{"id":15472,"date":"2021-04-27T14:38:08","date_gmt":"2021-04-27T18:38:08","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=15472"},"modified":"2023-12-20T02:46:33","modified_gmt":"2023-12-20T07:46:33","slug":"crossoutcf","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/crossoutcf\/","title":{"rendered":"BI\u0307R MARKER KAPIN VE #CROSSOUTCF: MAYIS KISTIK FI\u0307BROZI\u0307S FARKINDALIK AYI"},"content":{"rendered":"

Kistik Fibrozis (KF) Fark\u0131ndal\u0131k Ay\u0131 boyunca, fark\u0131ndal\u0131\u011f\u0131 yaymak, ki\u015fisel hikayeleri payla\u015fmak ve at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rmak ve KF'ye \u00e7are bulmak i\u00e7in ortak bir misyonun arkas\u0131nda birle\u015fmek \u00fczere bir topluluk olarak bir araya geliyoruz. <\/span>hepsi<\/i><\/b> KF'li insanlar.\u00a0<\/span><\/p>\n

EE'nin \"Sihirli \u00c7izgi\" y\u0131lsonu kampanyas\u0131ndaki \"\u00e7izgiler\" kavram\u0131ndan yola \u00e7\u0131karak bu ayki temam\u0131z \"KF'nin \u00dczerini \u00c7izmek\". \u00d6zellikle KF'li ya\u015famda bizi birbirimize ba\u011flayan ve g\u00fc\u00e7lendiren \"ya\u015fam \u00e7izgilerini\" kutlayaca\u011f\u0131z ve ayn\u0131 zamanda KF'yi evrenden yok etmeye y\u00f6nelik ortak, acil misyonumuzun alt\u0131n\u0131 \u00e7izece\u011fiz! <\/span><\/p>\n

\"\"<\/p>\n

Pandemi insanlar\u0131 fiziksel olarak ayr\u0131 tuttu\u011fu ve hepimize ba\u011flant\u0131n\u0131n gereklili\u011fini ve a\u015fk\u0131nl\u0131\u011f\u0131n\u0131 hat\u0131rlatt\u0131\u011f\u0131 i\u00e7in \"ya\u015fam hatlar\u0131\" kavram\u0131 ge\u00e7ti\u011fimiz y\u0131l daha da \u00f6nem kazand\u0131. Karantinada ya\u015fama deneyimi bize KF toplulu\u011funun 100%'si i\u00e7in ba\u011flant\u0131da kalman\u0131n, sebat etmenin ve at\u0131l\u0131mlar i\u00e7in \u00e7abalaman\u0131n yeni yollar\u0131n\u0131 bulmay\u0131 \u00f6\u011fretti. <\/span>
\n<\/span>
\n<\/span>Ba\u011flant\u0131lara ve deste\u011fe i\u00e7elim. \u0130\u015fte ileriye do\u011fru harekete ve nihai biti\u015f \u00e7izgisini ge\u00e7meye. Bu ay, t\u00fcm \u00e7izgiler h\u0131zl\u0131 at\u0131l\u0131mlara ve tedavilere yol a\u00e7\u0131yor, b\u00f6ylece #CrossOutCF<\/span> ile KF toplulu\u011funun 100%'si i\u00e7in <\/span>kimse geride kalmad\u0131<\/em><\/strong>.\u00a0<\/span><\/p>\n

