{"id":11402,"date":"2018-08-27T15:26:12","date_gmt":"2018-08-27T19:26:12","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=11402"},"modified":"2018-08-27T15:49:40","modified_gmt":"2018-08-27T19:49:40","slug":"an-extraordinary-legacy-the-inaugural-zack-bassin-memorial-golf-outing","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/an-extraordinary-legacy-the-inaugural-zack-bassin-memorial-golf-outing\/","title":{"rendered":"Ola\u011fan\u00fcst\u00fc Bir Miras: A\u00e7\u0131l\u0131\u015f\u0131 Yap\u0131lan Zack Bassin An\u0131s\u0131na Golf Gezisi"},"content":{"rendered":"

Emily's Entourage'\u0131n bir \u00fcyesi olman\u0131n en \u00f6d\u00fcllendirici faydalar\u0131ndan biri, d\u00fcnyan\u0131n d\u00f6rt bir yan\u0131ndan ola\u011fan\u00fcst\u00fc bireylerle ba\u011flant\u0131 kurma \u015fans\u0131d\u0131r. Bazen kendileri de Kistik Fibrozis (KF) hastas\u0131 olan ki\u015filerle, bazen de KF'li ya\u015fam\u0131n ini\u015fli \u00e7\u0131k\u0131\u015fl\u0131 ini\u015fli \u00e7\u0131k\u0131\u015fl\u0131 treni boyunca sevdikleriyle birlikte olan aile \u00fcyeleri ve arkada\u015flarla ba\u011flant\u0131 kuruyoruz. Ve ka\u00e7\u0131n\u0131lmaz olarak, hayatlar\u0131ndaki en \u00f6zel insanlar\u0131 bu ac\u0131mas\u0131z, amans\u0131z hastal\u0131k nedeniyle kaybeden aile ve arkada\u015flarla ba\u011flant\u0131 kuruyoruz.<\/p>\n

Zachary Bassin \u00e7ok \u00f6zel bir insand\u0131 ve kendisiyle do\u011frudan ba\u011flant\u0131 kurma \u015fans\u0131na sahip olmasak da, annesi ve en yak\u0131n arkada\u015flar\u0131yla g\u00fc\u00e7l\u00fc bir ba\u011f kurdu\u011fumuz i\u00e7in \u00e7ok \u015fansl\u0131y\u0131z; bu ki\u015filerin ona duyduklar\u0131 \u015fiddetli sevgi ve ba\u011fl\u0131l\u0131k, onun ne kadar ola\u011fan\u00fcst\u00fc biri oldu\u011funun g\u00fc\u00e7l\u00fc bir kan\u0131t\u0131d\u0131r. \u0130\u015fte bu nedenle, Emily's Entourage'\u0131n, Emily's Entourage'\u0131n a\u00e7\u0131l\u0131\u015f\u0131 i\u00e7in hay\u0131r kurumu orta\u011f\u0131 olarak se\u00e7ilmesinden b\u00fcy\u00fck onur duyduk. Zack Bassin An\u0131s\u0131na Golf Gezisi<\/em>.<\/p>\n

\"\"

Bassin Tak\u0131m\u0131 \u00fcyeleri, Zack Bassin'i Anma Golf Gezisi'nin a\u00e7\u0131l\u0131\u015f\u0131nda.<\/p><\/div>\n

\n

Zack'in sevdi\u011fi her \u015feyi b\u00fcnyesinde bar\u0131nd\u0131ran ve KF'nin anlams\u0131z mutasyonlar\u0131 \u00fczerine yap\u0131lan ara\u015ft\u0131rmalar i\u00e7in $10,000 gibi \u015fa\u015f\u0131rt\u0131c\u0131 bir rakam\u0131n topland\u0131\u011f\u0131 etkinlik b\u00fcy\u00fck bir ba\u015far\u0131ya imza att\u0131.<\/p>\n<\/blockquote>\n

