{"id":14031,"date":"2019-12-21T08:57:28","date_gmt":"2019-12-21T13:57:28","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=14031"},"modified":"2023-12-20T05:56:20","modified_gmt":"2023-12-20T10:56:20","slug":"a-foundation-of-the-future-the-8th-annual-evening-with-emilys-entourage-gala","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/a-foundation-of-the-future-the-8th-annual-evening-with-emilys-entourage-gala\/","title":{"rendered":"Gelece\u011fin Temeli: 8. Y\u0131ll\u0131k \"Emily's Entourage ile Ak\u015fam\" Galas\u0131"},"content":{"rendered":"

Sadece \u015funu s\u00f6yleyebilir miyiz... Vay can\u0131na. <\/span><\/i>Emily's Entourage (EE), 7 Aral\u0131k 2019 Cumartesi g\u00fcn\u00fc 8. Geleneksel <\/span>Emily'nin \u00c7evresiyle Ak\u015fam <\/span><\/i>East Falls, PA'daki Moulin at Sherman Mills'de Gala. <\/span>Misyon: Kistik Fibrozis'in (KF) anlams\u0131z mutasyonlar\u0131 i\u00e7in hayat kurtaran ara\u015ft\u0131rmalar\u0131 ve ila\u00e7 geli\u015ftirmeyi h\u0131zland\u0131rmak i\u00e7in kritik fonlar toplamak<\/span>. ile <\/span>500'den fazla kurumsal ortak, hay\u0131rsever liderler, gen\u00e7 profesyoneller ve toplum liderlerinin kat\u0131ld\u0131\u011f\u0131 gece en \u00e7\u0131lg\u0131n hayallerimizi bile a\u015ft\u0131!\u00a0<\/span><\/p>\n

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Bu y\u0131l\u0131n gala temas\u0131 <\/span>winterbloom<\/span><\/em>asi ruhu ve mistik t\u0131bbi g\u00fc\u00e7leriyle geleneklere meydan okuyan bir cad\u0131 f\u0131nd\u0131\u011f\u0131 t\u00fcr\u00fcd\u00fcr. \u00c7o\u011fu \u00e7i\u00e7ek k\u0131\u015f\u0131n \u00f6l\u00fc g\u00fcnlerinde yapraklar\u0131n\u0131 d\u00f6kerken, k\u0131\u015f \u00e7i\u00e7e\u011fi koyu sar\u0131 \u00e7i\u00e7eklerle a\u00e7ar. EE ile benzerli\u011fi dikkat \u00e7ekicidir - t\u0131pk\u0131 k\u0131\u015f \u00e7i\u00e7e\u011finin en kasvetli g\u00fcnlerde bahar\u0131n yakla\u015ft\u0131\u011f\u0131n\u0131 g\u00fc\u00e7l\u00fc bir \u015fekilde hat\u0131rlatmas\u0131 gibi, EE'nin \u00e7al\u0131\u015fmalar\u0131 da ileride yatan umudu ayd\u0131nlat\u0131r.\u00a0<\/span><\/p>\n

\u0130lk olarak Kramer-Golinkoff ailesi VIP sponsorlar, EE liderli\u011fi ve onur konuklar\u0131 i\u00e7in samimi bir \u015fampanya resepsiyonu d\u00fczenledi. Kurucu ortak Emily Kramer-Golinkoff, onursal ba\u015fkanlar Kami ve Josh Verne, Winterbloom Sponsorlar\u0131 Jill ve Mark Fishman ve \u0130ngiliz \u00c7uha \u00c7i\u00e7e\u011fi Sponsorlar\u0131 Loreto ve Miguel Rodriguez ile s\u0131rayla birka\u00e7 kelime konu\u015ftuktan sonra h\u0131zl\u0131 at\u0131l\u0131mlar ve KF i\u00e7in bir tedaviye kadeh kald\u0131rarak galay\u0131 resmen ba\u015flatt\u0131.\u00a0<\/span><\/p>\n

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Konuklar, yetenekli dekor ekibinin bir kez daha sihrini konu\u015fturdu\u011fu, k\u0131\u015f \u00e7i\u00e7e\u011fi temal\u0131 davetiyeleri (TPD Design House taraf\u0131ndan zarif bir \u015fekilde tasarlanm\u0131\u015f) buzla kapl\u0131 yaprak d\u00f6kmeyen a\u011fa\u00e7lar ve sar\u0131 k\u0131\u015f \u00e7i\u00e7e\u011fi merkez par\u00e7alar\u0131 ile hayata ge\u00e7irdi\u011fi d\u00f6n\u00fc\u015ft\u00fcr\u00fclm\u00fc\u015f bir mekana geldi. Kat\u0131l\u0131mc\u0131lar ana etkinlik salonuna girmeden \u00f6nce foto\u011fraf kabininde poz verme veya EESHO taraf\u0131ndan sunulan New Yorklu sanat\u00e7\u0131 Alex Nero'nun interaktif sanat enstalasyonunu deneyimleme f\u0131rsat\u0131 buldular.\u00a0<\/span><\/p>\n