\u0130\u015fte bize nas\u0131l kat\u0131labilece\u011finiz.\u00a0<\/span><\/p>\n

HAYDI\u0307 SOSYALLE\u015eELI\u0307M<\/b><\/h2>\n

T\u00fcm ay boyunca, KF toplulu\u011fundan ki\u015fisel d\u00fc\u015f\u00fcnceler, g\u00fcn\u00fcn KF ger\u00e7ekleri, EE geriye d\u00f6n\u00fc\u015f an\u0131lar\u0131 payla\u015faca\u011f\u0131z ve foto\u011fraflar, videolar, al\u0131nt\u0131lar ve daha fazlas\u0131 arac\u0131l\u0131\u011f\u0131yla sizi muhte\u015fem KF bilim insanlar\u0131 ve Entourage \u00fcyeleriyle tan\u0131\u015ft\u0131raca\u011f\u0131z! \u0130\u00e7erik \u015fu sitelerde yer alacak <\/span>Facebook<\/span><\/a>, <\/span>Instagram<\/span>, <\/span>Twitter<\/span><\/a>, LinkedIn<\/a> ve bizim <\/span>blog<\/span><\/a>. Her g\u00fcn takip etti\u011finizden ve kendi payla\u015f\u0131mlar\u0131n\u0131zda #CrossOutCF etiketini kulland\u0131\u011f\u0131n\u0131zdan emin olun! <\/span><\/p>\n

\"\"<\/p>\n

ZOOM ARKA PLANINIZI BA\u011eI\u015eLAYIN<\/b><\/h2>\n

Belki de hi\u00e7bir platform ge\u00e7ti\u011fimiz y\u0131l boyunca bizi Zoom kadar birbirine ba\u011fl\u0131 tutmad\u0131. Bu noktada, hepimiz aramalar\u0131m\u0131z i\u00e7in yeni ve heyecan verici bir arka plan kullanabiliriz. Bu y\u00fczden KF i\u00e7in fark\u0131ndal\u0131\u011f\u0131 art\u0131ran ve bizi #crossoutcf hedefimize yakla\u015ft\u0131ran bir arka plan yap\u0131n!\u00a0<\/span><\/p>\n

T\u00fcm sanal planlar\u0131n\u0131z i\u00e7in \u00f6zel bir Yak\u0131nla\u015ft\u0131rma arka plan\u0131 ekleyin:<\/b><\/p>\n

    \n
  1. \u0130ndirin \"<\/span>CF'nin \u00dczerini \u00c7izin<\/span>\" arka plan <\/span>Burada<\/span><\/a>\u00a0<\/span><\/li>\n
  2. Zoom'da oturum a\u00e7m\u0131\u015fken, \"Video Ba\u015flat \"\u0131n yan\u0131ndaki ^ i\u015faretine t\u0131klay\u0131n<\/span><\/li>\n
  3. \"Sanal Arka Plan Se\u00e7 \"e t\u0131klay\u0131n<\/span><\/li>\n
  4. Yeni bir arka plan resmi eklemek i\u00e7in + i\u015faretine t\u0131klay\u0131n<\/span><\/li>\n
  5. \"G\u00f6r\u00fcnt\u00fc Ekle \"ye t\u0131klay\u0131n ve ard\u0131ndan \"<\/span>CF'nin \u00dczerini \u00c7izin<\/span>\" resim<\/span><\/li>\n
  6. G\u00f6r\u00fcnt\u00fcn\u00fcn geriye do\u011fru olmad\u0131\u011f\u0131ndan emin olmak i\u00e7in \"Videomu Yans\u0131t\" se\u00e7ene\u011finin i\u015faretini kald\u0131r\u0131n<\/span><\/li>\n<\/ol>\n

    FACEBOOK'UNUZU BA\u011eI\u015eLAYIN<\/b><\/h2>\n

    Facebook sayfan\u0131z\u0131 KF Fark\u0131ndal\u0131k Ay\u0131n\u0131 desteklemek i\u00e7in g\u00fc\u00e7l\u00fc bir reklam panosuna d\u00f6n\u00fc\u015ft\u00fcrmenin iki yolu vard\u0131r:\u00a0<\/span><\/p>\n

    1. Facebook profil foto\u011fraf\u0131n\u0131za ge\u00e7ici bir EE \u00e7er\u00e7evesi ekleyin\u00a0<\/b><\/p>\n

      \n
    1. \n
        \n
      1. Facebook profil resminize gidin ve \"G\u00fcncelle\" kamera d\u00fc\u011fmesine t\u0131klay\u0131n.\u00a0<\/span><\/li>\n
      2. \"\u00c7er\u00e7eve Ekle \"yi se\u00e7in.\u00a0<\/span><\/li>\n
      3. \"2021 EE KF Fark\u0131ndal\u0131k Ay\u0131\" \u00e7er\u00e7evesini (Cross Out CF) aray\u0131n, se\u00e7in ve \"Profil Resmi Olarak Kullan \"a t\u0131klay\u0131n<\/span><\/li>\n<\/ol>\n<\/li>\n<\/ol>\n

