{"id":20663,"date":"2024-01-07T18:51:15","date_gmt":"2024-01-07T23:51:15","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=20663"},"modified":"2024-01-07T18:51:15","modified_gmt":"2024-01-07T23:51:15","slug":"happy39thbirthdayemily","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/happy39thbirthdayemily\/","title":{"rendered":"Emily'nin 39. Do\u011fum G\u00fcn\u00fc Kutlu Olsun! Bizimle B\u00fcy\u00fck Hayaller Kurar m\u0131s\u0131n\u0131z?"},"content":{"rendered":"

Yazan Jessica Rutstein Lazarus, Emily's Entourage y\u00f6netim kurulu \u00fcyesi ve Emily'nin hayat boyu en iyi arkada\u015f\u0131<\/em><\/p>\n

Merhaba, ben Jess! Emily'ye en mutlu do\u011fum g\u00fcnlerini dilemek ve ge\u00e7ti\u011fimiz y\u0131l\u0131 d\u00fc\u015f\u00fcn\u00fcrken ve 2024'e ve Emily'nin 39 ya\u015f\u0131na bakarken baz\u0131 d\u00fc\u015f\u00fcncelerimi payla\u015fmak i\u00e7in tekrar buraday\u0131m.<\/span>inci<\/span> y\u0131l. Bu y\u0131l r\u00fcyalar hakk\u0131nda d\u00fc\u015f\u00fcn\u00fcyoruz...<\/span><\/p>\n

\"\"<\/p>\n

Herhangi bir g\u00fcnde, iki k\u00fc\u00e7\u00fck \u00e7ocu\u011fumun en b\u00fcy\u00fck hayalleri aras\u0131nda u\u00e7abilmek, evcil bir tek boynuzlu ata sahip olmak, s\u00fcrekli olarak bir e\u011flence park\u0131nda ya\u015famak veya bodrumumuzda bir \u015feker fabrikas\u0131na sahip olmak gibi \u015feyler var. Bu hayallerin hi\u00e7birinin ger\u00e7e\u011fe dayand\u0131\u011f\u0131n\u0131 s\u00f6yleyemesem de, \u00f6nemli olan hayal kurarken g\u00f6zlerindeki \u0131\u015f\u0131lt\u0131 ve bu \u015feylerin ne kadar harika olaca\u011f\u0131n\u0131 anlat\u0131rken y\u00fczlerindeki g\u00fcl\u00fcmsemedir. G\u00f6rd\u00fc\u011f\u00fcn\u00fcz gibi, hi\u00e7 kimse onlara en \u00e7\u0131lg\u0131n hayallerinin m\u00fcmk\u00fcn olmad\u0131\u011f\u0131n\u0131 s\u00f6ylememi\u015ftir. Hi\u00e7bir \u015f\u00fcphe tohumlar\u0131 yok, bir hedef belirleyip ona ula\u015famayacaklar\u0131na dair hi\u00e7bir endi\u015feleri yok. <\/span>Hayalleri \u00fczerinde hi\u00e7bir k\u0131s\u0131tlama hissetmezler.<\/b><\/p>\n

Herkesin bu \u00f6zg\u00fcrl\u00fc\u011f\u00fc hissetmesi gerekmez mi? Hayal g\u00fc\u00e7lerinin izin verdi\u011fi kadar b\u00fcy\u00fck hayaller kurma \u00f6zg\u00fcrl\u00fc\u011f\u00fc, g\u00fcven ve sonsuz iyimserlik. <\/span><\/p>\n

Ancak bir\u00e7o\u011fumuz i\u00e7in, yeti\u015fkinli\u011fe ge\u00e7erken g\u00f6r\u00fcnmez bir engeli a\u015ft\u0131\u011f\u0131m\u0131zda ya da belki de g\u00fcnl\u00fck ya\u015fam\u0131n rutin eziyetine daha al\u0131\u015fk\u0131n hale geldi\u011fimizde, nedense b\u00fcy\u00fck hayallerimiz sanki k\u00fc\u00e7\u00fclmeye ba\u015flar. Ya da hayal ettiklerimizi ger\u00e7ekle\u015ftiremeyece\u011fimizden endi\u015feleniriz, bu y\u00fczden dururuz ya da kendimizi s\u0131n\u0131rlamaya ba\u015flar\u0131z. Elbette, kistik fibrozis (KF) ile ya\u015fayan ve \u00f6zellikle ileri evre akci\u011fer hastal\u0131\u011f\u0131 olan pek \u00e7ok ki\u015fi i\u00e7in hayaller daha da karma\u015f\u0131kt\u0131r. Geleceklerinin kendi kontrolleri d\u0131\u015f\u0131nda bir g\u00fc\u00e7 taraf\u0131ndan k\u0131s\u0131tland\u0131\u011f\u0131n\u0131 g\u00f6ren herkes i\u00e7in bu hayalleri kurmak bile daha riskli olabilir. \u00d6zellikle de b\u00fcy\u00fck dilekler, umutlar ve hayaller i\u00e7in y\u0131ll\u0131k bir zaman olan do\u011fum g\u00fcnleri s\u00f6z konusu oldu\u011funda, \u00f6l\u00fcmc\u00fcl bir genetik hastal\u0131\u011f\u0131n g\u00fcnl\u00fck ger\u00e7ekli\u011fiyle bu keskin tezat \u00f6zellikle y\u00fcrek par\u00e7alay\u0131c\u0131 ve korkutucu gelebilir.    <\/span><\/p>\n