21 May\u0131s'ta, Zack'in memleketi North Salem, NY ve Zack'in Spor \u0130leti\u015fimi okudu\u011fu Marist College'dan 100'\u00fcn \u00fczerinde arkada\u015f\u0131 ve aile \u00fcyesi, yemek, golf ve KF fark\u0131ndal\u0131\u011f\u0131yla dolu g\u00fczel bir g\u00fcn i\u00e7in bir araya geldi. Etkinlik bir kahvalt\u0131 ile ba\u015flad\u0131, ard\u0131ndan 18 delikli golf ve Zack'in g\u00fc\u00e7l\u00fc bir \u00f6vg\u00fc videosuyla an\u0131ld\u0131\u011f\u0131 bir \u00f6\u011fle yeme\u011fi d\u00fczenlendi. Etkinlik, Zack'in sevdi\u011fi her \u015feyi somutla\u015ft\u0131ran ve KF'nin sa\u00e7ma mutasyonlar\u0131 \u00fczerine yap\u0131lan ara\u015ft\u0131rmalar i\u00e7in $10,000 gibi \u015fa\u015f\u0131rt\u0131c\u0131 bir rakam toplayan muazzam bir ba\u015far\u0131yd\u0131.<\/p>\n

\"\"

Bassin Tak\u0131m\u0131'ndan daha fazlas\u0131!<\/p><\/div>\n

Zack'ten bahseden herkes, bunu co\u015fkulu bir kalp ve kocaman bir g\u00fcl\u00fcmsemeyle yap\u0131yor. Komedi, spor ve en e\u015fsiz gruplar\u0131 bir araya getirme konusunda do\u011fal bir yetene\u011fi olan d\u00fc\u015f\u00fcnceli, nazik bir ruh olarak tan\u0131mlan\u0131yor. En \u00f6nemlisi, sad\u0131k bir evlat, karde\u015f ve inan\u0131lmaz bir arkada\u015f olarak tan\u0131mlan\u0131yor.<\/p>\n

\"\"

Zack d\u00fc\u015f\u00fcnceli, nazik bir ruha sahip, sad\u0131k bir evlat, karde\u015f ve inan\u0131lmaz bir arkada\u015f olarak tan\u0131mlan\u0131yor.<\/p><\/div>\n

Annesi Phyllis'e g\u00f6re Zack'in en \u00f6zel yan\u0131 \"Kistik Fibrozis taraf\u0131ndan tan\u0131mlanmay\u0131 reddetmesiydi\". Blogunda \u015f\u00f6yle yazm\u0131\u015ft\u0131: \"Hayat\u0131m\u0131n geri kalan\u0131nda sa\u011fl\u0131\u011f\u0131mla s\u00fcrekli m\u00fccadele edece\u011fimi biliyorum ama bu yapt\u0131\u011f\u0131m \u015feylerden keyif almayaca\u011f\u0131m anlam\u0131na gelmiyor.<\/p>\n

Ve bunu yapt\u0131. \u00c7ocuklu\u011funu \u00e7e\u015fitli sporlar yaparak ge\u00e7irmesine ra\u011fmen Zack, akci\u011fer fonksiyonlar\u0131 azalsa bile oynamaya devam edebildi\u011fi tek spor oldu\u011fu i\u00e7in sonunda golfe kar\u015f\u0131 bir sevgi geli\u015ftirdi. Onun an\u0131s\u0131n\u0131 ve inan\u0131lmaz hayat\u0131n\u0131 onurland\u0131rmak ve KF i\u00e7in kritik fonlar toplamak i\u00e7in onun an\u0131s\u0131na bir golf turnuvas\u0131 d\u00fczenlemek uygun oldu.<\/p>\n

\"\"

