{"id":13074,"date":"2019-06-04T07:35:19","date_gmt":"2019-06-04T11:35:19","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13074"},"modified":"2023-12-20T05:20:55","modified_gmt":"2023-12-20T10:20:55","slug":"emily-speaks-at-the-2019-bio-international-convention-in-philadelphia","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/","title":{"rendered":"Emily Philadelphia'daki 2019 BIO Uluslararas\u0131 Kongresinde Konu\u015ftu"},"content":{"rendered":"

Emily's Entourage (EE) 2019 BIO Uluslararas\u0131 Kongresi<\/a> Philadelphia, PA'daki Pennsylvania Kongre Merkezi'nde d\u00fczenlendi. Birinci g\u00fcn, EE kurucu orta\u011f\u0131 Emily Kramer-Golinkoff ile \u0130yi G\u00fcnler Biyografi<\/a>W2O Group Y\u00f6netici \u0130leti\u015fimi K\u00fcresel Uygulama Lideri Mike Huckman'\u0131n ev sahipli\u011finde hafta boyunca Philadelphia \u00e7evresindeki otellerde ve kongre merkezindeki toplant\u0131 salonlar\u0131nda yay\u0131nlanan bir TV talk show'u. Emily programda hasta perspektifini payla\u015ft\u0131 ve EE'nin Kistik Fibrozis'in (KF) sa\u00e7ma mutasyonlar\u0131 i\u00e7in yapt\u0131\u011f\u0131 \u00e7al\u0131\u015fmalar ve misyonu hakk\u0131nda konu\u015ftu. <\/span><\/p>\n

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Emily, 2. G\u00fcnde \"Hastalar\u0131n Seslerini Anlamak\" ba\u015fl\u0131kl\u0131 Ocakba\u015f\u0131 Sohbetine kat\u0131lacak: Sa\u011fl\u0131k Hizmetlerine Benzersiz Bak\u0131\u015f A\u00e7\u0131s\u0131\" ba\u015fl\u0131kl\u0131 sohbete kat\u0131lacak. Emily'ye Christopher Anselmo, M<\/span>arket \u0130stihbarat M\u00fcd\u00fcr\u00fc<\/span> Musk\u00fcler Distrofi Derne\u011fi ve CLCA Hasta Savunuculu\u011fu Ba\u015fkan Yard\u0131mc\u0131s\u0131 Eve Bukowski. Bu ana oturumun moderat\u00f6rl\u00fc\u011f\u00fcn\u00fc Merck & Co, Inc. Genel M\u00fcd\u00fcr Yard\u0131mc\u0131s\u0131 ve Ba\u015f Hasta Sorumlusu Julie Gerberding yapacakt\u0131r. <\/span><\/p>\n

Panel, sadece kendi sa\u011fl\u0131k bak\u0131mlar\u0131n\u0131 y\u00f6nlendirmeye giderek daha fazla dahil olmakla kalmay\u0131p ayn\u0131 zamanda ara\u015ft\u0131rma ve ila\u00e7 geli\u015ftirmeyi ilerletmek ve hastalar\u0131 destekleyen kamu politikalar\u0131n\u0131 g\u00fcvence alt\u0131na almak i\u00e7in yorulmak bilmeden savunuculuk yapan hastalar\u0131n y\u0131llar i\u00e7inde kritik ve geli\u015fen rol\u00fcne odaklanacak. Panelde Emily ve meslekta\u015flar\u0131 sa\u011fl\u0131k yolculuklar\u0131n\u0131, hasta olman\u0131n ne anlama geldi\u011fine dair bak\u0131\u015f a\u00e7\u0131lar\u0131n\u0131 ve tedavilerin hastalara daha h\u0131zl\u0131 ula\u015fmas\u0131 i\u00e7in nas\u0131l savunuculuk yapt\u0131klar\u0131n\u0131 payla\u015facaklar.<\/span><\/p>\n

\"\"<\/p>\n

BIO Uluslararas\u0131 Kongresi, Biyoteknoloji \u0130novasyon Organizasyonu taraf\u0131ndan her y\u0131l d\u00fczenlenen, 74 \u00fclkeden 16.000'den fazla kat\u0131l\u0131mc\u0131y\u0131 bir araya getiren ve 1.500'den fazla e\u011fitim oturumu i\u00e7eren bir etkinliktir. EE bir kez daha bu konferansa kat\u0131lma f\u0131rsat\u0131 buldu\u011fu i\u00e7in minnettard\u0131r ve hastalara h\u0131zl\u0131, d\u00f6n\u00fc\u015ft\u00fcr\u00fcc\u00fc tedaviler sunmak i\u00e7in ayn\u0131 d\u00fcrt\u00fcy\u00fc payla\u015fan kurulu\u015flarla yeni i\u015fbirliklerini d\u00f6rt g\u00f6zle beklemektedir. <\/span><\/p>","protected":false},"excerpt":{"rendered":"

Emily\u2019s Entourage (EE) is attending the 2019 BIO International Convention at the Pennsylvania Convention Center in Philadelphia, PA. On Day 1, EE co-founder Emily Kramer-Golinkoff was interviewed for Good Day Bio, a TV talk show broadcast in hotels around Philadelphia and in meeting halls throughout the convention center during the week, hosted by by Mike… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1704,"featured_media":13082,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[93,94,98,12,99,95,103,96,102,100],"class_list":["post-13074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-bio-international-convention","tag-bio2019","tag-christopher-anselmo","tag-emilys-entourage","tag-eve-bukowski","tag-good-day-bio","tag-life-sciences","tag-mike-huckman","tag-muscular-dystrophy","tag-philadelphia"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13074","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=13074"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13074\/revisions"}],"predecessor-version":[{"id":20547,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13074\/revisions\/20547"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/13082"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=13074"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=13074"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=13074"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}