{"id":17460,"date":"2022-10-19T09:48:04","date_gmt":"2022-10-19T13:48:04","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=17460"},"modified":"2023-12-20T05:16:04","modified_gmt":"2023-12-20T10:16:04","slug":"flying-high-at-the-2022-evening-with-emilys-entourage-flight-of-the-monarch-gala","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/flying-high-at-the-2022-evening-with-emilys-entourage-flight-of-the-monarch-gala\/","title":{"rendered":"2022 Evening With Emily's Entourage \"Flight of the Monarch\" Galas\u0131nda Y\u00fcksekten U\u00e7mak"},"content":{"rendered":"

Unutulmayacak bir geceden bahsediyoruz! Emily's Entourage (EE), 13 Ekim 2022 Per\u015fembe g\u00fcn\u00fc Philadelphia'daki The Mann Center for the Performing Arts'ta \"The Flight of the Monarch\" adl\u0131 y\u0131ll\u0131k galam\u0131z\u0131 d\u00fczenledi.<\/span><\/p>\n

Bu y\u0131l\u0131n gala temas\u0131 metamorfoz kavram\u0131ndan esinlenmi\u015ftir. KF toplulu\u011funun son 10%'si i\u00e7in tedavi hatt\u0131nda ve EE'de \u00f6nemli geli\u015fmeler olmu\u015ftur. \u0130lk kez, son 10%'de olanlar i\u00e7in birden fazla tedavi klini\u011fe ilerliyor. Nihayet, d\u00f6n\u00fc\u015ft\u00fcr\u00fcc\u00fc de\u011fi\u015fim kap\u0131m\u0131zda.<\/span><\/p>\n

\"\"<\/p>\n

\"\u015eimdi koza evimizden \u00e7\u0131kma zaman\u0131, kanatlar\u0131m\u0131z\u0131 a\u00e7\u0131p u\u00e7maya haz\u0131r\u0131z\" diye ilan ettik. Ve yer\u00e7ekimine meydan okuyan $975,669 toplayarak U\u00c7TUK!!! B\u00f6ylece kistik fibrozis (KF) hastalar\u0131 i\u00e7in hayat kurtaran at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rmak \u00fczere bug\u00fcne kadar $11 milyondan fazla ba\u011f\u0131\u015f toplad\u0131k!<\/span><\/p>\n

Gece, Philadelphia sil\u00fcetine bakan kapal\u0131 bir \u00e7ad\u0131rda VIP sponsorlar, \u015eampiyonlar ve onur konuklar\u0131 i\u00e7in \u00f6zel bir \u015fampanya kadeh kald\u0131rmayla ba\u015flad\u0131. Konuklar gelmeye devam ettik\u00e7e, ord\u00f6vrler, kelebeklerden ilham alan \u00f6zel kokteyller ve g\u00f6zlerden uzak bir \u00e7ad\u0131r\u0131n g\u00fcvenli\u011finden kat\u0131lan Kramer-Golinkoff ailesinin b\u00fcy\u00fck dalgalar\u0131 ile kar\u015f\u0131land\u0131lar.<\/span><\/p>\n

Resepsiyonun ard\u0131ndan konuklar, d\u00fcnyan\u0131n d\u00f6rt bir yan\u0131ndaki destek\u00e7ilerimiz i\u00e7in canl\u0131 olarak da yay\u0131nlanan program i\u00e7in ikinci bir \u00e7ad\u0131rda topland\u0131. Program, a\u015fa\u011f\u0131daki konular\u0131n anlat\u0131ld\u0131\u011f\u0131 bir video ile ba\u015flad\u0131 <\/span>Emily'nin \u00e7evresinin metamorfozu<\/span><\/a>Kral kelebekleri ile EV aras\u0131nda paralellikler kuruyor.<\/span><\/p>\n

Y\u00f6netim kurulu \u00fcyesi ve EE Kurucu Orta\u011f\u0131 Emily Kramer-Golinkoff'un karde\u015fi Coby Kramer-Golinkoff, gecenin etkinliklerini y\u00f6netti, hem y\u00fcz y\u00fcze hem de sanal kat\u0131l\u0131mc\u0131lar\u0131 kar\u015f\u0131lad\u0131 ve EE'nin KF toplulu\u011fundaki herkesin ya\u015famlar\u0131 boyunca hayat kurtaran at\u0131l\u0131mlar ya\u015famas\u0131n\u0131 sa\u011flamak i\u00e7in yorulmak bilmeden yapt\u0131\u011f\u0131 \u00e7al\u0131\u015fmalar\u0131 payla\u015f\u0131rken gecenin sahnesini haz\u0131rlad\u0131.<\/span><\/p>\n