Ana etkinlik alan\u0131na girdiklerinde konuklar, m\u00fccevher, yemek, spor, sanat, seyahat ve daha bir\u00e7ok kategoride benzersiz sessiz m\u00fczayede \u00fcr\u00fcnleri ve deneyimlerinin geni\u015f bir sergisiyle kar\u015f\u0131la\u015ft\u0131. Galaya kat\u0131lan konuklar, kullan\u0131m\u0131 kolay bir mobil platform \u00fczerinden t\u00fcm \u00f6\u011feleri g\u00f6r\u00fcnt\u00fcleyebiliyor ve teklif verebiliyor, favori \u00f6\u011felerini kazanmak i\u00e7in dikkatle \u00e7al\u0131\u015f\u0131yorlard\u0131! Galada bulunmayan ki\u015filer bile platformda \u00fcr\u00fcnleri g\u00f6r\u00fcnt\u00fcleyebildi ve teklif verebildi!\u00a0<\/span><\/p>\n

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Brulee Catering, mezeler ve oyma istasyonlar\u0131ndan olu\u015fan lezzetli bir ziyafet sunmu\u015f, ard\u0131ndan Federal Donuts, Sweet Stuff, Le Bus, Insomnia Cookies ve La Colombe bir dizi tatl\u0131 sunmu\u015ftur. Tito's Handmade Vodka, tematik olarak \"Berries in Bloom\" ve \"Floral Forest\" adl\u0131 iki \u00f6zel yap\u0131m kokteyl sundu.<\/span><\/p>\n

Sessiz a\u00e7\u0131k art\u0131rma sona erdi\u011finde s\u0131ra <\/span>EE \u00c7i\u00e7ek A\u00e7\u0131yor <\/span><\/i>program ba\u015flad\u0131. Ice Sculpture Philly'nin \u015fampiyon heykelt\u0131ra\u015f\u0131 Peter Slavin sahneye \u00e7\u0131kt\u0131 ve k\u0131\u015f \u00e7i\u00e7e\u011fi \u00e7i\u00e7ekleri ve EE logosu i\u00e7eren buz bloklar\u0131yla ger\u00e7ek zamanl\u0131 olarak muhte\u015fem bir sanat eseri yaratt\u0131! G\u00f6sterinin ard\u0131ndan Emily'nin karde\u015fleri Julia ve Coby Kramer-Golinkoff sahneye \u00e7\u0131kt\u0131. EE'nin misyonu, KF'nin ger\u00e7ekleri hakk\u0131nda konu\u015ftular ve geceyi m\u00fcmk\u00fcn k\u0131lan t\u00fcm sponsorlara, destek\u00e7ilere ve ayni ba\u011f\u0131\u015f\u00e7\u0131lara, Sunum Sponsoru Vertex Pharmaceuticals'\u0131n yan\u0131 s\u0131ra Ametist Sponsor PRA Health Sciences, ayni ba\u011f\u0131\u015f\u00e7\u0131lar Anro Printing, Color Reflections, 3AW ve \u00e7ok daha fazlas\u0131 dahil olmak \u00fczere te\u015fekk\u00fcr ettiler.<\/span><\/p>\n

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Julia ve Coby, KF pop\u00fclasyonunun 90%'si i\u00e7in oyunun kurallar\u0131n\u0131 de\u011fi\u015ftiren yeni bir ilac\u0131n yak\u0131n zamanda FDA taraf\u0131ndan onaylanmas\u0131yla KF toplulu\u011fu i\u00e7in ge\u00e7irilen an\u0131tsal y\u0131l\u0131 anlatt\u0131lar. Dinleyicilere, tarihi olmas\u0131na ra\u011fmen, bu yeni ilac\u0131n Emily gibi sa\u00e7ma mutasyonlara sahip olanlar da dahil olmak \u00fczere 10%'de bulunanlara fayda sa\u011flamad\u0131\u011f\u0131n\u0131 hat\u0131rlatt\u0131lar. EE'nin tek taahh\u00fcd\u00fc, son ilerlemeyi KF toplulu\u011funun 100%'sine geni\u015fletmektir.\u00a0<\/span><\/p>\n

