{"id":16839,"date":"2022-05-24T08:00:45","date_gmt":"2022-05-24T12:00:45","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=16839"},"modified":"2024-03-08T11:16:06","modified_gmt":"2024-03-08T16:16:06","slug":"battling-two-deadly-diseases-my-crusade-to-lower-the-colon-cancer-screening-age","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/battling-two-deadly-diseases-my-crusade-to-lower-the-colon-cancer-screening-age\/","title":{"rendered":"\u0130ki \u00d6l\u00fcmc\u00fcl Hastal\u0131kla M\u00fccadele: Kolon Kanseri Tarama Ya\u015f\u0131n\u0131 D\u00fc\u015f\u00fcrmek \u0130\u00e7in Verdi\u011fim M\u00fccadele"},"content":{"rendered":"

Emily's Entourage, KF Fark\u0131ndal\u0131k Ay\u0131 boyunca kistik fibrozis (KF) toplulu\u011fu \u00fcyelerini hikayelerini payla\u015fmaya davet ediyor. Bug\u00fcnk\u00fc blog yaz\u0131s\u0131 KF'li bir yeti\u015fkin olan Anna Payne'e ait.<\/span><\/i><\/p>\n

Kistik fibrozis (KF) ile ya\u015fayan insanlar\u0131n kolon kanserine yakalanma olas\u0131l\u0131\u011f\u0131n\u0131n 5-10 kat daha fazla oldu\u011funu biliyor muydunuz? Evet, ben de bilmiyordum - ta ki bana 4. evre kolon kanseri te\u015fhisi konulana kadar. Bu kadar \u00fczg\u00fcn olmam\u0131n nedenlerinden biri de bu.\u00a0<\/span><\/p>\n

Bir \u00f6l\u00fcmc\u00fcl hastal\u0131kla sava\u015fmak yetmezmi\u015f gibi \u015fimdi iki hastal\u0131kla birden sava\u015f\u0131yorum. KF ve kolon kanseri v\u00fccuduma kar\u015f\u0131 ac\u0131mas\u0131zca, birlikte ve hi\u00e7 ara vermeden sald\u0131r\u0131yor. Daha \u00f6nce bilmedi\u011fim bir \u015feyi \u015fimdi bilmek beni \u00e7ileden \u00e7\u0131kar\u0131yor: Erken kolon kanseri taramas\u0131yla bu sonu\u00e7 kolayca \u00f6nlenebilirdi.<\/span><\/p>\n

Bana kolon kanseri te\u015fhisi konuldu\u011funda 34 ya\u015f\u0131ndayd\u0131m (\u015fu anda 35 ya\u015f\u0131nday\u0131m). \u015eu anda KF'li ki\u015filer i\u00e7in standart \u00f6neri, ilk kolonoskopilerini 40 ya\u015f\u0131nda yapt\u0131rmalar\u0131d\u0131r. Aile ge\u00e7mi\u015fim ve kolon kanserine i\u015faret eden genetik belirte\u00e7lerim yoktu, bu nedenle KF tavsiyelerine uymay\u0131 ve 40 ya\u015f\u0131ma geldi\u011fimde tarama yapt\u0131rmay\u0131 planlad\u0131m.\u00a0<\/span><\/p>\n

Kolon kanserinin en \u00f6nlenebilir kanserlerden biri olmas\u0131 sinir bozucu. <\/span>Yeterince erken yakalan\u0131rsa.<\/span><\/i>\u00a0Ge\u00e7 yakalarsan\u0131z, en \u00f6l\u00fcmc\u00fcl ikinci kansere d\u00f6n\u00fc\u015f\u00fcr. Art\u0131k hayat\u0131n\u0131z i\u00e7in sava\u015f\u0131yorsunuz.\u00a0<\/span><\/p>\n