\"\"<\/p>\n

Sunum Sponsoru Vertex Pharmaceuticals Inc.; R\u00fcya Tak\u0131m Sponsoru cystetic Medicines, Inc.; Bireysel Sunum Sponsorlar\u0131 Jill ve Mark Fishman, Marcia ve Ned Kaplin ve Eli ve Pauline Nierman Aile Vakf\u0131; ve ayni ba\u011f\u0131\u015f\u00e7\u0131lar Harvest Seasonal, Color Reflections ve \u00e7ok daha fazlas\u0131 dahil olmak \u00fczere geceyi m\u00fcmk\u00fcn k\u0131lan t\u00fcm c\u00f6mert sponsorlar, destek\u00e7iler, ayni ba\u011f\u0131\u015f\u00e7\u0131lar ve EE personeli i\u00e7in i\u00e7ten \u015f\u00fckranlar\u0131n\u0131 payla\u015ft\u0131.\u00a0<\/span><\/p>\n

Coby daha sonra bayra\u011f\u0131 EE liderlik ekibi \u00fcyesi ve uzun s\u00fcredir destek\u00e7isi olan Mark Fishman'a devretti. Mark birka\u00e7 kelime payla\u015ft\u0131 ve gecenin onursal ba\u015fkanlar\u0131 Marcia ve Ned Kaplin ile Ivy ve Matthew Solomon'u tan\u0131tarak Kramer-Golinkoff'larla olan ba\u011flant\u0131lar\u0131 ve EE'ye olan ba\u011fl\u0131l\u0131klar\u0131 hakk\u0131nda konu\u015ftu.<\/span><\/p>\n

\"\"<\/p>\n

Ard\u0131ndan, uzun s\u00fcredir y\u00f6netim kurulu \u00fcyesi olan Julie Wertheimer, EE'nin 2022 \u015eampiyonlar\u0131n\u0131, EE'yi acil at\u0131l\u0131mlara do\u011fru ilerletmeye yard\u0131mc\u0131 olacak para toplayan hay\u0131rsever liderleri tan\u0131mak i\u00e7in sahneye \u00e7\u0131kt\u0131. Bu y\u0131lki grup 21 ki\u015fiden olu\u015fuyordu ve toplamda <\/span>$36,000<\/b> - EE \u015eampiyonlar\u0131 i\u00e7in t\u00fcm zamanlar\u0131n rekoru! Daha sonra Coby'yi sahneye davet ederek $15,400!!! ba\u011f\u0131\u015f toplayan Y\u0131l\u0131n \u015eampiyonu Team Seeking a Cure'u a\u00e7\u0131klad\u0131.<\/span><\/p>\n

Konuklar daha sonra, Entourage'\u0131m\u0131z\u0131n hala at\u0131l\u0131mlar\u0131n\u0131 bekleyen son 10% \u00fczerindeki etkisini canl\u0131 bir \u015fekilde yans\u0131tan EE'nin 2022 kampanya videosunun \u00f6zel ve erken bir \u00f6n izlemesinin keyfini \u00e7\u0131kard\u0131lar. <\/span>Video Aral\u0131k ay\u0131nda kamuoyuna sunulacak!<\/span><\/p>\n

EE Kurucu Orta\u011f\u0131 Emily Kramer-Golinkoff, videonun ard\u0131ndan merakla beklenen konu\u015fmas\u0131n\u0131 yapt\u0131 ve akci\u011fer fonksiyonlar\u0131 30'lu ya\u015flar\u0131n ortas\u0131nda ve alt\u0131nda seyreden ileri evre KF ile ya\u015faman\u0131n nas\u0131l bir \u015fey oldu\u011funu ve s\u00fcrekli bir \"hayatta kalma modu\" i\u00e7inde ya\u015faman\u0131n hayat\u0131 \u00fczerindeki etkilerini payla\u015ft\u0131. Son 14 y\u0131l kay\u0131plarla dolu olsa da, hayatta kalmaya odaklanmas\u0131 da etkili olmu\u015f ve nihayetinde EE'nin olu\u015fumunu te\u015fvik etmi\u015ftir. Elde etti\u011fimiz inan\u0131lmaz ilerlemeyi payla\u015farak t\u00fcm destek\u00e7ilerimize te\u015fekk\u00fcrlerini iletti.<\/span><\/p>\n

\"\"<\/p>\n

\n

Umutsuzlu\u011fa kap\u0131ld\u0131k, kendimizi bilime verdik ve ara\u015ft\u0131rmalara yat\u0131r\u0131m yapmaya ba\u015flad\u0131k. Bir\u00e7ok tohum serptik, bir\u00e7ok farkl\u0131 ara\u015ft\u0131rma projesine yat\u0131r\u0131m yapt\u0131k... O ilk g\u00fcnlerden bu yana, d\u00fc\u015f\u00fcnceli ama istekli bir \u015fekilde serpilen tohumlar yeralt\u0131nda b\u00fcy\u00fcmeye devam ediyor. Her tohum filizlenmedi ama baz\u0131lar\u0131 filizlendi, derin k\u00f6kler sald\u0131... Ve bug\u00fcn o tohumlar meyve vermeye ba\u015flad\u0131. - Emily Kramer-Golinkoff<\/span><\/p>\n<\/blockquote>\n

