{"id":16408,"date":"2021-11-22T17:20:44","date_gmt":"2021-11-22T22:20:44","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=16408"},"modified":"2023-12-20T01:36:22","modified_gmt":"2023-12-20T06:36:22","slug":"i-allowed-myself-to-be-vulnerable-and-was-humbled-by-my-communitys-immense-response","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/i-allowed-myself-to-be-vulnerable-and-was-humbled-by-my-communitys-immense-response\/","title":{"rendered":"Kendime K\u0131r\u0131lgan Olma \u0130zni Verdim ve Toplulu\u011fumun Yo\u011fun Tepkisi Kar\u015f\u0131s\u0131nda Al\u00e7akg\u00f6n\u00fcll\u00fc Davrand\u0131m\u00a0"},"content":{"rendered":"

Jennie taraf\u0131ndan, kistik fibrozisli bir \u00e7ocu\u011fun annesi<\/span><\/i><\/p>\n

\u015e\u00fckran G\u00fcn\u00fc'ne girerken, \u00e7ok ihtiyac\u0131m olan rahatlamay\u0131 ve ailemle kaliteli zaman ge\u00e7irmeyi d\u00f6rt g\u00f6zle bekliyorum. Ancak, 6 ya\u015f\u0131nda kistik fibrozis (KF) hastas\u0131 bir k\u0131z\u0131n ebeveyni olarak, bu zaman\u0131 toplumuma ula\u015fmak ve onlardan KF'ye kar\u015f\u0131 m\u00fccadelemizde bize kat\u0131lmalar\u0131n\u0131 istemek i\u00e7in de kullanaca\u011f\u0131m.<\/span><\/p>\n

\"\"<\/i><\/p>\n

COVID bana bir \u015fey \u00f6\u011frettiyse, o da kaynaklar\u0131m\u0131z\u0131 arkalar\u0131na koydu\u011fumuzda rekor say\u0131labilecek bir s\u00fcrede b\u00fcy\u00fck ilerlemeler kaydedilebilece\u011fidir. Ak\u0131ll\u0131ca yat\u0131r\u0131lan kaynaklar\u0131n k\u0131z\u0131m Emery'nin ya\u015fam\u0131 boyunca bir tedavi sa\u011flayabilece\u011fini B\u0130L\u0130YORUM. Ancak, tatillerde bile aya\u011f\u0131m\u0131z\u0131 gaz pedal\u0131ndan \u00e7ekemeyiz \u00e7\u00fcnk\u00fc KF ac\u0131mas\u0131zd\u0131r ve \u015fimdiden karaci\u011ferini etkilemeye ba\u015flad\u0131.<\/span><\/p>\n

Bu hafta, sevdiklerim ve ben 11 g\u00fcn s\u00fcrecek olan CureFinders Ekibi<\/a> (CF Crew) kampanyas\u0131na kat\u0131lmaya davet ediyorum. kendi\u0307 ba\u011fi\u015f toplama sayfanizi olu\u015fturma<\/a>. Ge\u00e7en y\u0131l, sadece birka\u00e7 hafta i\u00e7inde, toplumumuzu KF ve Emily's Entourage'\u0131n tedavi sa\u011flama g\u00fcc\u00fc konusunda e\u011fitmeyi ama\u00e7layan a\u015famal\u0131 bir yakla\u015f\u0131m kullanarak ba\u011f\u0131\u015f toplama hedefimizi (16 kat a\u015fmay\u0131 ba\u015fard\u0131k!). <\/p>\n

Bilin diye s\u00f6yl\u00fcyorum, ba\u011f\u0131\u015f toplamak benim konfor alan\u0131m\u0131n tamamen d\u0131\u015f\u0131nda, bu y\u00fczden e\u011fer siz de ayn\u0131 \u015fekilde hissediyorsan\u0131z, yaln\u0131z de\u011filsiniz. Yine de bana g\u00fcvenin, ka\u00e7 ki\u015finin size yard\u0131m etmek istedi\u011fine \u015fa\u015f\u0131racaks\u0131n\u0131z ... sadece sormak i\u00e7in biraz cesarete ihtiyac\u0131n\u0131z var!<\/span><\/p><\/blockquote>\n

\u0130\u015fte toplulu\u011funuzla nas\u0131l etkile\u015fim kurabilece\u011finize dair birka\u00e7 fikir:<\/span><\/p>\n