Zack (gen\u00e7) ve annesi Phyllis.<\/p><\/div>\n

Phyllis, golf turnuvas\u0131n\u0131n ilk planlama a\u015famalar\u0131nda Emily ve Liza ile tan\u0131\u015ft\u0131. EE'nin KF'nin sa\u00e7ma mutasyonlar\u0131na y\u00f6nelik ara\u015ft\u0131rmalar\u0131 h\u0131zl\u0131 bir \u015fekilde y\u00fcr\u00fctme misyonunu \u00f6\u011frendi\u011finde \u00e7ok heyecanland\u0131, \u00f6zellikle de Zack, Emily ile ayn\u0131 mutasyonlar\u0131, W1282X'in \u00e7ift kopyas\u0131n\u0131 payla\u015ft\u0131\u011f\u0131 i\u00e7in.<\/p>\n

Emily ve Zack'in benzerliklerinin ortak KF mutasyonuyla bitmedi\u011fi Phyllis taraf\u0131ndan hemen anla\u015f\u0131ld\u0131. Zack, do\u011fu\u015ftan gelen nezaketi, mizah\u0131 ve ya\u015fama sevinci nedeniyle pek \u00e7ok ki\u015fi taraf\u0131ndan seviliyordu. Phyllis de Emily'de ayn\u0131 \u00f6zellikleri g\u00f6r\u00fcyordu. Dolay\u0131s\u0131yla, fonlar\u0131n nereye verilece\u011fine karar verme zaman\u0131 geldi\u011finde, Phyllis ve golf turnuvas\u0131 planlama komitesi i\u00e7in net bir se\u00e7im oldu.<\/p>\n

\"\"

Zack ve karde\u015fi Ethan.<\/p><\/div>\n

\n

Zack, do\u011fu\u015ftan gelen nezaketi, mizah\u0131 ve ya\u015fama sevinci nedeniyle pek \u00e7ok ki\u015fi taraf\u0131ndan seviliyordu.<\/p>\n

\n<\/blockquote>\n

Emily's Entourage ad\u0131na, Zack'in destekleyici aile ve arkada\u015f a\u011f\u0131na derinden minnettar\u0131z ve onlar\u0131 g\u00fc\u00e7l\u00fc Entourage'\u0131m\u0131zda g\u00f6rmekten daha fazla mutluluk duyamazd\u0131k. Ayn\u0131 zamanda bu hastal\u0131\u011f\u0131n etkisini ve ger\u00e7ekli\u011fini de hat\u0131rl\u0131yoruz ve her g\u00fcn bu kadar s\u0131k\u0131 m\u00fccadele etmemizin nedeni de bu. Bunu KF ile ya\u015fayan herkes i\u00e7in ve Zack gibi bu ac\u0131mas\u0131z, merhametsiz hastal\u0131k y\u00fcz\u00fcnden \u00e7ok erken kaybetti\u011fimiz herkesin sevgi dolu an\u0131s\u0131na yap\u0131yoruz.<\/p>\n

Zack'in Rocky Balboa'dan en sevdi\u011fi al\u0131nt\u0131 EE'de hepimiz i\u00e7in ge\u00e7erlidir: \"Hayat ne kadar sert vurabildi\u011finle ilgili de\u011fildir... ne kadar\u0131n\u0131 kald\u0131rabildi\u011fin ve yine de ilerlemeye devam edebildi\u011finle ilgilidir.\"<\/p>\n

Zack'in kal\u0131c\u0131 miras\u0131n\u0131n bir par\u00e7as\u0131 oldu\u011fumuz i\u00e7in kendimizi \u015fansl\u0131 hissediyoruz ve KF'li herkes nihayet derin bir nefes alabilene kadar t\u00fcm kalbimiz ve ruhumuzla m\u00fccadele ederek ilerlemeye devam edece\u011fimize s\u00f6z veriyoruz.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

One of the most rewarding benefits of being a member of Emily\u2019s Entourage is the chance to connect with extraordinary individuals from around the globe. Sometimes we connect with people who have Cystic Fibrosis (CF) themselves, and other times it is with family members and friends who have been with a loved one through the… <\/p>\n

<\/div>\n

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