        2. May\u0131s ay\u0131 i\u00e7in Facebook kapak foto\u011fraf\u0131n\u0131z\u0131 de\u011fi\u015ftirin\u00a0<\/b><\/p>\n

        Mobil Talimatlar<\/span><\/p>\n

          \n
        1. \"Cross Out CF\" kapak foto\u011fraf\u0131n\u0131 indirin Burada<\/a><\/li>\n
        2. \"G\u00f6r\u00fcnt\u00fcy\u00fc Kaydet\" se\u00e7ene\u011fini g\u00f6rene kadar g\u00f6r\u00fcnt\u00fcy\u00fc bas\u0131l\u0131 tutun\u00a0<\/span><\/li>\n
        3. G\u00f6r\u00fcnt\u00fc film rulonuza kaydedildikten sonra Facebook sayfan\u0131za gidin<\/span><\/li>\n
        4. Mevcut kapak foto\u011fraf\u0131n\u0131zdaki \"D\u00fczenle\" d\u00fc\u011fmesine t\u0131klay\u0131n, ard\u0131ndan \"Foto\u011fraf Y\u00fckle \"yi se\u00e7in\u00a0<\/span><\/li>\n
        5. Film rulonuza kaydedilmi\u015f \"Cross Out CF\" resmini se\u00e7in, s\u0131\u011fmas\u0131 i\u00e7in s\u00fcr\u00fckleyin ve \"Kaydet \"e bas\u0131n\u00a0<\/span><\/li>\n<\/ol>\n

          Masa\u00fcst\u00fc Talimatlar\u0131<\/span><\/p>\n

            \n
          1. EE Facebook sayfas\u0131ndaki \"Cross Out CF\" kapak foto\u011fraf\u0131na t\u0131klay\u0131n\u00a0<\/span><\/li>\n
          2. Resme \u00e7ift t\u0131klay\u0131n ve \"Resmi Farkl\u0131 Kaydet \"i se\u00e7in<\/span><\/li>\n
          3. G\u00f6r\u00fcnt\u00fc bilgisayar\u0131n\u0131za kaydedildikten sonra Facebook sayfan\u0131za gidin<\/span><\/li>\n
          4. Sol \u00fcst k\u00f6\u015fedeki \"Kapak Foto\u011fraf\u0131n\u0131 G\u00fcncelle \"ye t\u0131klay\u0131n, ard\u0131ndan \"Foto\u011fraf Y\u00fckle \"yi se\u00e7in<\/span><\/li>\n
          5. Bilgisayar\u0131n\u0131za kaydedilen \"Cross Out CF\" kapak foto\u011fraf\u0131n\u0131 se\u00e7in, s\u0131\u011fmas\u0131 i\u00e7in s\u00fcr\u00fckleyin ve \"De\u011fi\u015fiklikleri Kaydet \"e bas\u0131n\u00a0<\/span><\/li>\n<\/ol>\n

            TAKVI\u0307MLERI\u0307NI\u0307ZI\u0307 I\u0307\u015eARETLEYI\u0307N VE KAYIT YAPTIRIN<\/b><\/h2>\n

