{"id":23400,"date":"2024-11-12T11:05:05","date_gmt":"2024-11-12T15:05:05","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=23400"},"modified":"2024-11-12T11:10:19","modified_gmt":"2024-11-12T15:10:19","slug":"lacing-up-for-hope-meet-the-runners-of-teamee-racing-for-cf-breakthroughs","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/lacing-up-for-hope-meet-the-runners-of-teamee-racing-for-cf-breakthroughs\/","title":{"rendered":"Umut \u0130\u00e7in Ba\u011fc\u0131k Ba\u011flamak: KF'de \u00c7\u0131\u011f\u0131r A\u00e7mak \u0130\u00e7in Yar\u0131\u015fan #TeamEE Ko\u015fucular\u0131yla Tan\u0131\u015f\u0131n"},"content":{"rendered":"

Sadece birka\u00e7 hafta i\u00e7inde -23 ve 24 Kas\u0131m 2024'te- durdurulamaz #TeamEE ko\u015fucular\u0131m\u0131z spor ayakkab\u0131lar\u0131n\u0131 ba\u011flayacak, kald\u0131r\u0131ma \u00e7\u0131kacak ve Philadelphia Maratonu'na kat\u0131lacaklar. Ancak onlar sadece ki\u015fisel hedefleri i\u00e7in ya da biti\u015f \u00e7izgisi heyecan\u0131n\u0131 kovalamak i\u00e7in ko\u015fmuyorlar. Daha b\u00fcy\u00fck bir \u015fey i\u00e7in ko\u015fuyorlar: Kistik fibrozis (KF) ara\u015ft\u0131rmalar\u0131 i\u00e7in \u00f6nemli fonlar toplama ve hala hayat kurtaran at\u0131l\u0131mlar bekleyen KF toplulu\u011funun 10%'sine umut getirme misyonu.<\/p>\n

Bu y\u0131l, her biri kendi k\u0131v\u0131lc\u0131m\u0131n\u0131, hikayesini ve adanm\u0131\u015fl\u0131\u011f\u0131n\u0131 ekibe getiren 30 tutkulu maratoncu ile \u015fimdiye kadarki en b\u00fcy\u00fck #TeamEE'mizi bir araya getirmekten heyecan duyuyoruz. Baz\u0131lar\u0131 sevdiklerini onurland\u0131rmak i\u00e7in ko\u015fuyor, baz\u0131lar\u0131 ise bu zorlu m\u00fccadeleden keyif almak i\u00e7in, ancak hepsi g\u00fc\u00e7l\u00fc bir hedefi payla\u015f\u0131yor: hala acil ihtiyac\u0131 olan KF'li insanlar\u0131n son 10%'si i\u00e7in hayat de\u011fi\u015ftiren bir fark yaratmak.<\/p>\n

Bug\u00fcn sizi #TeamEE ekibinin bu ola\u011fan\u00fcst\u00fc \u00fcyelerinden birka\u00e7\u0131yla tan\u0131\u015ft\u0131rmaktan heyecan duyuyoruz. Zekice antrenman ipu\u00e7lar\u0131 (bebek arabas\u0131yla diren\u00e7 antrenman\u0131 yapmak isteyen var m\u0131?), beklenmedik \u00e7alma listeleri (\u00e7\u00fcnk\u00fc Lise M\u00fczikali<\/i> 10'uncu kilometrede farkl\u0131 bir \u015fekilde vurur) ve \u00e7ok fazla y\u00fcrek.<\/p>\n

\n

 <\/p>\n

\"\"Eddie Higgins<\/b><\/h3>\n

Memleketi:<\/b> Ardmore, PA
\nG\u00fcnd\u00fcz i\u015fi:<\/b> Google'da Veri Bilimcisi<\/p>\n

Irk ge\u00e7mi\u015fi:<\/b>
\n<\/b>Philly'nin yar\u0131s\u0131n\u0131 birka\u00e7 kez yapt\u0131m ve ayr\u0131ca Boston, Chicago ve New York'ta maraton ko\u015ftum.<\/p>\n

Ko\u015fmam i\u00e7in bana ilham veren \u015fey:<\/b>
\n<\/b>Formda kalmak ve d\u0131\u015far\u0131da vakit ge\u00e7irmek... ve Strava'n\u0131n sosyal bask\u0131s\u0131.<\/p>\n