\"\"<\/p>\n

Kolon kanserinin g\u00f6lgelerde saklanmas\u0131n\u0131n bir faydas\u0131 yoktur. Genellikle \u00e7ok az belirti g\u00f6steren ya da hi\u00e7 belirti g\u00f6stermeyen sessiz bir kanser olarak ortaya \u00e7\u0131kar. KF'li bir ki\u015fide semptomlar varsa, bunlar genellikle KF semptomlar\u0131n\u0131 taklit eder. Talihsiz ger\u00e7ek \u015fu ki, KF'li bir ki\u015fide kolon kanserini tarama yapmadan tespit etmek neredeyse imkans\u0131zd\u0131r.\u00a0<\/span><\/p>\n

\u015eu anda etrafta kolon kanseri olup da bunu bilmeyen ka\u00e7 ki\u015fi var? Bu sadece korkutucu de\u011fil, ayn\u0131 zamanda vicdans\u0131zca - \u00e7\u00fcnk\u00fc bu \u015fekilde olmak zorunda de\u011fil.\u00a0<\/span><\/p><\/blockquote>\n

Benim hikayem bir bo\u015flu\u011fu, sistemin bir ba\u015far\u0131s\u0131zl\u0131\u011f\u0131n\u0131 ortaya koyuyor. Ke\u015fke nadir bir istisna oldu\u011fumu iddia edebilseydim, ancak hem veriler hem de anekdotal kan\u0131tlar bana yaln\u0131z olmad\u0131\u011f\u0131m\u0131 s\u00f6yl\u00fcyor. K\u0131sa bir s\u00fcre \u00f6nce 26 ya\u015f\u0131nda KF'li bir gencin kolon kanserinden vefat etti\u011fini \u00f6\u011frendim. Benzer \u015fekilde \u00e7ok ge\u00e7 tespit edilen kolon kanseri nedeniyle daha da gen\u00e7 ya\u015flarda vefat eden bir\u00e7ok KF'li ki\u015finin hikayesini duydum. Bu anlams\u0131z bir trajedi.<\/span><\/p>\n

KF'li 26 ya\u015f\u0131nda ve 4. evre kolon kanseri olan bir ki\u015finin yan\u0131 s\u0131ra 2018'de vefat eden yirmili ya\u015flar\u0131n\u0131n ba\u015f\u0131ndaki ba\u015fka bir kad\u0131n\u0131 \u00f6\u011frendikten sonra, nakil durumundan ba\u011f\u0131ms\u0131z olarak KF hastalar\u0131 i\u00e7in kolon kanseri taramas\u0131 \u00f6nerisinin mevcut 40 ya\u015f\u0131ndan a\u015fa\u011f\u0131 \u00e7ekilmesi gerekti\u011fine inan\u0131yorum.\u00a0<\/span><\/p>\n

Bir dahaki sefere doktora gitti\u011finizde, doktorunuzdan kolon kanseri taramas\u0131 yapmas\u0131n\u0131 istemenizi tavsiye ediyorum. Sadece istemekle kalmay\u0131n, \u0131srar edin. Biliyorum, biliyorum, bu y\u00fck\u00fc KF hastalar\u0131na y\u00fcklemek pek adil ya da s\u00fcrd\u00fcr\u00fclebilir de\u011fil, ancak bu art\u0131k hayat kurtarabilecek bir uygulama. Doktorunuz kar\u015f\u0131 \u00e7\u0131kabilir ama hay\u0131r cevab\u0131n\u0131 kabul etmeyin. Sesinizi y\u00fckseltin! Bu konu\u015fmalar\u0131n KF'li her bir ki\u015fi ile doktoru aras\u0131nda y\u00fcz y\u00fcze yap\u0131lmas\u0131 gerekir. Tarama i\u00e7in ne kadar \u00e7ok ki\u015fi bast\u0131r\u0131r ve sesimizin duyulmas\u0131n\u0131 talep edersek, genel tavsiyelerin de\u011fi\u015fme \u015fans\u0131 o kadar artar.\u00a0<\/span><\/p>\n

