{"id":10456,"date":"2018-02-13T09:00:25","date_gmt":"2018-02-13T14:00:25","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=10456"},"modified":"2020-12-28T14:21:04","modified_gmt":"2020-12-28T19:21:04","slug":"fall-in-lovee-with-emilys-entourage-meet-sarena","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/tr\/fall-in-lovee-with-emilys-entourage-meet-sarena\/","title":{"rendered":"Emily'nin Entourage'\u0131 ile a\u015f\u0131k olun: Sarena ile Tan\u0131\u015f\u0131n"},"content":{"rendered":"

EE ile #FallinLovEE Serimiz bu ay uzun s\u00fcredir EE dostu, g\u00f6n\u00fcll\u00fcs\u00fc ve her zaman yan\u0131m\u0131zda olan Sarena Snider ile devam ediyor. Sarena, Emily's Entourage'a nas\u0131l a\u015f\u0131k oldu\u011funu anlat\u0131rken, Entourage'\u0131m\u0131z\u0131n en \u00f6zel arkada\u015f ve aile a\u011f\u0131m\u0131z, kalbimize en yak\u0131n tuttu\u011fumuz ve bu yolculu\u011fu onlars\u0131z hayal edemeyece\u011fimiz insanlar oldu\u011funu s\u0131cak bir \u015fekilde hat\u0131rlat\u0131yoruz. \u0130\u015fte Sarena'n\u0131n hikayesi:<\/span><\/i><\/p>\n

Emily ve ben Penn'de birlikte \u00fcniversiteye gittik ve ikimiz de 2007 y\u0131l\u0131nda mezun olduk. Oradayken, yak\u0131n ortak arkada\u015f\u0131m\u0131z Lisa arac\u0131l\u0131\u011f\u0131yla ba\u011flant\u0131 kurduk. Emily'yi bir ileti\u015fim s\u0131n\u0131f\u0131nda g\u00f6rd\u00fc\u011f\u00fcm\u00fc de hayal meyal hat\u0131rl\u0131yorum, ancak \u00e7ok fazla etkile\u015fimimiz olmad\u0131.\u00a0<\/b>\u00dcniversite hayat\u0131n\u0131 tan\u0131mlayan ini\u015f ve \u00e7\u0131k\u0131\u015flar boyunca Emily gibi bir arkada\u015fa sahip olman\u0131n nas\u0131l bir \u015fey oldu\u011funu s\u0131k s\u0131k merak ediyorum.<\/p>\n

\"\"<\/p>\n

2015'te Emily's Entourage \u015eampiyonu olarak aday g\u00f6sterildim. Philadelphia'daki EE merkez \u00fcss\u00fcnden uzakta, Bat\u0131 Yakas\u0131'nda ya\u015famama ra\u011fmen bu canl\u0131 topluluk beni kendine \u00e7ekti. <\/span><\/p>\n

Sosyal medyada g\u00f6rd\u00fc\u011f\u00fcm kadar\u0131yla, sad\u0131k destek\u00e7ilerden olu\u015fan bir ak\u0131n, EE'de \u00f6zel bir \u015feyler oldu\u011funu g\u00f6steriyordu; g\u00f6n\u00fcll\u00fcler aras\u0131nda bula\u015f\u0131c\u0131 gibi g\u00f6r\u00fcnen bir adanm\u0131\u015fl\u0131k vard\u0131. Emily'nin hikayesinden \u00e7ok etkilendim ve harekete kat\u0131lmak istedi\u011fime karar verdim.<\/strong><\/p><\/blockquote>\n