Neden EE i\u00e7in yar\u0131\u015f\u0131yorum:<\/b>
\n<\/b>\u0130htiyac\u0131 olan KF'liler i\u00e7in tedavi se\u00e7eneklerine bizi yakla\u015ft\u0131ran her \u015fey her t\u00fcrl\u00fc \u00e7abaya de\u011fer. EE i\u00e7in ko\u015fmak bu de\u011fi\u015fimin bir par\u00e7as\u0131 olman\u0131n bir yoludur.<\/p>\n

E\u011fitim \u0130pucu:<\/b>
\n<\/b>\u0130ki \u00e7ocuklu bir \u00e7ift BOB bebek arabas\u0131 en iyi diren\u00e7 antrenman\u0131d\u0131r - ayr\u0131ca k\u00fc\u00e7\u00fck e\u011fitmenlerim beni hareket ettiriyor!<\/p>\n

En iyi \u015fark\u0131lar:<\/b>
\n<\/b>Gen\u00e7 e\u011fitim ortaklar\u0131m sayesinde s\u0131k s\u0131k 'Bluey' veya 'Super Kitties'e ko\u015fuyorum.<\/p>\n

Eddie'nin kampanyas\u0131n\u0131 buradan destekleyin<\/a>.<\/p>\n

\n

 <\/p>\n

\"\"Constance Besnier<\/b><\/h3>\n

Memleketi:<\/b> Aslen Fransa'dan; \u015fimdi Philadelphia, PA<\/p>\n

G\u00fcnd\u00fcz i\u015fi:<\/b> Philadelphia \u00c7ocuk Hastanesi'nde (CHOP) Klinik Ara\u015ft\u0131rma Program Y\u00f6neticisi<\/p>\n

Irk ge\u00e7mi\u015fi:<\/b>
\n<\/b>Daha \u00f6nce hi\u00e7 yar\u0131 maraton ko\u015fmam\u0131\u015ft\u0131m; asl\u0131nda en uzun ko\u015fum 2021'de yapt\u0131\u011f\u0131m 8 km'lik bir ko\u015fuydu. Emily'nin k\u0131z karde\u015fi Julia beni kat\u0131lmaya te\u015fvik etti ve EE i\u00e7in hay\u0131r diyemezdim.<\/p>\n

Neden EE i\u00e7in yar\u0131\u015f\u0131yorum:<\/b>
\n<\/b>KG ailesinin ve EE toplulu\u011funun adanm\u0131\u015fl\u0131\u011f\u0131 son derece ilham verici. Son 10% i\u00e7in daha iyi bir at\u0131l\u0131m \u015fans\u0131 vermek i\u00e7in ko\u015fmak hi\u00e7 de ak\u0131ll\u0131ca de\u011fil.<\/p>\n

E\u011fitim \u0130pucu:<\/b>
\n<\/b>Motivasyonunuz d\u00fc\u015ft\u00fc\u011f\u00fcnde disipline g\u00fcvenin; motive olmasan\u0131z bile disiplin sizi ayakkab\u0131lar\u0131n\u0131z\u0131 giydirip ko\u015fturacakt\u0131r.<\/p>\n

En iyi melodi:<\/b>
\n<\/b>Ki\u015fisel ko\u015fu listem olduk\u00e7a eklektik, ancak Elton John'un 'I'm Still Standing' ve Eurythmics'in 'Sweet Dreams' \u015fark\u0131lar\u0131 beni hareket ettirmeyi asla ba\u015faram\u0131yor.<\/p>\n

Constance'\u0131n kampanyas\u0131n\u0131 buradan destekleyin.<\/a><\/p>\n

\n

\"\"<\/b><\/h3>\n

<\/h3>\n

Sarah Bennett<\/b><\/h3>\n

Memleketi:<\/b> Aslen Westport, CT'den; \u015fimdi New York City<\/p>\n

G\u00fcnd\u00fcz i\u015fi:<\/b> Ortaokul Do\u011fa\u00e7lama \u00d6\u011fretmeni ve hikayelerden orijinal tiyatro yaratan bir 501(c) 3 olan The Harlem Stories Project'in Y\u00f6netici Direkt\u00f6r\u00fc.<\/p>\n

Irk ge\u00e7mi\u015fi:<\/b>
\n<\/b>Bu benim \u00fc\u00e7\u00fcnc\u00fc Philly Maratonum olacak ve ge\u00e7en hafta sonu Washington DC'de 16. tam maratonumu ko\u015ftum. Daha \u00f6nce EE ile yar\u0131 maraton ko\u015fmu\u015ftum ve kalbime bu kadar yak\u0131n bir ama\u00e7 i\u00e7in ko\u015fmak b\u00fcy\u00fck bir ayr\u0131cal\u0131k.<\/p>\n