EE'nin nihai 10% i\u00e7in kaydetti\u011fi ilerlemeyi temsil etmek \u00fczere Julia ve Coby, Leahy Films taraf\u0131ndan haz\u0131rlanan ve kalabal\u0131\u011f\u0131 EE'nin ara\u015ft\u0131rmas\u0131n\u0131n etkisi ve EE'nin ivme ve \u00f6n finansman sa\u011flad\u0131\u011f\u0131 yak\u0131n zamanda sat\u0131n al\u0131nan gen terapisi \u015firketi hakk\u0131nda bilgilendiren bir video sundu.\u00a0<\/span><\/p>\n

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Onursal ba\u015fkanlar ve yerel hay\u0131rseverler Kami ve Josh Verne, \u00f6d\u00fcllerini almak \u00fczere sahneye davet edildiler ve EE'ye ve Kramer-Golinkoff ailesine olan ba\u011fl\u0131l\u0131klar\u0131ndan s\u00f6z ettiler. Ard\u0131ndan EE Kurucu Ortaklar\u0131 ve Emily'nin ebeveynleri Liza Kramer ve Michael Golinkoff, 2019 Trailblazer \u00d6d\u00fcl\u00fc'n\u00fc EE Bilimsel Dan\u0131\u015fma Kurulu Ba\u015fkan\u0131 Kevin Foskett'e takdim ettiler. Ard\u0131ndan 2018 EE \u015eampiyonu ve 2019 EE Tak\u0131m\u0131 ko\u015fucusu Jordyn Amoroso, galadan \u00f6nceki aylarda ki\u015fisel a\u011flar\u0131 arac\u0131l\u0131\u011f\u0131yla toplamda $27,061 gibi inan\u0131lmaz bir rakam toplayan 15 EE \u015eampiyonu tak\u0131m\u0131 onurland\u0131rd\u0131.\u00a0<\/span><\/p>\n

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\u015eampiyonlar sahneden inerken 2020 kampanyas\u0131n\u0131n resmi videosu da g\u00f6sterime girdi. Storied Stories taraf\u0131ndan haz\u0131rland\u0131<\/span>Adam Kennedy ve Andrea Amanda ile i\u015fbirli\u011fi i\u00e7inde<\/span>kampanya videosunda, at\u0131lan ad\u0131mlar ve EE'nin hi\u00e7 kimsenin geride kalmamas\u0131 konusundaki kararl\u0131l\u0131\u011f\u0131 g\u00fczel bir animasyonla anlat\u0131l\u0131yor. Videoyu g\u00f6r\u00fcnt\u00fcleyin ve payla\u015f\u0131n Burada<\/a>.\u00a0<\/span><\/p>\n

Ard\u0131ndan, EE Kurucu Orta\u011f\u0131 Emily Kramer-Golinkoff sahneye \u00e7\u0131kt\u0131. Sa\u011fl\u0131k sorunlar\u0131yla ge\u00e7en bir y\u0131l boyunca giri\u015fimcili\u011fin -ve Emily's Entourage arac\u0131l\u0131\u011f\u0131yla yaratma f\u0131rsat\u0131n\u0131n- KF'nin neden oldu\u011fu y\u0131k\u0131ma kar\u015f\u0131 nihai panzehir olarak nas\u0131l ortaya \u00e7\u0131kt\u0131\u011f\u0131 hakk\u0131nda g\u00fc\u00e7l\u00fc bir konu\u015fma yapt\u0131. Hayal etme g\u00fcc\u00fcn\u00fc payla\u015ft\u0131 <\/span>ne olmal\u0131<\/span><\/i> ve d\u0131\u015f 10%'deki herkes i\u00e7in bu gelece\u011fi h\u0131zl\u0131 bir \u015fekilde yaratmay\u0131 ama\u00e7l\u0131yor ve ara\u015ft\u0131rman\u0131n yap\u0131lma \u015feklini ve h\u0131z\u0131n\u0131 de\u011fi\u015ftirdi\u011fi i\u00e7in EE'yi \"gelece\u011fin temeli\" olarak adland\u0131r\u0131yor.\u00a0<\/span><\/p>\n