Emily i\u00e7in ger\u00e7ekle\u015fmesini istedi\u011fimiz hayallerimiz oldu\u011funu s\u00f6yledi\u011fimde hepimiz ad\u0131na konu\u015ftu\u011fumu biliyorum. <\/span>herkes<\/span><\/i> KF ile. So\u011fuk alg\u0131nl\u0131\u011f\u0131n\u0131n onu hastanelik edece\u011finden korkmak zorunda kalmamas\u0131n\u0131 hayal ediyorum... T\u00fcm seyahat hedeflerinin ger\u00e7ekle\u015febilmesini hayal ediyorum... Kalabal\u0131k yerlerde vakit ge\u00e7irmekten endi\u015fe duymamas\u0131n\u0131 hayal ediyorum... Gelece\u011fi \u00fczerinde hi\u00e7bir k\u0131s\u0131tlama hissetmemesini hayal ediyorum.    <\/span><\/p>\n

Emily'nin bize hat\u0131rlatt\u0131\u011f\u0131 gibi, <\/span>\"herkes hayal kurmayi hak eder.\" <\/b>Gelecek de ayn\u0131 derecede parlak ve ayn\u0131 derecede umutlu olmal\u0131. <\/span>hepsi <\/span><\/i>bizden. <\/span><\/p>\n

Emily bize sad\u0131k, tutkulu bir Entourage olarak kolektif bir \u015fekilde nas\u0131l b\u00fcy\u00fck hayaller kurmaya cesaret edebilece\u011fimizi ve a\u015f\u0131lmaz g\u00f6r\u00fcnen \u015feyleri ba\u015farabilece\u011fimizi g\u00f6sterdi. \u0130la\u00e7 geli\u015ftirmede e\u015fi benzeri g\u00f6r\u00fclmemi\u015f bir ilerleme kaydettik - nihai 10% i\u00e7in her zamankinden daha fazla umudumuz var. <\/span><\/p>\n

\"\"<\/p>\n

B\u00fcy\u00fck hayaller kurmal\u0131y\u0131z, biz var <\/i>b\u00fcy\u00fck hayaller kurmak i\u00e7in. Zaman l\u00fcks\u00fcm\u00fcz yok, k\u00fc\u00e7\u00fck ad\u0131mlar atma l\u00fcks\u00fcm\u00fcz yok... bunun yerine, b\u00fcy\u00fck s\u0131\u00e7ramalar yapmam\u0131z gerekiyor. Kendimizi ileriye do\u011fru itmeye devam etmeliyiz, \u00f6tesinde <\/i>Nihai hedefimize (ve Emily'nin en b\u00fcy\u00fck dile\u011fine) ula\u015fana kadar ba\u015flang\u0131\u00e7ta m\u00fcmk\u00fcn oldu\u011funu d\u00fc\u015f\u00fcnd\u00fc\u011f\u00fcm\u00fcz \u015fey: KF toplulu\u011funun 100%'si i\u00e7in h\u0131zl\u0131, hayat kurtar\u0131c\u0131 at\u0131l\u0131mlar ve geride kimsenin kalmamas\u0131.<\/strong><\/p>\n

Emily'ye \u015fimdiye kadarki en iyi do\u011fum g\u00fcn\u00fcn\u00fc ya\u015fatal\u0131m, bu y\u0131l bizimle birlikte b\u00fcy\u00fck hayaller kurar m\u0131s\u0131n? <\/span>Emily'nin dile\u011fini ger\u00e7ekle\u015ftirmeye yard\u0131mc\u0131 olun <\/span>39. do\u011fum g\u00fcn\u00fc i\u00e7in $39 dolar ba\u011f\u0131\u015fta bulundu<\/span><\/a>.<\/span><\/p>\n

.EMILY'NI\u0307N 39. YA\u015e G\u00dcN\u00dc I\u0307\u00c7I\u0307N $39 BA\u011eI\u015eTA BULUNUN<\/a><\/strong><\/p>","protected":false},"excerpt":{"rendered":"

By Jessica Rutstein Lazarus, Emily\u2019s Entourage board member and Emily\u2019s lifelong best friend Hi there, Jess here! I\u2019m back again to wish Emily the happiest of birthdays and to share some thoughts as we reflect on the past year, and look ahead to 2024, and Emily\u2019s 39th year. This year we\u2019re thinking about dreams\u2026 On… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1716,"featured_media":20669,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"Happy 39th Birthday to Emily! Will You Dream Big with Us?","_seopress_titles_desc":"By Jessica Rutstein Lazarus, Emily\u2019s Entourage board member and Emily\u2019s lifelong best friend. ","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"both","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[{"_seopress_pro_rich_snippets_type":"none"}],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-20663","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/0B166D56-9602-4227-B90B-7EB2902323F2-scaled.jpeg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/20663","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1716"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=20663"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/20663\/revisions"}],"predecessor-version":[{"id":20676,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/20663\/revisions\/20676"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/20669"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=20663"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=20663"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=20663"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}