Coby sahneye cesur bir hedefle d\u00f6nd\u00fc: be\u015f dakika i\u00e7inde $50.000 toplamak! Geri say\u0131m ba\u015flad\u0131 ve konuklar tam da s\u00fcrpriz bir e\u015fle\u015fme a\u00e7\u0131kland\u0131\u011f\u0131 s\u0131rada ba\u011f\u0131\u015f yapmak i\u00e7in telefonlar\u0131n\u0131 \u00e7\u0131kard\u0131lar! \u0130simsiz bir ba\u011f\u0131\u015f\u00e7\u0131 $25,000'e kadar e\u015fle\u015ftirme yapaca\u011f\u0131n\u0131 payla\u015ft\u0131. Dakikalar sonra $10,000 ba\u011f\u0131\u015f geldi. Termometre y\u00fckselip hedefi a\u015farak $55,068'e ula\u015ft\u0131\u011f\u0131nda heyecan doruktayd\u0131!!!<\/span><\/p>\n

Gece, bir m\u00fcjde korosunun sahneye \u00e7\u0131kmas\u0131 ve herkesin ger\u00e7ekle\u015ftirilmesine yard\u0131mc\u0131 olduklar\u0131 ger\u00e7ekten d\u00f6n\u00fc\u015ft\u00fcr\u00fcc\u00fc de\u011fi\u015fimi kutlamas\u0131yla bir umut ve (kelebek \u015feklindeki) konfeti patlamas\u0131yla sona erdi. \u015eimdi bizim zaman\u0131m\u0131z. Bu bizim an\u0131m\u0131z. Biz. Yap\u0131yoruz. Yap\u0131yoruz. Bunu!!!\u00a0<\/span><\/p>\n

\"\"<\/p>\n

Program\u0131n tamam\u0131n\u0131 buradan g\u00f6r\u00fcnt\u00fcleyebilirsiniz<\/span><\/a> ve foto\u011fraf i\u0307stasyonundan t\u00fcm foto\u011fraflara buradan g\u00f6z atin<\/a>.<\/p>\n

10% FINALI I\u00c7IN I\u015eI BITIRMEMIZE YARDIM EDIN<\/b><\/p>\n

    \n
  1. Vergiden d\u00fc\u015f\u00fclebilir bir ba\u011f\u0131\u015f yap\u0131n <\/b>Emily's Entourage'a.<\/span> Ba\u011f\u0131\u015f yapmak i\u00e7in buraya t\u0131klay\u0131n.<\/span><\/a><\/li>\n
  2. Arkada\u015flar\u0131n\u0131za bizden bahsedin! <\/b>Onlar\u0131 te\u015fvik edin <\/span>e-posta g\u00fcncellemelerimiz i\u00e7in kaydolun<\/span><\/a> ve takip edin <\/span>Facebook<\/span><\/a>, <\/span>Instagram<\/span>, <\/span>LinkedIn<\/span><\/a>ve <\/span>Twitter<\/span><\/a>B\u00f6ylece 2022 kampanya videomuzun halka a\u00e7\u0131k ilk g\u00f6sterimini ilk onlar g\u00f6recek!!!<\/span><\/li>\n<\/ol>\n

    Emily's Entourage, galay\u0131 m\u00fcmk\u00fcn k\u0131lan Entourage'\u0131n her bir \u00fcyesine te\u015fekk\u00fcr etmek ister. \u0130ster ba\u015f\u0131ndan beri bizimle olun, ister bu galada bize ilk kez kat\u0131l\u0131n, deste\u011finiz son 10% i\u00e7in at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rmaya y\u00f6nelik yorulmak bilmez aray\u0131\u015f\u0131m\u0131zda bize g\u00fc\u00e7 veriyor. Sayenizde, hepimizin, 100%'nin nihayet daha rahat nefes alabilece\u011fi ve \u00f6zg\u00fcrce u\u00e7abilece\u011fi bir gelece\u011fe bir ad\u0131m daha yakla\u015ft\u0131k.<\/span><\/i><\/p>","protected":false},"excerpt":{"rendered":"

    Talk about a night to remember! On Thursday, Oct. 13, 2022, Emily\u2019s Entourage (EE) held our annual Evening with Emily\u2019s Entourage gala, \u201cThe Flight of the Monarch,\u201d at The Mann Center for the Performing Arts in Philadelphia. This year\u2019s gala theme was inspired by the concept of metamorphosis. There have been profound developments in the… <\/p>\n

    <\/div>\n

    Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1281,"featured_media":17472,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"Flying High at the 2022 Evening With Emily\u2019s Entourage \u201cFlight of the Monarch\u201d Gala","_seopress_titles_desc":"Talk about a night to remember! On Thursday, Oct. 13, 2022, Emily\u2019s Entourage (EE) held our annual Evening with Emily\u2019s Entourage gala, \u201cThe Flight of the Monarch,\u201d at The Mann Center for the Performing Arts in Philadelphia.","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-17460","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EmilysEntourage-11-scaled.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/17460","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=17460"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/17460\/revisions"}],"predecessor-version":[{"id":20539,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/17460\/revisions\/20539"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/17472"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=17460"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=17460"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=17460"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}