{"id":16424,"date":"2021-11-23T09:57:28","date_gmt":"2021-11-23T14:57:28","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?page_id=16424"},"modified":"2023-12-20T05:16:13","modified_gmt":"2023-12-20T10:16:13","slug":"emilys-entourage-hosts-10th-annual-evening-with-emilys-entourage-drive-in-gala","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/emilys-entourage-hosts-10th-annual-evening-with-emilys-entourage-drive-in-gala\/","title":{"rendered":"Emily's Entourage, 10 Y\u0131ll\u0131k Etkisini ve Toplanan Yakla\u015f\u0131k $10 Milyonu Kutlayan \"10'un G\u00fcc\u00fc\" Adl\u0131 10. Y\u0131ll\u0131k Evening With Emily's Entourage Arabal\u0131 Galas\u0131na Ev Sahipli\u011fi Yap\u0131yor"},"content":{"rendered":"

Pennsylvania merkezli kar amac\u0131 g\u00fctmeyen kurulu\u015f, kistik fibrozisin nonsense mutasyonlar\u0131na sahip ki\u015filer i\u00e7in at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rmak amac\u0131yla 22 ara\u015ft\u0131rma hibesini finanse etti ve $37,6+ milyon devam fonu sa\u011flad\u0131<\/i><\/strong><\/em><\/h3>\n

A\u015fa\u011f\u0131 Merion, PA<\/span> - Kistik fibrozisin (KF) sa\u00e7ma mutasyonlar\u0131na y\u00f6nelik yeni tedaviler ve tedavi ara\u015ft\u0131rmalar\u0131n\u0131 h\u0131zland\u0131ran yenilik\u00e7i bir 501(c)3 vakf\u0131 olan Emily's Entourage<\/span> Emily's Entourage ile 10. Geleneksel Ak\u015fam\u0131<\/span> \"The Power of 10\" adl\u0131 arabal\u0131 gala 4 Aral\u0131k 2021 Cumartesi g\u00fcn\u00fc saat 20:00'de Adath Israel, 250 North Highland Avenue, Merion Station, PA adresinde ger\u00e7ekle\u015ftirilecektir.<\/span><\/p>\n

Geleneksel olarak resmi bir gala olan etkinlik, bu y\u0131l konuklar\u0131n heyecan verici ve benzersiz bir y\u0131ld\u00f6n\u00fcm\u00fc kutlamas\u0131 i\u00e7in g\u00fcvenli bir \u015fekilde sosyalle\u015fmelerine olanak tan\u0131yan yeni bir arabal\u0131 formata b\u00fcr\u00fcnecek. Etkinlik, Meta Operasyon Direkt\u00f6r\u00fc Sheryl Sandberg'in \u00f6zel mesaj\u0131yla ba\u015flayacak, ard\u0131ndan canl\u0131 e\u011flence ve Emily's Entourage'\u0131n kurucu orta\u011f\u0131 Emily Kramer-Golinkoff'un merakla beklenen a\u00e7\u0131klamalar\u0131 yer alacak. Sinema salonu tarz\u0131 ikramlar sunulacakt\u0131r.\u00a0<\/span><\/p>\n

Emily's Entourage, kuruldu\u011fu 2011 y\u0131l\u0131ndan bu yana 22 ara\u015ft\u0131rma hibesini finanse etmi\u015f, $37,6+ milyon devam fonu sa\u011flam\u0131\u015f, klinik deneylere kat\u0131l\u0131m\u0131 h\u0131zland\u0131rmak i\u00e7in sa\u00e7ma bir mutasyon hasta kayd\u0131 ve klinik deney e\u015fle\u015ftirme program\u0131 olu\u015fturmu\u015f ve Spirovant (eski ad\u0131yla Talee Bio) ad\u0131nda bir KF gen terapisi \u015firketi kurmu\u015ftur.<\/span><\/p>\n

Kramer-Golinkoff, \"Emily's Entourage, de\u011fi\u015fimin daha iyi bir gelecek hayal eden ve bu gelece\u011fin kendilerine ba\u011fl\u0131 oldu\u011funa inanma cesaretini g\u00f6steren bir ki\u015fiyle, bir toplulukla ba\u015flad\u0131\u011f\u0131n\u0131n kan\u0131t\u0131d\u0131r - \u00e7\u00fcnk\u00fc \u00f6yledir\" dedi. \"2011 y\u0131l\u0131nda Emily's Entourage'\u0131 oturma odam\u0131z\u0131n zemininde hayal ederken, bug\u00fcn kendimizi nerede buldu\u011fumuzu asla hayal edemezdik. T\u00fcm zorluklara ra\u011fmen, \u015fu anda mevcut mutasyon hedefli tedavilerden yararlanamayan kistik fibrozis toplulu\u011funun son 10%'si i\u00e7in hayat kurtar\u0131c\u0131 ara\u015ft\u0131rma ve ila\u00e7 geli\u015ftirmeyi h\u0131zland\u0131rarak d\u00fcnya \u00e7ap\u0131nda bir lider haline geldik.\"<\/span><\/p>\n