Ayn\u0131 d\u00f6nemde, 2015 y\u0131l\u0131n\u0131n Aral\u0131k ay\u0131nda, Emily bir TV program\u0131n\u0131n \u00e7ekimleri i\u00e7in Los Angeles'a geldi, <\/span>Doktorlar<\/span><\/i>. Emily, annesi Liza ve ben, San Diego'daki ila\u00e7 \u015firketleriyle g\u00f6r\u00fc\u015fmek \u00fczere yola \u00e7\u0131kmadan \u00f6nce Bat\u0131 Hollywood'da birlikte vakit ge\u00e7irdik. O andan itibaren tam olarak ne oldu\u011funu bilmiyorum ama pek \u00e7ok ki\u015fiyle oldu\u011fu gibi, derin bir ba\u011f kurduk ve arkada\u015fl\u0131\u011f\u0131m\u0131z ger\u00e7ekten ilerledi.<\/span><\/p>\n

O noktadan sonra Emily ve ben yak\u0131nla\u015ft\u0131k. Babam mesane kanseriyle m\u00fccadele ediyordu ve bu s\u00fcre zarf\u0131nda \u00f6nemli bir destek kayna\u011f\u0131 oldu. \u015eefkatli k\u0131sa mesajlarla beni kontrol ediyor, benzersiz bir \u015fekilde nazik ve \u015fefkatli bir destek sunuyordu. Uzun soluklu bir mesaj zincirimiz vard\u0131; bazen her g\u00fcn kontrol ediyordu. <\/span><\/p>\n

Onu di\u011fer arkada\u015flar\u0131ndan farkl\u0131 k\u0131lan \u015fey, babam\u0131n sa\u011fl\u0131\u011f\u0131 hakk\u0131nda bana \u00f6zel sorular sormas\u0131 ve neredeyse beni d\u00fc\u015f\u00fcnmeye zorlamas\u0131yd\u0131. Savunmas\u0131z olmama izin verdi ve Emily'nin m\u00fccadele etmenin ne demek oldu\u011funu ger\u00e7ekten bildi\u011fi ve ailemizin ac\u0131s\u0131yla derin bir empati kurabildi\u011fi konusunda dile getirilmeyen bir anlay\u0131\u015f vard\u0131. <\/span>Emily gibi insanlar olmasayd\u0131 bu d\u00f6nemi nas\u0131l atlat\u0131rd\u0131m bilmiyorum.<\/p>\n

Metinlerimizde, o <\/span>nadiren<\/span><\/i> Kendisinden bahsederdi(!)-konu\u015fmay\u0131 tekrar ona y\u00f6nlendirmek i\u00e7in ne kadar u\u011fra\u015f\u0131rsam u\u011fra\u015fay\u0131m, o daha \u00e7ok benim iyili\u011fimle ilgilenirdi. Onun deste\u011fi ve \u015fefkati, babam Nisan 2016'da vefat edene kadar karanl\u0131k g\u00fcnlerimi atlatmam\u0131 sa\u011flad\u0131. <\/span><\/p>\n

Emily, Liza ve ben, EE babam\u0131n hay\u0131rseverlik \u00e7abalar\u0131n\u0131 s\u00fcrd\u00fcrmek i\u00e7in kurdu\u011fu Snider Vakf\u0131 arac\u0131l\u0131\u011f\u0131yla hibe ba\u015fvurusunda bulunurken bir ba\u011f geli\u015ftirmeye devam ettik. EE'nin \u00e7\u0131\u011f\u0131r a\u00e7an \u00e7al\u0131\u015fmalar\u0131 ve Emily'nin ya\u015fam\u0131 tehdit eden sa\u00e7ma mutasyonlarla do\u011fanlara yard\u0131m etmeye y\u00f6nelik lazer oda\u011f\u0131 hakk\u0131nda \u00e7ok daha fazla \u015fey \u00f6\u011frendim.<\/span> <\/b><\/p>\n

Kurulumuza EE'nin Emily'nin KF ile m\u00fccadelesinden \u00e7ok daha fazlas\u0131n\u0131 kapsad\u0131\u011f\u0131n\u0131 ve biyomedikal ara\u015ft\u0131rmalar\u0131n y\u00fcr\u00fct\u00fclme \u015feklini tart\u0131\u015fmas\u0131z bir \u015fekilde de\u011fi\u015ftirdi\u011fini a\u00e7\u0131klad\u0131m. <\/b><\/p><\/blockquote>\n

