{"id":13765,"date":"2019-11-01T07:00:05","date_gmt":"2019-11-01T11:00:05","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13765"},"modified":"2019-11-01T07:00:05","modified_gmt":"2019-11-01T11:00:05","slug":"ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville\/","title":{"rendered":"EE Nashville'deki NACFC'de 4. Y\u0131ll\u0131k Kokteyl Resepsiyonu D\u00fczenledi"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Emily's Entourage (EE), 1 Kas\u0131m 2019 tarihinde Kuzey Amerika Kistik Fibrozis Konferans\u0131'nda (NACFC) 4. Y\u0131ll\u0131k, sadece davetlilerin kat\u0131labilece\u011fi Kokteyl Resepsiyonuna ev sahipli\u011fi yapacak olman\u0131n heyecan\u0131n\u0131 ya\u015f\u0131yor. Emily ve ailesi, Bilimsel Direkt\u00f6r Pete Haggie, PhD de dahil olmak \u00fczere kilit EE liderli\u011fi ile birlikte bu etkinli\u011fe liderlik edecek. EE bu y\u0131l \u00f6zellikle ikonik Nashville, TN'de ev sahipli\u011fi yapmay\u0131 d\u00f6rt g\u00f6zle bekliyor!\u00a0<\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-full wp-image-13771 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg\" alt=\"\" width=\"900\" height=\"563\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-300x188.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-768x480.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-600x375.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">Kistik Fibrozis Vakf\u0131 (CFF) bu y\u0131lki NACFC'yi 31 Ekim - 2 Kas\u0131m 2019 tarihleri aras\u0131nda Nashville Music City Center'da d\u00fczenliyor. Y\u0131ll\u0131k konferans, 5.000'den fazla Kistik Fibrozis (KF) klinisyenini, bilim insan\u0131n\u0131, ara\u015ft\u0131rmac\u0131y\u0131 ve bak\u0131c\u0131y\u0131, en son KF ara\u015ft\u0131rmalar\u0131n\u0131, bak\u0131m\u0131n\u0131 ve ila\u00e7 geli\u015ftirmeyi tart\u0131\u015fmak \u00fczere tek bir alanda bir araya getiriyor. Ama\u00e7, KF'li ki\u015filerin sa\u011fl\u0131k ve s\u0131hhatini iyile\u015ftirecek fikir al\u0131\u015fveri\u015finde bulunmakt\u0131r. EE, bu resepsiyona \u00fcst \u00fcste 4. y\u0131l ev sahipli\u011fi yapma f\u0131rsat\u0131 verdi\u011fi i\u00e7in CFF'ye son derece minnettard\u0131r.<\/span><\/p>\n<blockquote>\n<p style=\"text-align: center;\"><strong>EE'nin at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rma ve KF'nin sa\u00e7ma mutasyonlar\u0131 i\u00e7in bir tedavi bulma y\u00f6n\u00fcndeki lazer odakl\u0131 misyonunun \u00f6nemi ve aciliyeti her zamankinden daha kritiktir.\u00a0<\/strong><\/p>\n<\/blockquote>\n<p><span style=\"font-weight: 400;\">Bu y\u0131lki EE resepsiyonu 85'in \u00fczerinde KF ara\u015ft\u0131rmac\u0131s\u0131n\u0131, bilim insan\u0131n\u0131, aileleri ve ila\u00e7 ve biyoteknoloji \u015firketlerinden temsilcileri bir araya getiriyor. Etkinli\u011fin amac\u0131, EE'nin bug\u00fcne kadarki ba\u015far\u0131lar\u0131n\u0131 kutlamak, se\u00e7kin bilim toplulu\u011funu tan\u0131mak ve onurland\u0131rmak, yeni ba\u011flant\u0131lar ve fikir al\u0131\u015fveri\u015fi geli\u015ftirmek ve nihayetinde KF'nin sa\u00e7ma mutasyonlar\u0131 i\u00e7in yeni terap\u00f6tikler i\u00e7in h\u0131zl\u0131 ilerlemeyi te\u015fvik etmektir.<\/span><\/p>\n<p><img decoding=\"async\" class=\"size-full wp-image-13772 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018.jpg\" alt=\"\" width=\"900\" height=\"437\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-300x146.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-768x373.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-600x291.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">Resepsiyon, KF toplulu\u011fu i\u00e7in \u00f6zellikle \u00f6nemli bir zamanda ger\u00e7ekle\u015fiyor. <\/span><a href=\"https:\/\/www.fda.gov\/news-events\/press-announcements\/fda-approves-new-breakthrough-therapy-cystic-fibrosis\"><span style=\"font-weight: 400;\">FDA'n\u0131n yak\u0131n zamanda KF toplulu\u011funun 90%'si i\u00e7in \u00fc\u00e7l\u00fc kombinasyon tedavisi Trikafta'y\u0131 onaylamas\u0131<\/span><span style=\"font-weight: 400;\"> t<\/span><\/a><span style=\"font-weight: 400;\">en yayg\u0131n KF genetik mutasyonu olan F508del'in en az bir kopyas\u0131n\u0131 payla\u015fmaktad\u0131r. KF'nin sa\u00e7ma mutasyonlar\u0131na sahip olanlar, bu yeni tedaviden fayda g\u00f6rmeyen 10%'nin bir par\u00e7as\u0131d\u0131r. EE'nin at\u0131l\u0131mlar\u0131 h\u0131zland\u0131rma ve KF'nin anlams\u0131z mutasyonlar\u0131na y\u00f6nelik bir tedavi bulma y\u00f6n\u00fcndeki lazer odakl\u0131 misyonunun \u00f6nemi ve aciliyeti her zamankinden daha kritiktir.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">EE, NACFC'de bu resepsiyona 4. kez ev sahipli\u011fi yapma f\u0131rsat\u0131 verdi\u011fi i\u00e7in CFF'ye minnettard\u0131r ve bu y\u0131lki resepsiyonda hem yeni hem de tan\u0131d\u0131k y\u00fczlerle etkile\u015fim kurmay\u0131 d\u00f6rt g\u00f6zle beklemektedir. <\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Emily's Entourage (EE), 1 Kas\u0131m 2019 tarihinde Kuzey Amerika Kistik Fibrozis Konferans\u0131'nda (NACFC) 4. Y\u0131ll\u0131k, sadece davetlilerin kat\u0131labilece\u011fi Kokteyl Resepsiyonu'na ev sahipli\u011fi yapacak olman\u0131n heyecan\u0131n\u0131 ya\u015f\u0131yor. Emily ve ailesi, Bilimsel Direkt\u00f6r Pete Haggie, PhD de dahil olmak \u00fczere kilit EE liderli\u011fi ile birlikte bu etkinli\u011fe liderlik edecek. Bu y\u0131l, EE \u00f6zellikle ev sahipli\u011fi yapmay\u0131 d\u00f6rt g\u00f6zle bekliyor... <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1704,"featured_media":13771,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[],"class_list":["post-13765","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13765","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=13765"}],"version-history":[{"count":3,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13765\/revisions"}],"predecessor-version":[{"id":13774,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13765\/revisions\/13774"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/13771"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=13765"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=13765"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=13765"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}