{"id":1876,"date":"2014-04-30T14:12:32","date_gmt":"2014-04-30T21:12:32","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=1876"},"modified":"2023-12-20T03:09:41","modified_gmt":"2023-12-20T08:09:41","slug":"may-is-cystic-fibrosis-awareness-month-spread-the-word","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/may-is-cystic-fibrosis-awareness-month-spread-the-word\/","title":{"rendered":"May\u0131s Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131d\u0131r: Haberi Yayal\u0131m"},"content":{"rendered":"

Emily's Entourage, May\u0131s ay\u0131n\u0131n Ulusal KF Fark\u0131ndal\u0131k Ay\u0131 olarak kabul edilmesine kat\u0131lmaktan gurur duymaktad\u0131r. Bu, EE'nin KF toplulu\u011fuyla birlikte \u00e7al\u0131\u015farak bu y\u0131k\u0131c\u0131 hastal\u0131\u011fa ve tedavi ve kontrol yolunda kaydedilen ilerlemeye ulusal d\u00fczeyde dikkat \u00e7ekmesi i\u00e7in harika bir zamand\u0131r.<\/p>\n

T\u00fcm Entourage \u00fcyelerini KF Fark\u0131ndal\u0131k Ay\u0131 \u015ferefine harekete ge\u00e7meye \u00e7a\u011f\u0131r\u0131yoruz.<\/p>\n

\u0130\u015fte burada SEN<\/strong><\/span> yard\u0131m edebilirim:<\/p>\n

KELIMEYI YAYMAK<\/strong><\/p>\n

<\/strong>EE Instagram kampanyas\u0131n\u0131 takip edin ve kampanyaya kat\u0131l\u0131n, EE Facebook Sayfas\u0131 ve Twitter hesaplar\u0131ndan g\u00fcncellemeleri payla\u015f\u0131n. Tek bir t\u0131kla sosyal medya deste\u011finiz Entourage'\u0131n ve tedavi umudunun katlanarak b\u00fcy\u00fcmesine yard\u0131mc\u0131 olur.<\/span><\/p>\n

FACEBOOK PROFI\u0307LI\u0307NI\u0307ZI\u0307 VEYA KAPAK FOTO\u011eRAFINIZI DE\u011eI\u0307\u015eTI\u0307RI\u0307N<\/strong><\/p>\n

H\u0131zl\u0131 bir profil veya kapak foto\u011fraf\u0131 g\u00fcncellemesi, bir tedavi bulma ve bu \u00f6l\u00fcmc\u00fcl hastal\u0131\u011fa son verme hedefimizde EE'nin yan\u0131nda oldu\u011funuzu g\u00f6sterir. Sadece EE Facebook sayfas\u0131na gidin, May\u0131s KF Fark\u0131ndal\u0131k profilini veya kapak foto\u011fraf\u0131n\u0131 indirin ve ard\u0131ndan hesab\u0131n\u0131za y\u00fckleyin. Kapak foto\u011fraf\u0131n\u0131 da a\u015fa\u011f\u0131ya ekledik. FB toplulu\u011funa Entourage'\u0131m\u0131z\u0131n ne kadar b\u00fcy\u00fck oldu\u011funu g\u00f6sterelim!<\/p>\n

CF SAVA\u015e\u00c7ILARIMIZI KUTLUYORUZ<\/strong><\/p>\n

Emily's Entourage, KF'nin sundu\u011fu muazzam zorluklarla ya\u015fayan ve bunlar\u0131n \u00fcstesinden gelen, ayn\u0131 zamanda tatmin edici, ilham verici ve etkileyici hayatlar s\u00fcren yeni bir grup KF Sava\u015f\u00e7\u0131s\u0131n\u0131 tan\u0131tmaktan mutluluk duyuyor. \u00c7ar\u015famba g\u00fcnleri bu payla\u015f\u0131mlar\u0131 izleyin ve KF toplulu\u011funun bu ger\u00e7ekten ilham verici \u00fcyelerini kutlamaya ve ne\u015felendirmeye yard\u0131mc\u0131 olmak i\u00e7in hikayelerini sosyal medya hesaplar\u0131n\u0131zda payla\u015f\u0131n.<\/p>\n

BA\u011eI\u015e YAPMAK<\/strong><\/p>\n

May\u0131s ay\u0131n\u0131n odak noktas\u0131 fark\u0131ndal\u0131k olsa da, bu ay artan g\u00f6r\u00fcn\u00fcrl\u00fck, KF ara\u015ft\u0131rmalar\u0131n\u0131n h\u0131z\u0131n\u0131 art\u0131rmak i\u00e7in fona ihtiyac\u0131m\u0131z oldu\u011funu \u00f6nemli bir \u015fekilde hat\u0131rlat\u0131yor. KF'ye son verme misyonumuzda EE'ye nas\u0131l yard\u0131mc\u0131 olabilece\u011finizi \u00f6\u011frenin\t<\/a> - Emily'yi ve KF'den etkilenen di\u011fer 70.000 ki\u015fiyi kurtarmak i\u00e7in yeni tedaviler ve bir tedavi aray\u0131\u015f\u0131m\u0131z\u0131 desteklemek \u00fczere bu bilgileri a\u011f\u0131n\u0131zda payla\u015f\u0131n.<\/p>\n

Bu ay fark\u0131ndal\u0131\u011f\u0131 te\u015fvik ederek KF'ye kar\u015f\u0131 bir duru\u015f sergilemenin yan\u0131 s\u0131ra, EE'nin bu y\u0131l att\u0131\u011f\u0131 b\u00fcy\u00fck ad\u0131mlar\u0131 ve yakla\u015fmakta olan baz\u0131 son derece heyecan verici \u015feyleri yans\u0131tmaktan memnuniyet duyuyoruz.<\/p>\n

Ge\u00e7ti\u011fimiz y\u0131l, Entourage \u00fcyesi olarak verdi\u011finiz destek sayesinde EE:<\/p>\n