May\u0131s 2016'da Do\u011fu Yakas\u0131'na geri d\u00f6nd\u00fcm ve nihayet onu daha s\u0131k g\u00f6rebildim ve yorulmak bilmeyen ba\u011fl\u0131l\u0131\u011f\u0131na yak\u0131ndan tan\u0131k oldum. Bir sonraki sonbaharda Emily ve ben New York'taki FasterCures konferans\u0131na kat\u0131ld\u0131k. Emily binlerce ki\u015finin \u00f6n\u00fcnde hastaya y\u00f6nelik t\u0131bbi ara\u015ft\u0131rmalar\u0131n \u00f6nc\u00fcs\u00fc olarak an\u0131ld\u0131.<\/span> Kendi kendime d\u00fc\u015f\u00fcnd\u00fcm, \"<\/span>Emily \u00e7ok ama \u00e7ok al\u00e7akg\u00f6n\u00fcll\u00fc. Pek \u00e7ok ki\u015finin g\u00f6z\u00fcnde bir s\u00fcperstar ama bundan hi\u00e7 etkilenmiyor! <\/span><\/i>Emily bir lider, bir vizyoner olma yetene\u011fiyle do\u011fmu\u015ftur ve ili\u015fki kurma konusunda do\u011fal bir yetene\u011fe sahiptir.<\/span><\/p>\n

\"\"

Do\u011fu k\u0131y\u0131lar\u0131na geri d\u00f6nmek Emily ile daha fazla tak\u0131labilece\u011fim anlam\u0131na geliyor! \u0130\u015fte Maine'de biraz dinlenmeye ve rahatlamaya ihtiyac\u0131m\u0131z var.<\/p><\/div>\n

H\u00e2l\u00e2 uzun mesafeli bir mesaj zincirimiz var ve bana s\u0131k s\u0131k gece ge\u00e7 saatlerde mesaj at\u0131yor. \u0130\u015f eti\u011fi s\u00f6z konusu oldu\u011funda maratona benzer bir dayan\u0131kl\u0131l\u0131\u011f\u0131 var. Ama bu onun i\u00e7in sadece bir i\u015f de\u011fil, ilahi bir \u00e7a\u011fr\u0131 gibi. Emily hedeflerine ula\u015fmak i\u00e7in yard\u0131m ve i\u015fbirli\u011fi isteme konusunda nadir g\u00f6r\u00fclen bir cesarete sahip. Zor sorular sormaktan asla \u00e7ekinmiyor. Emily'nin cesur yakla\u015f\u0131m\u0131na, ba\u011fl\u0131l\u0131\u011f\u0131na, detaylara g\u00f6sterdi\u011fi \u00f6zene, merak\u0131na, d\u00fc\u015f\u00fcncelili\u011fine, duyarl\u0131l\u0131\u011f\u0131na ve daha fazlas\u0131na hayran olmamak m\u00fcmk\u00fcn de\u011fil.<\/span><\/p>\n

Kat\u0131ld\u0131\u011f\u0131m ilk EE Galas\u0131 2016 y\u0131l\u0131n\u0131n Aral\u0131k ay\u0131ndayd\u0131.\u00a0<\/span>EE toplulu\u011fu beni \u015fa\u015fk\u0131na \u00e7evirdi; bir\u00e7ok gala ve etkinli\u011fe kat\u0131ld\u0131m, ancak bu etkinlik beni g\u00f6zya\u015flar\u0131na bo\u011fdu ve tek bir bireyin bir hareket in\u015fa etme g\u00fcc\u00fcne olan inanc\u0131m\u0131 tazeledi.<\/p>\n

\"\"

Emily, 5. Y\u0131ll\u0131k Evening with Emily's Entourage Galas\u0131'nda destek\u00e7ilerine sesleniyor - beni kendine ba\u011flayan gala!<\/p><\/div>\n

