{"id":13046,"date":"2019-05-29T08:31:50","date_gmt":"2019-05-29T12:31:50","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13046"},"modified":"2019-06-10T09:49:38","modified_gmt":"2019-06-10T13:49:38","slug":"emily-speaks-at-translate-bios-cf-awareness-month-event","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/emily-speaks-at-translate-bios-cf-awareness-month-event\/","title":{"rendered":"Emily Translate Bio'nun KF Fark\u0131ndal\u0131k Ay\u0131 Etkinli\u011finde Konu\u015ftu"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Emily's Entourage (EE) 29 May\u0131s'ta Translate Bio'nun Boston'da d\u00fczenledi\u011fi Kistik Fibrozis (KF) Fark\u0131ndal\u0131k Ay\u0131 etkinli\u011fine kat\u0131ld\u0131. EE Kurucu Orta\u011f\u0131 Emily Kramer-Golinkoff, g\u00fcn\u00fcn etkinliklerini ba\u015flatmak i\u00e7in a\u00e7\u0131l\u0131\u015f konu\u015fmas\u0131 yapt\u0131 ve bir Soru-Cevap panelinde yer ald\u0131. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Panelde Emily'ye KF toplulu\u011funun \u00f6nemli \u00fcyeleri, MassBio CEO'su Bob Coughlin, Translate Bio'nun devam eden klinik \u00e7al\u0131\u015fmas\u0131nda yer alan bir doktor olan Dr. Jonathan Zuckerman ve Translate Bio'nun CMO'su Dr. Ann Barbier kat\u0131ld\u0131. Panelin moderat\u00f6rl\u00fc\u011f\u00fcn\u00fc Rho'da K\u0131demli Klinik Ara\u015ft\u0131rma Bilimcisi olan Dr. Meagan Vaughn ve <\/span><span style=\"font-weight: 400;\">KF'de yeni tedavi se\u00e7eneklerine duyulan acil ihtiyac\u0131 ve \"bir g\u00fcn son 10% i\u00e7in yeterince iyi de\u011fil\" konusunu ele ald\u0131.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Oturum canl\u0131 olarak yay\u0131nland\u0131 ve a\u015fa\u011f\u0131da izlenebilir<\/span><span style=\"font-weight: 400;\">. KF toplulu\u011fu \u00fcyeleri bu yay\u0131n\u0131 izlemeye ve sorular\u0131n\u0131 g\u00f6ndermeye te\u015fvik edildi.<\/span><\/p>\n<p><iframe src=\"https:\/\/player.vimeo.com\/video\/340013706\" width=\"900\" height=\"500\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\"><\/span><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\"><\/span><\/iframe><\/p>\n<p><span style=\"font-weight: 400;\">Emily konu\u015fmas\u0131nda, KF'nin sa\u00e7ma mutasyonlar\u0131yla olan kendi yolculu\u011fundan bahsetti ve EE'nin kalan 10% i\u00e7in hayat kurtaran tedaviler ve ila\u00e7 geli\u015ftirme konusundaki lazer odakl\u0131 misyonuna \u0131\u015f\u0131k tuttu.<\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-full wp-image-13128 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2.jpg\" alt=\"\" width=\"900\" height=\"563\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2-300x188.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2-768x480.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2-600x375.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">Emily, konu\u015fmas\u0131n\u0131n ard\u0131ndan KF tedavisindeki yeniliklerin mevcut durumu, yeni tedavilerin gelecekte oynayabilece\u011fi potansiyel rol ve KF toplulu\u011funun 10%'sinin halen ta\u015f\u0131d\u0131\u011f\u0131 y\u00fck gibi konular\u0131 kapsayan bir panele kat\u0131ld\u0131.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Translate Bio, \u015fu anda KF gibi protein veya gen i\u015flev bozuklu\u011funun neden oldu\u011fu hastal\u0131klar\u0131 tedavi etmek i\u00e7in ila\u00e7lar geli\u015ftiren bir mRNA terap\u00f6tik \u015firketidir. KF'li bireylerin yakla\u015f\u0131k 90%'si i\u00e7in ufukta oyunun kurallar\u0131n\u0131 de\u011fi\u015ftirecek at\u0131l\u0131mlar g\u00f6r\u00fcn\u00fcrken, sa\u00e7ma mutasyonlara sahip olanlar, bu at\u0131l\u0131mlardan yararlanamayacak olan 10%'nin \u00e7o\u011funlu\u011funu temsil etmektedir.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Emily's Entourage, KF toplulu\u011funun son 10%'si i\u00e7in hala yap\u0131lmas\u0131 gereken kritik \u00e7al\u0131\u015fmalar hakk\u0131nda fark\u0131ndal\u0131k yaratmak amac\u0131yla KF toplulu\u011fundaki kilit oyunculardan olu\u015fan b\u00f6ylesine \u00f6zel bir kadroyla birlikte kat\u0131lmaktan inan\u0131lmaz derecede onur duymaktad\u0131r. Translate Bio'ya b\u00f6ylesine harika bir etkinlik d\u00fczenledi\u011fi ve EE ile Emily'yi de bu etkinli\u011fe dahil etti\u011fi i\u00e7in \u00e7ok te\u015fekk\u00fcr ederiz!<\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Emily's Entourage (EE) 29 May\u0131s'ta Translate Bio'nun Boston'da d\u00fczenledi\u011fi Kistik Fibrozis (KF) Fark\u0131ndal\u0131k Ay\u0131 etkinli\u011fine kat\u0131ld\u0131. EE Kurucu Orta\u011f\u0131 Emily Kramer-Golinkoff, g\u00fcn\u00fcn etkinliklerini ba\u015flatmak i\u00e7in a\u00e7\u0131l\u0131\u015f konu\u015fmas\u0131 yapt\u0131 ve bir Soru-Cevap panelinde yer ald\u0131. Panelde Emily'ye KF toplulu\u011funun \u00f6nemli \u00fcyeleri, MassBio CEO'su Bob Coughlin,... <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/tr\/emily-speaks-at-translate-bios-cf-awareness-month-event\/\" class=\"excerpt-read-more\">Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1704,"featured_media":13127,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[{"url":"","title":"","desc":"","thumbnail":"","duration":"","rating":"","view_count":"","tag":"","cat":""}],"_seopress_pro_schemas_manual":null,"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[87,77,7,78,79,86],"class_list":["post-13046","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-boston","tag-cf-awareness-month","tag-cystic-fibrosis","tag-nonsense-mutations","tag-rare-disease","tag-translate-bio"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_1.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13046","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=13046"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13046\/revisions"}],"predecessor-version":[{"id":13130,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/posts\/13046\/revisions\/13130"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/13127"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=13046"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/categories?post=13046"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/tags?post=13046"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}