1. Haberi yayman\u0131za ve KF'nin onlar \u00fczerindeki etkisini payla\u015fman\u0131za yard\u0131mc\u0131 olacak birka\u00e7 \"yard\u0131mc\u0131\" belirleyin. <\/b>Teyzeleri, amcalar\u0131, kuzenleri d\u00fc\u015f\u00fcn\u00fcn... ba\u011flant\u0131lar\u0131n\u0131 kendi a\u011flar\u0131yla payla\u015fabilecek ve ba\u011f\u0131\u015f toplama kampanyan\u0131z\u0131n eri\u015fimini geni\u015fletmenize yard\u0131mc\u0131 olabilecek herkesi. Bu, ge\u00e7en y\u0131lki ba\u015far\u0131m\u0131z\u0131n kritik bir par\u00e7as\u0131yd\u0131; ba\u011f\u0131\u015flar\u0131n yar\u0131s\u0131ndan fazlas\u0131 Emery'yi \u015fahsen tan\u0131mayan ki\u015filerden geldi!<\/span><\/p>\n

2. Yard\u0131mc\u0131lar\u0131n\u0131z\u0131n birka\u00e7 g\u00fcn i\u00e7inde ki\u015fisel sosyal medya sayfalar\u0131nda \"tan\u0131t\u0131mlar\" payla\u015fmalar\u0131n\u0131 sa\u011flay\u0131n <\/b>\u00f6nce<\/b> Ba\u011f\u0131\u015f toplama kampanyan\u0131z\u0131 resmi olarak ba\u015flat\u0131rs\u0131n\u0131z.<\/b> Yard\u0131mc\u0131lar\u0131m Emery ile ilgili kendi ki\u015fisel hikayelerinden baz\u0131lar\u0131n\u0131 ve EE'nin ona bir tedavi bulmak i\u00e7in ne kadar kritik oldu\u011funu payla\u015fmay\u0131 planl\u0131yorlar. Bu arada, sosyal medyada olmad\u0131\u011f\u0131m i\u00e7in kendi a\u011f\u0131ma e-posta ve mesajlar g\u00f6nderiyorum. <\/span><\/p>\n

Yard\u0131mc\u0131lar\u0131m\u0131zdan birine sosyal medya payla\u015f\u0131mlar\u0131na nas\u0131l yakla\u015ft\u0131\u011f\u0131n\u0131 sordu\u011fumda, herkeste yank\u0131 uyand\u0131racak bir hikaye payla\u015fmak i\u00e7in kendisinin ve Emery'nin bir foto\u011fraf\u0131n\u0131 bir \u00e7apa olarak kullanmay\u0131 sevdi\u011fini a\u00e7\u0131klad\u0131 (\u00f6rne\u011fin, kendisinin ve Emery'nin e\u015fle\u015fen k\u0131yafetleriyle sahilde u\u00e7urtma u\u00e7ururken \u00e7ekilmi\u015f bir foto\u011fraf\u0131).<\/p>\n

Duygu etraf\u0131nda bir g\u00f6nderi olu\u015fturun ve o an\u0131n neden bu kadar \u00f6zel oldu\u011funa dair ki\u015fisel bir hikaye payla\u015f\u0131n. Kalbinizden konu\u015fun ve sizi harekete ge\u00e7iren \u015feyler hakk\u0131nda yaz\u0131n. Sesiniz insanlar\u0131n kalplerini a\u00e7mada g\u00fc\u00e7l\u00fc olacakt\u0131r. En sevdi\u011finiz hashtag'leri payla\u015f\u0131n: #ILoveSomeoneWithCysticFibrosis #MoreGreatDaysPlease #It'sNotJustAboutKites #EmilysEntourage<\/i><\/p>\n

3. CF ve Emily's Entourage hakk\u0131nda daha fazla bilgi payla\u015f\u0131n. <\/b>\u00d6n\u00fcm\u00fczdeki birka\u00e7 g\u00fcn boyunca sosyal medyada, e-posta ve mesaj yoluyla tan\u0131t\u0131mlar yay\u0131nlamaya devam edece\u011fiz. Payla\u015fmay\u0131 planl\u0131yorum bu \u00e7ok etkili video<\/a> EE'den. (I. Love. This. Video.) Ve EE'de yer alan a\u015fa\u011f\u0131daki grafik gibi istatistikleri payla\u015faca\u011f\u0131m 2020 Etki Raporu<\/a>. Toplumumuzun yat\u0131r\u0131mlar\u0131n\u0131n mali y\u00f6netimini g\u00f6stermenin ger\u00e7ekten \u00f6nemli ve sorumlu bir davran\u0131\u015f oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorum.<\/p>\n

