{"id":1700,"date":"2013-11-20T15:55:33","date_gmt":"2013-11-20T22:55:33","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=1700"},"modified":"2013-11-20T15:55:33","modified_gmt":"2013-11-20T22:55:33","slug":"eextraordinary-donors-why-i-support-emilys-entourage-3","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/eextraordinary-donors-why-i-support-emilys-entourage-3\/","title":{"rendered":"#GivingTuesday'i EE ile birlikte kutlay\u0131n!"},"content":{"rendered":"<p><em>Emily's Entourage en c\u00f6mert, d\u00fc\u015f\u00fcnceli ve kendini adam\u0131\u015f ba\u011f\u0131\u015f\u00e7\u0131lara sahip! Minnettarl\u0131\u011f\u0131m\u0131z\u0131 g\u00f6stermek i\u00e7in, spot \u0131\u015f\u0131klar\u0131n\u0131 S\u0130ZE, inan\u0131lmaz Entourage \u00fcyelerine \u00e7evirmek istiyoruz. EExtraordinary Donors adl\u0131 bu blog serisinde, harika ba\u011f\u0131\u015f\u00e7\u0131lar\u0131m\u0131z\u0131 Emily's Entourage'\u0131 ve Kistik Fibrozis'i tedavi etme m\u00fccadelesini desteklemeye iten \u015feyin ne oldu\u011funu \u00f6\u011freniyoruz.<\/em><\/p>\n<p><strong>S\u0131ra D\u0131\u015f\u0131 Ba\u011f\u0131\u015f\u00e7\u0131 \"Bala Cynwyd, PA'dan Fern\" ile tan\u0131\u015f\u0131n.<\/strong><\/p>\n<p><strong>Emily's Entourage ile ba\u011flant\u0131n\u0131z nedir?<\/strong><br \/>\nPenn Medicine'da Pazarlama Departman\u0131nda bir meslekta\u015f olarak Emily ile \u00e7al\u0131\u015fma zevkine eri\u015ftim. \u0130lgi alan\u0131 olan sosyal medya pazarlamas\u0131 ve hayat\u0131ndaki zek\u00e2s\u0131, bilgisi, uzmanl\u0131\u011f\u0131 ve bilgeli\u011fiyle beni d\u00fczenli olarak \u015fa\u015f\u0131rt\u0131yor. Emily benim i\u00e7in b\u00fcy\u00fck bir ilham kayna\u011f\u0131.<\/p>\n<p><strong>Emily's Entourage'a neden ba\u011f\u0131\u015f yap\u0131yorsunuz?<\/strong><br \/>\nEmily ile yak\u0131ndan \u00e7al\u0131\u015f\u0131rken, sa\u011fl\u0131kl\u0131 kalmak i\u00e7in ne kadar \u00e7ok \u00e7al\u0131\u015ft\u0131\u011f\u0131n\u0131 ve hayat\u0131n \"normal\" faaliyetlerine ba\u015flamak ve devam etmek i\u00e7in neler gerekti\u011fini g\u00f6zlemledim. Emily bana hayata kar\u015f\u0131 bir bak\u0131\u015f a\u00e7\u0131s\u0131na sahip olmay\u0131 ve hi\u00e7bir \u015feyi hafife almamay\u0131 \u00f6\u011fretti. Her nefes bir arma\u011fand\u0131r ve hayat\u0131n\u0131 s\u00fcrd\u00fcrme bi\u00e7imi, inand\u0131\u011f\u0131 \u015feylere olan ba\u011fl\u0131l\u0131\u011f\u0131n\u0131n ve adanm\u0131\u015fl\u0131\u011f\u0131n\u0131n harika bir \u00f6rne\u011fidir. Yans\u0131tt\u0131\u011f\u0131 parlayan \u0131\u015f\u0131\u011fa dayanarak \u00e7ekti\u011fi sevgi, verdi\u011fim sebeptir. Emily, KF'den etkilenen pek \u00e7ok gen\u00e7 insandan sadece biri. Tedaviye ula\u015fmak i\u00e7in hepimiz \u00fczerimize d\u00fc\u015feni yapmal\u0131y\u0131z.<\/p>\n<p><strong>Hediyenizin nas\u0131l bir etkisi olmas\u0131n\u0131 umuyorsunuz?<\/strong><br \/>\nARA\u015eTIRMA I\u00c7IN FINANSMAN. Bilimin her alan\u0131nda fonlar azal\u0131yor. KF'yi iyile\u015ftirmenin yan\u0131 s\u0131ra Emily ve onun gibi di\u011ferlerinin ya\u015fam s\u00fcresini uzatmak ve ya\u015fam kalitesi sa\u011flamak i\u00e7in tek umudumuz, ara\u015ft\u0131rmalar\u0131 klinik bak\u0131m hizmetleriyle uyumlu hale getirmektir. Laboratuvarda \"tezgahta\" olanlar, KF'li hastan\u0131n yata\u011f\u0131n\u0131n ba\u015f\u0131nda olanlarla kritik bir \u015fekilde uyumludur. Emily ve t\u00fcm KF hastalar\u0131n\u0131n ya\u015fam kalitesini uzatmak ve art\u0131rmak i\u00e7in bir tedavi ve tedaviler bulmaya \u00e7ok yak\u0131n olan ara\u015ft\u0131rmalar\u0131 ve parlak ara\u015ft\u0131rmac\u0131lar\u0131 finanse etmeliyiz.<\/p>\n<p><em>Muhte\u015fem EE ba\u011f\u0131\u015f\u00e7\u0131lar\u0131m\u0131zdan ve dostlar\u0131m\u0131zdan biri oldu\u011funuz i\u00e7in te\u015fekk\u00fcrler Fern!<\/em><\/p>\n<p>\u015eimdi de size \u0131\u015f\u0131k tutmak istiyoruz! Emily's Entourage'\u0131 neden destekledi\u011finizi a\u015fa\u011f\u0131daki formu doldurarak bize bildirin\u00a0<a title=\"bu h\u0131zl\u0131 anket\" href=\"http:\/\/https:\/\/docs.google.com\/spreadsheet\/viewform?formkey=dEF1M1BmeUpIOGd0QnJKSVFtY2FUcmc6MQ#gid=0\">bu h\u0131zl\u0131 anket.<\/a>\u00a0Te\u015fekk\u00fcr ederim!<\/p>","protected":false},"excerpt":{"rendered":"<p>Emily\u2019s Entourage has the most generous, thoughtful and dedicated donors! To show our gratitude, we want to shine the spotlight on YOU, the incredible entourage members. In this blog series, called EExtraordinary Donors, we learn what drives our wonderful donors to support Emily\u2019s Entourage and the fight to cure Cystic Fibrosis. Meet EExtraordinary Donor, \u201cFern&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/eextraordinary-donors-why-i-support-emilys-entourage-3\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-1700","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/1700","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=1700"}],"version-history":[{"count":4,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/1700\/revisions"}],"predecessor-version":[{"id":1704,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/1700\/revisions\/1704"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=1700"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=1700"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=1700"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}