{"id":10824,"date":"2018-05-01T08:45:45","date_gmt":"2018-05-01T12:45:45","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=10824"},"modified":"2023-12-20T05:05:13","modified_gmt":"2023-12-20T10:05:13","slug":"fire-it-up-may-is-cf-awareness-month","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/fire-it-up-may-is-cf-awareness-month\/","title":{"rendered":"Ate\u015fleyin... May\u0131s KF Fark\u0131ndal\u0131k Ay\u0131!"},"content":{"rendered":"

May\u0131s Ulusal Kistik Fibrozis Fark\u0131ndal\u0131k Ay\u0131 ve Emily's Entourage'da asla karanl\u0131kta kalmay\u0131z... fark\u0131ndal\u0131k, bilgi ve e\u011flenceyi orman yang\u0131n\u0131 gibi yayaca\u011f\u0131z! Entourage'da bir s\u00fcredir bulunuyorsan\u0131z, iyi bir kutlamay\u0131 sevdi\u011fimizi bilirsiniz ve bu EE d\u00fcnyas\u0131ndaki ilk KF Fark\u0131ndal\u0131k Ay\u0131n\u0131zsa, ho\u015f geldiniz! Umar\u0131z daha fazla bilgi edinmek ve harekete ge\u00e7mek i\u00e7in ilham al\u0131rs\u0131n\u0131z, hepsi de tek bir hedefe y\u00f6neliktir: Emily ve onunla birlikte KF ile m\u00fccadele eden herkes i\u00e7in bir tedavi.<\/span><\/p>\n

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SOSYALLE\u015e\u0130N<\/strong><\/span><\/h3>\n

KF Fark\u0131ndal\u0131k Ay\u0131'n\u0131n b\u00fcy\u00fck gelene\u011fi olarak EE, May\u0131s ay\u0131nda sosyal medya hesaplar\u0131m\u0131z\u0131 ate\u015fe vererek interneti KF ger\u00e7ekleri, ilham\u0131, hikayeleri ve bilimi ile dolduracak Facebook<\/a>, Instagram<\/a><\/span> ve Twitter<\/a>! <\/span>Ne hakk\u0131nda konu\u015faca\u011f\u0131z? \u0130\u015fte yakla\u015fan g\u00fcnl\u00fck hashtag'lerimizden bir \u00f6rnek:<\/span><\/p>\n

\"\"<\/p>\n

Siz ne yapabilirsiniz? Sadece bir g\u00f6nderiyi payla\u015f\u0131n veya be\u011fenin ve fark\u0131ndal\u0131\u011f\u0131 art\u0131rmak ve EE'nin mesaj\u0131n\u0131 yaymak i\u00e7in \u00fczerinize d\u00fc\u015feni yap\u0131n. T\u0131klamalar\u0131n\u0131zdan kimin ilham alaca\u011f\u0131n\u0131 asla bilemezsiniz!<\/span><\/p>\n

Bizi takip etti\u011finizden emin olun Facebook<\/a>, Twitter<\/a>ve Instagram<\/a>: @EmilysEntourage.<\/p>\n

FACEBOOK'UNUZU BA\u011eI\u015eLAYIN<\/strong><\/span><\/h3>\n

Bu y\u0131l Facebook'unuzu parlayan bir reklam panosuna d\u00f6n\u00fc\u015ft\u00fcrmeniz i\u00e7in bir de\u011fil \u0130K\u0130 yolumuz var <\/span>KF fark\u0131ndal\u0131\u011f\u0131 ve EE'nin \u00e7al\u0131\u015fmalar\u0131 i\u00e7in. \u00dczerinde yap Maksimum etki i\u00e7in 1 May\u0131s!<\/span><\/p>\n

\u0130lk olarak, May\u0131s ay\u0131 i\u00e7in kapak foto\u011fraf\u0131n\u0131z\u0131 de\u011fi\u015ftirebilirsiniz! <\/span>Facebook d\u00fcnyas\u0131na ne kadar b\u00fcy\u00fck oldu\u011funu g\u00f6sterelim <\/span>ve bu Entourage ger\u00e7ekten durdurulamaz!<\/span><\/p>\n