\"\"<\/p>\n

4. Kampanyan\u0131z\u0131 \"ba\u015flatmak\" i\u00e7in bir g\u00fcn se\u00e7in ve ba\u011f\u0131\u015f toplama sayfan\u0131z\u0131 payla\u015f\u0131n.<\/b> (\u0130\u015fte ba\u011f\u0131\u015f toplama sayfam<\/a> fikirlere ihtiyac\u0131n\u0131z varsa). Kampanyam\u0131z\u0131 \u015e\u00fckran G\u00fcn\u00fc'nden bir g\u00fcn \u00f6nce ba\u015flatmay\u0131 planl\u0131yoruz, ancak herhangi bir g\u00fcn de olabilir. O ak\u015fam nimetlerimizi sayaca\u011f\u0131z ve \u00e7ok sevildi\u011fimizi hissedece\u011fiz \u00e7\u00fcnk\u00fc insanl\u0131k bizi yine \u015fa\u015f\u0131rtacak. Ve bu bir g\u00fcn i\u00e7in CF'nin bizi yaln\u0131z hissettirmesine izin vermeyece\u011fiz.<\/p>\n

Ailem ve ben, bu tedaviye yard\u0131mc\u0131 olmak i\u00e7in b\u00f6ylesine lazer odakl\u0131 bir kurulu\u015fla ortakl\u0131k yapma f\u0131rsat\u0131 buldu\u011fumuz i\u00e7in \u00e7ok minnettar\u0131z. Sadece $1 bile toplasak, bunun i\u00e7in harcad\u0131\u011f\u0131m\u0131z her dakikaya de\u011fecek. Ama bence siz de g\u00f6receksiniz, insanlar c\u00f6mert. Ger\u00e7ekten yard\u0131m etmek istiyorlar. Ve insanlar sahip olduklar\u0131 servet i\u00e7in (sa\u011fl\u0131k, finansal vb.) olduk\u00e7a minnettarlar. Bu serveti payla\u015fmak ve daha b\u00fcy\u00fck bir \u00e7a\u011fr\u0131n\u0131n par\u00e7as\u0131 olmak istiyorlar.<\/span><\/p>\n

Umar\u0131m kendinize biraz savunmas\u0131z hissetme ve insanlar\u0131n c\u00f6mertli\u011finden etkilenme \u015fans\u0131 verirsiniz. Bu sizi de\u011fi\u015ftirecektir - daha iyisi i\u00e7in. <\/span><\/p>\n

Ba\u011f\u0131\u015f Toplama Sayfan\u0131z\u0131 Olu\u015fturun<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Yazan Jennie, kistik fibrozisli bir \u00e7ocu\u011fun annesi \u015e\u00fckran G\u00fcn\u00fc'ne girerken, \u00e7ok ihtiya\u00e7 duydu\u011fum rahatlamay\u0131 ve ailemle kaliteli zaman ge\u00e7irmeyi d\u00f6rt g\u00f6zle bekliyorum. Ancak, 6 ya\u015f\u0131nda kistik fibrozisli (KF) bir k\u0131z\u0131n ebeveyni olarak, bu zaman\u0131 toplumuma ula\u015fmak ve onlara sormak i\u00e7in de kullanaca\u011f\u0131m... <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1281,"featured_media":16414,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"I Allowed Myself To Be Vulnerable and Was Humbled by My Community\u2019s Immense Response\u00a0","_seopress_titles_desc":"As we head into Thanksgiving, I\u2019m looking forward to some much-needed decompression and quality time with my family. But, as the parent of a 6-year-old daughter with cystic fibrosis (CF), I will also be taking this time to reach out to my community and ask them to join us in our fight against CF.","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-16408","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG-5102-scaled.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/16408","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=16408"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/16408\/revisions"}],"predecessor-version":[{"id":20293,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/16408\/revisions\/20293"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/16414"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=16408"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=16408"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=16408"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}