Neden EE i\u00e7in yar\u0131\u015f\u0131yorum:<\/b>
\n<\/b>EE i\u00e7in ko\u015fman\u0131n her k\u0131sm\u0131 heyecan verici - misyondan EE k\u0131yafetlerimizle parkuru ezip ge\u00e7mekten duydu\u011fumuz gurura kadar - fark\u0131ndal\u0131k yaratmak ve EE'nin yapt\u0131\u011f\u0131 inan\u0131lmaz i\u015fi savunmak.<\/p>\n

En iyi melodi:<\/b>
\n<\/b>\u015eu anda ko\u015fu \u00e7alma listemde \u015fu filmin m\u00fczikleri hakim High School Musical 3: Son S\u0131n\u0131f<\/i>. Bu i\u015fte hepimiz beraberiz!<\/p>\n

Sarah'n\u0131n kampanyas\u0131n\u0131 buradan destekleyin.<\/a><\/p>\n

 <\/p>\n

\n

 <\/p>\n

\"\"Kruti Doktor<\/b><\/h3>\n

Memleketi:<\/b> Ortabat\u0131 yerlisi; \u015fimdi New York<\/p>\n

G\u00fcnd\u00fcz i\u015fi:<\/b> K\u0131demli Finansal Analist<\/p>\n

Irk ge\u00e7mi\u015fi:<\/b>
\n<\/b>Chicago yar\u0131 maratonunda ko\u015ftum ama bu benim ilk tam maratonum!<\/p>\n

Neden EE i\u00e7in yar\u0131\u015f\u0131yorum:<\/b>
\n<\/b>Ni\u015fanl\u0131m nadir bir KF mutasyonuna sahip ve bir at\u0131l\u0131m bekleyen son 10% aras\u0131nda yer al\u0131yor ve ben de bu davay\u0131 desteklemek ve fark\u0131ndal\u0131\u011f\u0131 yaymak istiyorum.<\/p>\n

E\u011fitim \u0130pucu:<\/b>
\n<\/b>Su i\u00e7!!<\/p>\n

En iyi melodi:<\/b>
\n<\/b>Hip-hop ve rap benim antrenman i\u00e7in tercih etti\u011fim ritimler.<\/p>\n

Kruti'nin kampanyas\u0131n\u0131 buradan destekleyin.<\/a><\/p>\n

Ko\u015fucular\u0131m\u0131z\u0131 fark yaratma yar\u0131\u015flar\u0131nda desteklemek ister misiniz?<\/strong> Do\u011frudan ba\u011f\u0131\u015f toplama sayfalar\u0131na ba\u011f\u0131\u015fta bulunarak yolculuklar\u0131n\u0131 h\u0131zland\u0131rmalar\u0131na yard\u0131mc\u0131 olabilirsiniz. Toplanan her dolar, bizi 10%'nin sonunda KF hastalar\u0131n\u0131n hayatlar\u0131n\u0131 de\u011fi\u015ftirecek bir bulu\u015fa bir ad\u0131m daha yakla\u015ft\u0131r\u0131yor! Bizi tedaviye yakla\u015ft\u0131rmak i\u00e7in ko\u015farken onlara tezah\u00fcrat yapal\u0131m ve deste\u011fimizi g\u00f6sterelim!<\/p>\n

#TeamEE'nin tamam\u0131na ba\u011f\u0131\u015fta bulunmak veya se\u00e7ti\u011finiz bir ko\u015fucuyu desteklemek i\u00e7in, buraya t\u0131klay\u0131n.\u00a0<\/a><\/p>","protected":false},"excerpt":{"rendered":"

In just a few weeks\u2014on November 23 and 24, 2024\u2014our unstoppable #TeamEE runners will lace up their sneakers, hit the pavement, and take on the Philadelphia Marathon. But they\u2019re not just running for personal goals or to chase a finish-line thrill. They\u2019re running for something bigger: a mission to raise crucial funds for cystic fibrosis… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1719,"featured_media":23420,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[6],"tags":[],"class_list":["post-23400","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Untitled-design7.png","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/23400","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1719"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=23400"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/23400\/revisions"}],"predecessor-version":[{"id":23418,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/23400\/revisions\/23418"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/23420"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=23400"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=23400"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=23400"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}