    \n
  1. \"Let's Cure CF...Yesterday\" kapak foto\u011fraf\u0131na t\u0131klay\u0131n. Ard\u0131ndan, e\u011fer telefonunuzdaysan\u0131z, sa\u011f \u00fcst k\u00f6\u015fedeki 3 noktaya t\u0131klay\u0131n ve \"Foto\u011fraf\u0131 Kaydet \"i se\u00e7in. Bilgisayar\u0131n\u0131zdaysan\u0131z, sa\u011f alt k\u00f6\u015fedeki \"Se\u00e7enekler \"e t\u0131klay\u0131n ve \"\u0130ndir \"i se\u00e7in.<\/li>\n
  2. Ard\u0131ndan, Facebook profilinize gidin ve sol \u00fcst k\u00f6\u015fede foto\u011fraf\u0131n\u0131za (telefondaysan\u0131z) veya ad\u0131n\u0131za (bilgisayardaysan\u0131z) t\u0131klay\u0131n. <\/li>\n
  3. Mevcut kapak foto\u011fraf\u0131n\u0131z\u0131n sol \u00fcst k\u00f6\u015fesindeki \"Foto\u011fraf\u0131 G\u00fcncelle\" se\u00e7ene\u011fine t\u0131klay\u0131n<\/span><\/li>\n
  4. \"Foto\u011fraf\u0131 G\u00fcncelle \"yi se\u00e7in (\u015fu anda bir kapak foto\u011fraf\u0131n\u0131z yoksa Kapak Foto\u011fraf\u0131 Ekle'ye t\u0131klay\u0131n)
    \n<\/span><\/li>\n
  5. \"Let's Cure CF...Yesterday\" kapak foto\u011fraf\u0131n\u0131 y\u00fckleyin ve \"De\u011fi\u015fiklikleri Kaydet \"e t\u0131klay\u0131n<\/span><\/li>\n<\/ol>\n

    \u0130kinci olarak, birka\u00e7 basit ad\u0131mla Facebook profil foto\u011fraf\u0131n\u0131za ge\u00e7ici bir EE \u00e7er\u00e7evesi ekleyebilirsiniz<\/p>\n

      \n
    1. Profil resminizi de\u011fi\u015ftirin Burada <\/a><\/span><\/li>\n
    2. Se\u00e7iniz EE CF Fark\u0131ndal\u0131k \u00c7er\u00e7evesi<\/a> (araman\u0131z gerekebilir)<\/span><\/li>\n
    3. Kaydetmek i\u00e7in \"Profil Resmi Olarak Kullan \"a t\u0131klay\u0131n<\/span><\/li>\n<\/ol>\n

      AKILLAN, AYA\u011eA KALK<\/span><\/strong><\/h3>\n

      KF Fark\u0131ndal\u0131k Ay\u0131 \u00f6z\u00fcnde e\u011fitimle ilgilidir. Genellikle g\u00f6r\u00fcnmez olan bu hastal\u0131\u011f\u0131n ayr\u0131nt\u0131lar\u0131n\u0131 bilmek, hepimizi onunla sava\u015fmak i\u00e7in daha donan\u0131ml\u0131 hale getirir. EE gazileri bile bilmedikleri bir \u015fey \u00f6\u011frenebilirler! <\/span><\/p>\n

      Blogumuzda, EE perdesinin arkas\u0131ndaki baz\u0131 rock y\u0131ld\u0131zlar\u0131n\u0131n hikayelerini ve bu bahar EE'ye kat\u0131lman\u0131n baz\u0131 yarat\u0131c\u0131 yollar\u0131n\u0131 payla\u015faca\u011f\u0131z. <\/span><\/p>\n

      Ayr\u0131ca bir de Twitter<\/a> G\u00fcn\u00fcn ger\u00e7e\u011fi - her g\u00fcn KF hakk\u0131nda h\u0131zl\u0131 bir e\u011fitim. Retweetleyin ve favorilerinize ekleyin!<\/span>
      \n<\/span><\/p>\n

      TARI\u0307HLERI\u0307 KAYDET<\/strong><\/span><\/h3>\n

      Takvimlerinizi i\u015faretleyin! Her iki muhte\u015fem y\u0131ll\u0131k Do\u011fu Yakas\u0131 galalar\u0131m\u0131z\u0131n tarihlerini teyit ettik. Davetli listesine kat\u0131lmak i\u00e7in a\u015fa\u011f\u0131daki etkinli\u011fe t\u0131klay\u0131n. <\/span><\/p>\n