00fc\u00e7s\u00fcn\u00fcz. Adanm\u0131\u015fl\u0131\u011f\u0131n\u0131za hayranl\u0131k duyuyoruz ve size minnettar\u0131z!\"<\/p>\n

\u00d6zel bir te\u015fekk\u00fcr Firstrust Bankas\u0131<\/b>EE Tak\u0131m\u0131'n\u0131n bu y\u0131lki resmi sponsoru olarak bize verdikleri sars\u0131lmaz destek i\u00e7in te\u015fekk\u00fcr ederiz. Ortakl\u0131\u011f\u0131n\u0131z misyonumuzu besliyor ve nihai biti\u015f \u00e7izgimize do\u011fru daha da zorlamam\u0131z i\u00e7in bize ilham veriyor.<\/p>\n

\"\"<\/strong>Son olarak, yorulmak bilmeyen \u00e7abalar\u0131 ve sars\u0131lmaz ba\u011fl\u0131l\u0131klar\u0131 i\u00e7in ola\u011fan\u00fcst\u00fc ko\u015fucular\u0131m\u0131za en derin \u015f\u00fckranlar\u0131m\u0131z\u0131 sunmak istiyoruz:<\/p>\n

Gillian Bailey | Gladys Becerra | Sarah Bennett | Constance Besnier | Kelly Borzell | Roman DiNicola | Kruti Doctor | Coby Golinkoff | Nargus Harounzadeh | Eddie Higgins | Roxanne Indelicato | Colleen Kendall | Julia Kramer-Golinkoff | Kate Liburdi | Andrew Lichtman | Greg Maltzman | Jenna Mason | Sarah Mitchell | Andy Pace| Janet Pace | Lexi Pace | Jessica Plaza | Steven Rothenberg | Sophia Schiaroli | Peyton Smith | Sarah-Anne Tanner| Liana Tom | Riley Williams | Lauren Zimmerman | Kerry Zisk<\/strong><\/p>\n

Bu y\u0131l, bir araya geldi\u011fimizde ola\u011fan\u00fcst\u00fc \u015feyler yapabilece\u011fimizi g\u00fc\u00e7l\u00fc bir \u015fekilde hat\u0131rlatt\u0131. At\u0131l\u0131mlar ve tedavi i\u00e7in yar\u0131\u015f\u0131rken hi\u00e7bir biti\u015f \u00e7izgisinin \u00e7ok uzak olmad\u0131\u011f\u0131n\u0131 t\u00fcm d\u00fcnyaya g\u00f6sterdi\u011finiz i\u00e7in te\u015fekk\u00fcrler EE Ekibi.<\/p>\n

Kontrol et 2024 Team EE foto\u011fraf alb\u00fcm\u00fc burada<\/a> <\/b>t\u00fcm maraton b\u00fcy\u00fcs\u00fcn\u00fc yeniden ya\u015famak i\u00e7in ve her seferinde bir ad\u0131m olmak \u00fczere tedaviye do\u011fru yar\u0131\u015fmaya devam edelim. ????<\/p>","protected":false},"excerpt":{"rendered":"

There\u2019s a certain magic to the weekend of the Philadelphia Marathon that\u2019s hard to put into words\u2014a mix of determination, excitement, and heart that fills the air. This year, Team EE harnessed that magic with 30 registered runners hitting the streets of Philadelphia to speed life-saving breakthroughs and a cure for the final 10% of… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1719,"featured_media":23972,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"%%post_title%%","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"both","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1,6],"tags":[],"class_list":["post-23966","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Z18A7593.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/23966","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1719"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=23966"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/23966\/revisions"}],"predecessor-version":[{"id":23981,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/23966\/revisions\/23981"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/23972"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=23966"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=23966"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=23966"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}