Bu kula\u011fa \u00e7ok k\u00fc\u00e7\u00fck ve a\u015famal\u0131 geliyorsa, hakl\u0131s\u0131n\u0131z. Ama d\u00fcnya b\u00f6yle de\u011fi\u015fiyor.<\/span><\/p>\n

\"\"<\/p>\n

KF doktorlar\u0131 ve bak\u0131m merkezleri, KF hastalar\u0131n\u0131n ne zaman kolon kanseri taramas\u0131ndan ge\u00e7irilece\u011fini belirlemek i\u00e7in t\u0131p uzmanlar\u0131 ve d\u00fczenleyici kurumlar taraf\u0131ndan belirlenen k\u0131lavuzlar\u0131 kullanmaktad\u0131r. Ve bu k\u0131lavuzlara ra\u011fmen, t\u00fcm KF doktorlar\u0131 hastalar\u0131 aras\u0131nda iyi bilinen y\u00fcksek GI kanseri riskinin fark\u0131nda de\u011fildir. Yeni k\u0131lavuz, 40 ya\u015f\u0131n alt\u0131ndaysan\u0131z sigorta \u015firketlerinin tarama i\u00e7in \u00f6deme yapaca\u011f\u0131 anlam\u0131na da gelebilir.\u00a0<\/span><\/p>\n

Erken tarama, aksi takdirde gizli kalacak bir kanserin erken te\u015fhisi anlam\u0131na gelir. Erken te\u015fhis, kanseri daha erken evrelerde bulmak anlam\u0131na gelir ve bu da etkili tedavi ve hatta k\u00fcr olas\u0131l\u0131\u011f\u0131n\u0131 \u00f6nemli \u00f6l\u00e7\u00fcde art\u0131r\u0131r. Tedaviler ve k\u00fcrler hayat kurtarmak anlam\u0131na gelir, \u00f6nemli olan hayatlar. Benimki gibi hayatlar.\u00a0<\/span><\/p>\n

Sadece kendim i\u00e7in savunmuyorum. Kolon kanserimi m\u00fcmk\u00fcn olan en son evrede bulduk. \u015eimdi iki \u00f6l\u00fcmc\u00fcl hastal\u0131kla m\u00fccadele edece\u011fim ve her \u015feye ra\u011fmen kazanmaya \u00e7al\u0131\u015faca\u011f\u0131m. Bu benim hikayem, ama sizin hikayeniz olmak zorunda de\u011fil. Birlikte, KF'li t\u00fcm yeti\u015fkinler i\u00e7in fark\u0131ndal\u0131\u011f\u0131 art\u0131rarak ve erken kolon kanseri taramalar\u0131 yaparak b\u00f6yle olmamas\u0131n\u0131 sa\u011flayabiliriz.<\/span><\/p>\n

ANNA'DAN MART 2024 I\u0307TI\u0307BARI\u0307YLE G\u00dcNCELLEME<\/strong>: Neredeyse \u00fc\u00e7 y\u0131l sonra hala burada oldu\u011fum i\u00e7in \u015fansl\u0131y\u0131m. Hala iki haftada bir kemoterapiye gidiyorum ve \u00fc\u00e7 ayda bir tarama yapt\u0131r\u0131yorum, ancak KF'nin ya da benim takt\u0131\u011f\u0131m isimle \"Kancer \"in beni hayallerimin pe\u015finden gitmekten al\u0131koymas\u0131na izin vermeyece\u011fime karar verdim.<\/p>\n

\"\"<\/p>\n

KF Fark\u0131ndal\u0131k Ay\u0131 kampanyam\u0131z\u0131n 1. kademe sponsorlu\u011fu i\u00e7in Vertex Pharmaceuticals, Inc. \u015firketine \u00f6zel olarak te\u015fekk\u00fcr ederiz.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

During CF Awareness Month, Emily\u2019s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today\u2019s blog post is by Anna Payne, an adult with CF. Did you know people living with cystic fibrosis (CF) are 5-10 times more likely to get colon cancer? Yeah, neither did I \u2014 until I was… <\/p>\n

<\/div>\n

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