Galan\u0131n bana en \u00e7ok tak\u0131lan y\u00f6n\u00fc \u015fu oldu <\/span>Yani <\/span><\/i>Etkinlikte benim gibi hisseden bir\u00e7ok ki\u015fi daha vard\u0131. Emily, g\u00f6sterdi\u011fi \u00f6zen ve \u015fefkat, liderli\u011fi, arkada\u015flar\u0131na ve toplulu\u011funa olan ba\u011fl\u0131l\u0131\u011f\u0131 ve insanlara ger\u00e7ekten zaman ay\u0131rmas\u0131 sayesinde bir\u00e7o\u011fu art\u0131k arkada\u015f olan pek \u00e7ok ki\u015fiyi etkiledi. EE'yi \u00e7al\u0131\u015ft\u0131rmak, toplant\u0131lara gitmek, yazmak, e-posta g\u00f6ndermek, g\u00fcnl\u00fck tedavilerini y\u00f6netmek gibi i\u015flerin ortas\u0131nda Emily kendini ad\u0131yor ve t\u00fcm dikkatini etraf\u0131ndakilere veriyor. Teknoloji \u00e7a\u011f\u0131nda, di\u011fer insanlarla birlikteyken tam anlam\u0131yla mevcut. (Ve hayat\u0131nda hi\u00e7 haz\u0131r bir e-posta yazd\u0131\u011f\u0131n\u0131 sanm\u0131yorum!)<\/span><\/p>\n

Emily, d\u00fcnyadaki f\u0131rsatlar\u0131 ve iyili\u011fi g\u00f6rmek i\u00e7in her an, her zor ya da y\u00fcrek par\u00e7alay\u0131c\u0131 durumda potansiyel oldu\u011funu g\u00f6steriyor. Bu i\u00e7ten gelir.\u00a0<\/em><\/p>\n

Bana zorluk ve aksilik zamanlar\u0131nda kendinizi ve ba\u015fkalar\u0131n\u0131 in\u015fa edebilece\u011finizi \u00f6\u011fretti. Her \u015fey sevgide bitiyor.<\/strong><\/p><\/blockquote>\n

Emily hastal\u0131\u011f\u0131n izole edici olabilece\u011fini anl\u0131yor, bu y\u00fczden bir topluluk kurdu. KF i\u00e7in bir tedavi bulmaya kararl\u0131, ancak etraf\u0131ndakiler i\u00e7in de ayn\u0131 derecede endi\u015feli.\u00a0<\/span>Di\u011fer insanlar\u0131n, ne ya\u015f\u0131yor olurlarsa olsunlar g\u00f6r\u00fcnmez olmad\u0131klar\u0131n\u0131 bilmelerini sa\u011fl\u0131yor.<\/em>\u00a0Buna kar\u015f\u0131l\u0131k, hepimiz i\u00e7in g\u00f6r\u00fcn\u00fcr bir \u0131\u015f\u0131k haline geldi ve Emily ve Entourage'\u0131na a\u015f\u0131k olmaktan ba\u015fka se\u00e7enek yok.<\/span><\/p>","protected":false},"excerpt":{"rendered":"

EE ile #FallinLovEE Serimiz bu ay uzun s\u00fcredir EE dostu, g\u00f6n\u00fcll\u00fcs\u00fc ve her zaman yan\u0131m\u0131zda olan Sarena Snider ile devam ediyor. Sarena, Emily's Entourage'a nas\u0131l a\u015f\u0131k oldu\u011funu anlat\u0131rken, Entourage'\u0131m\u0131z\u0131n en \u00f6zel arkada\u015f ve aile a\u011f\u0131m\u0131z, kalbimize en yak\u0131n tuttu\u011fumuz insanlar oldu\u011funu s\u0131cak bir \u015fekilde hat\u0131rlat\u0131yoruz... <\/p>\n

<\/div>\n

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