Evening with Emily's Entourage arabal\u0131 galas\u0131, \"Presenting\" sponsoru Vertex Pharmaceuticals Inc.; \"Amethyst\" sponsoru Viatris; ve \"Violet\" sponsorlar\u0131 AbbVie, Boehringer Ingelheim Pharmaceuticals, Inc., Enterprise Therapeutics Ltd, Spirovant Sciences ve Translate Bio, A Sanofi Company; ve di\u011ferleri taraf\u0131ndan m\u00fcmk\u00fcn k\u0131l\u0131nm\u0131\u015ft\u0131r. Lorri ve Ted Bernstein onursal e\u015f ba\u015fkanlar olarak kabul edilecektir.\u00a0<\/span><\/p>\n

Bu y\u0131lki etkinlikte toplanan fonlar, Emily's Entourage'\u0131n, nadir g\u00f6r\u00fclen nonsense mutasyonlar\u0131na sahip olanlar da dahil olmak \u00fczere KF toplulu\u011funun son 10%'si i\u00e7in hayat kurtar\u0131c\u0131 yeni tedavileri ve bir tedaviyi h\u0131zland\u0131rmaya y\u00f6nelik tekil misyonunu desteklemektedir.\u00a0<\/span><\/p>\n

Daha fazla bilgi almak, bilet ve sponsorluk sat\u0131n almak i\u00e7in l\u00fctfen \u015fu adresi ziyaret edin <\/span>www.emilysentourage.org\/phillygala21<\/span><\/a>.\u00a0<\/span><\/p>\n

###<\/span><\/p>\n

Emily'nin \u00c7evresi Hakk\u0131nda<\/b>
\nEmily's Entourage, \u00f6ncelikle akci\u011ferleri ve sindirim sistemini etkileyen \u00f6l\u00fcmc\u00fcl bir genetik hastal\u0131k olan kistik fibrozun sa\u00e7ma mutasyonlar\u0131 i\u00e7in yeni tedaviler ve bir tedavi i\u00e7in ara\u015ft\u0131rmalar\u0131 h\u0131zland\u0131ran yenilik\u00e7i bir 501(c)3 vakf\u0131d\u0131r. Emily's Entourage, 2011 y\u0131l\u0131ndan bu yana milyonlarca dolarl\u0131k ara\u015ft\u0131rma hibesi vermi\u015f, b\u00fcy\u00fck bir ila\u00e7 \u015firketi taraf\u0131ndan sat\u0131n al\u0131nan bir KF gen terapisi \u015firketi kurmu\u015f ve d\u00fcnya \u00e7ap\u0131nda y\u00fcksek etkili ara\u015ft\u0131rma ve ila\u00e7 geli\u015ftirme \u00e7abalar\u0131na \u00f6nc\u00fcl\u00fck etmi\u015ftir. Kurulu\u015f, New York Times, STAT, CNN, People ve daha fazlas\u0131 dahil olmak \u00fczere ulusal medyada yer ald\u0131. Daha fazla bilgi i\u00e7in <\/span>emilysentourage.org<\/span><\/a>.\u00a0<\/span><\/p>\n

Medya \u0130leti\u015fim<\/b>
\nAshling Knight<\/span>
\nPazarlama ve \u0130leti\u015fim Direkt\u00f6r\u00fc<\/span>
\nEmily'nin \u00c7evresi<\/span>
\nashling@emilysentourage.org<\/span><\/a>\u00a0<\/span><\/p>","protected":false},"excerpt":{"rendered":"

Pennsylvania-based nonprofit has funded 22 research grants and secured $37.6+ million in follow-on funding to speed breakthroughs for people with nonsense mutations of cystic fibrosis Lower Merion, PA \u2014 Emily\u2019s Entourage, an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for nonsense mutations of cystic fibrosis (CF), will host its 10th… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1281,"featured_media":16426,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"","_seopress_titles_title":"Emily\u2019s Entourage Hosts 10th Annual Evening With Emily\u2019s Entourage Drive-in Gala, \u201cThe Power of 10,\u201d Celebrating 10 Years of Impact and Nearly $10 Million Raised","_seopress_titles_desc":"Pennsylvania-based nonprofit has funded 22 research grants and secured $37.6+ million in follow-on funding to speed breakthroughs for people with nonsense mutations of cystic fibrosis","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[178],"tags":[],"class_list":["post-16424","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-press-releases"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/Emilys-Entourage-Logo_Website-Featured-Image.png","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/16424","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=16424"}],"version-history":[{"count":4,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/16424\/revisions"}],"predecessor-version":[{"id":20540,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/16424\/revisions\/20540"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/16426"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=16424"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=16424"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=16424"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}