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Coby, sa\u011fl\u0131k dan\u0131\u015fmanl\u0131\u011f\u0131 alan\u0131ndaki kendi deneyimlerinden yola \u00e7\u0131karak startup'lar i\u00e7in kritik ba\u015far\u0131 fakt\u00f6rlerini s\u0131ralamak \u00fczere sahneye d\u00f6nd\u00fc ve EE'nin her birini payla\u015ft\u0131\u011f\u0131 sonucuna vard\u0131. Ard\u0131ndan ba\u011f\u0131\u015f geri say\u0131m\u0131n\u0131 ba\u015flatarak izleyicileri bu m\u00fccadeleye ortak olmaya \u00e7a\u011f\u0131rd\u0131. Konuklar katk\u0131da bulunduk\u00e7a ba\u011f\u0131\u015f termometresi yeni zirvelere y\u00fckseldi ve her kilometre ta\u015f\u0131yla birlikte s\u00fcrpriz bir \u00fcnl\u00fc video mesaj\u0131 geldi. Termometrenin astronomik bir rakam olan $807,458'e y\u00fckselmesini salon hayretler i\u00e7inde izledi!!! Gece, y\u0131ll\u0131k kampanyan\u0131n inan\u0131lmaz ba\u015flang\u0131c\u0131n\u0131 kutlamak i\u00e7in herkesin birbirine sar\u0131lmas\u0131yla bir umut ve konfeti patlamas\u0131yla sona erdi.\u00a0\u00a0<\/span><\/p>\n

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Emily's Entourage, 8. Y\u0131ll\u0131k \"Evening with Emily's Entourage\" Galas\u0131'n\u0131n benzersiz bir g\u00fc\u00e7, vizyon ve umutla \u00e7i\u00e7ek a\u00e7mas\u0131n\u0131 m\u00fcmk\u00fcn k\u0131lan Entourage'\u0131n her bir \u00fcyesine te\u015fekk\u00fcr eder.\u00a0\u00a0<\/span><\/i><\/p>\n

Ba\u015f\u0131ndan beri bizimle olanlara; \u015fefkatiniz, ba\u011fl\u0131l\u0131\u011f\u0131n\u0131z ve c\u00f6mert deste\u011finiz i\u00e7in te\u015fekk\u00fcr ederiz. \u0130lk kez 7 Aral\u0131k'ta \u015fahsen veya sanal olarak aram\u0131za kat\u0131lanlar, sizi kollar\u0131m\u0131z\u0131 a\u00e7arak kar\u015f\u0131l\u0131yor ve h\u0131zl\u0131 at\u0131l\u0131mlar ve KF'ye \u00e7are bulmak i\u00e7in yorulmadan yan\u0131n\u0131zda \u00e7al\u0131\u015fmay\u0131 d\u00f6rt g\u00f6zle bekliyoruz!\u00a0<\/span><\/i><\/p>\n

\n

\u0130ZLE <\/strong>bizim 2020 Kampanya Videosu<\/a><\/span><\/p>\n

PAYLA\u015e<\/strong> sosyal medyada EE kelimesini yaymak i\u00e7in videomuz<\/span><\/p>\n

BA\u011eI\u015e YAPMAK<\/strong> EE'nin davas\u0131na ve son 10%'yi kurtarmaya yard\u0131m edin<\/a><\/span><\/p>\n

DENEY\u0130M<\/strong> 8. Y\u0131ll\u0131k <\/span>Emily'nin \u00c7evresiyle Ak\u015fam<\/span><\/i> Online. Program\u0131 izleyin<\/a> Instagram hikayelerimize g\u00f6z at\u0131n, Facebook'ta 2019 EE \u015eampiyonlar\u0131<\/a>ve gecenin foto\u011fraflar\u0131n\u0131 g\u00f6rmek i\u00e7in Facebook alb\u00fcm\u00fc<\/a><\/span><\/p>\n

G\u00d6N\u00dcLL\u00dc <\/strong>gelecek y\u0131lki gala i\u00e7in Unutulmaz bir \u015feyin par\u00e7as\u0131 olun<\/a><\/span><\/p>\n

B\u0130RLE\u015e\u0130N<\/strong> gelecek y\u0131l bize! G\u00fcncellemeleri almak i\u00e7in kaydolun<\/a> ve davetiyeleri 9. Y\u0131ll\u0131k <\/span>Emily'nin \u00c7evresiyle Ak\u015fam <\/span><\/em>2020'de Gala<\/span><\/p>\n

\n

","protected":false},"excerpt":{"rendered":"

Sadece \u015funu s\u00f6yleyebilir miyiz... VAY CANINA. Emily's Entourage (EE), 7 Aral\u0131k 2019 Cumartesi g\u00fcn\u00fc East Falls, PA'daki Moulin at Sherman Mills'de 8. Y\u0131ll\u0131k Evening with Emily's Entourage Galas\u0131n\u0131 d\u00fczenledi. Misyon: Kistik Fibrozis'in (KF) anlams\u0131z mutasyonlar\u0131 i\u00e7in hayat kurtaran ara\u015ft\u0131rma ve ila\u00e7 geli\u015ftirmeyi h\u0131zland\u0131rmak i\u00e7in kritik fonlar toplamak. 500'\u00fcn \u00fczerinde kurumsal ortak, hay\u0131rsever... <\/p>\n

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