            6. Y\u0131ll\u0131k EENY, \"Sihirli \u00c7izgi\" i\u00e7in EE'ye kat\u0131l\u0131n: KF'siz Bir Gelecek \u00c7izmek\" ba\u015fl\u0131kl\u0131 ve 19 May\u0131s 2021 \u00c7ar\u015famba g\u00fcn\u00fc saat 20:00 ET\/7:00 CT\/5:00 PT'de sanal olarak ger\u00e7ekle\u015ftirilecek etkinli\u011fe kat\u0131l\u0131n.\u00a0\u00a0<\/span>Bu y\u0131l\u0131n temas\u0131 olan \"KF'siz Bir Gelecek \u00c7izmek\", \u00e7izgi kavram\u0131n\u0131 geni\u015fletiyor ve bize hayal etti\u011fimiz d\u00fcnyay\u0131, yani KF'siz bir d\u00fcnyay\u0131 yaratma g\u00fcc\u00fcm\u00fcz\u00fc hat\u0131rlat\u0131yor. Gecede Emily Kramer-Golinkoff ve ABC News \u0130\u015f, Teknoloji ve Ekonomi Ba\u015f Muhabiri Rebecca Jarvis ile bir r\u00f6portaj, \u00fcnl\u00fc sunucu Erin Foster, m\u00fczik performanslar\u0131, KF toplulu\u011fundan sesler ve daha fazlas\u0131 yer al\u0131yor.\u00a0<\/span><\/p>\n

            \"\"<\/p>\n

            Kay\u0131t \u00fccretsizdir, ancak \u00f6nceden yap\u0131lmas\u0131 gerekmektedir. Kay\u0131t olmak, sponsor olmak veya ba\u011f\u0131\u015f yapmak i\u00e7in l\u00fctfen t\u0131klay\u0131n Burada<\/a>.<\/span><\/p>\n

             <\/p>\n

            CF FARKINDALIK AYI SPONSORLARIMIZA TE\u015eEKK\u00dcR EDERI\u0307Z\u00a0<\/strong><\/span><\/h2>\n

            \"\"<\/strong><\/span><\/p>\n

            \"\"<\/strong><\/p>\n

             <\/p>\n

            Arrowhead Pharmaceuticals <\/strong><\/p>\n

            Chiesi USA, Inc.<\/strong><\/p>\n

            Parmak Boyas\u0131 <\/strong><\/p>\n

            Ionis <\/strong><\/p>\n

            Biyografiyi \u00c7evir<\/strong><\/p>\n

             <\/p>\n

            Emily's Entourage, Kistik Fibrozis, tedaviye y\u00f6nelik ba\u015far\u0131lar ve \u00f6zellikle de son 10% i\u00e7in hala yap\u0131lmas\u0131 gereken \u00e7al\u0131\u015fmalar konusunda fark\u0131ndal\u0131k yaratan bu \u00f6nemli harekete kat\u0131lan t\u00fcm kurumsal sponsorlarla son derece gurur duyuyor ve onlara minnettar. EE, \u00e7abalar\u0131m\u0131za kat\u0131larak KF n\u00fcfusunun 100%'sinin daha rahat nefes alabilece\u011fi g\u00fcne bizi daha da yakla\u015ft\u0131rman\u0131z i\u00e7in ilham alman\u0131z\u0131 umuyor.\u00a0<\/span><\/i><\/p>","protected":false},"excerpt":{"rendered":"

            Kistik Fibrozis (KF) Fark\u0131ndal\u0131k Ay\u0131 boyunca, fark\u0131ndal\u0131\u011f\u0131 yaymak, ki\u015fisel hikayeleri payla\u015fmak ve KF'li t\u00fcm insanlar i\u00e7in at\u0131l\u0131mlar\u0131 ve tedaviyi h\u0131zland\u0131rmak i\u00e7in ortak bir misyonun arkas\u0131nda birle\u015fmek \u00fczere bir topluluk olarak bir araya geliyoruz. EE'nin \u201cThe Magic Line\u201d y\u0131l sonu kampanyas\u0131ndaki \u201c\u00e7izgiler\u201d kavram\u0131ndan yola \u00e7\u0131karak, bu ayki temam\u0131z \u201cCross... <\/p>\n

            <\/div>\n

            Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1281,"featured_media":15494,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[{"_seopress_pro_rich_snippets_type":"none"}],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[52,77,7],"class_list":["post-15472","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-cf-awareness","tag-cf-awareness-month","tag-cystic-fibrosis"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EE-Cross-Out-CF-Campaign-Exports-042621_Cross-Out-CF-Base-Purple-with-Beige-Scribble.png","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/15472","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=15472"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/15472\/revisions"}],"predecessor-version":[{"id":20339,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/15472\/revisions\/20339"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/15494"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=15472"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=15472"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=15472"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}