{"id":16142,"date":"2021-10-15T14:01:34","date_gmt":"2021-10-15T18:01:34","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?page_id=16142"},"modified":"2021-12-10T15:04:58","modified_gmt":"2021-12-10T20:04:58","slug":"cf-crew","status":"publish","type":"page","link":"https:\/\/www.emilysentourage.org\/tr\/cf-crew\/","title":{"rendered":"CureFinders Ekibine Kat\u0131l\u0131n"},"content":{"rendered":"

\"\"<\/span><\/p>\n

Kistik fibrozis (KF) toplulu\u011funun son 10%'si i\u00e7in h\u0131zl\u0131 ilerlemeye, hastal\u0131kla ya\u015fayanlar ve onlar\u0131 seven insanlardan daha fazla ilgi duyan kimse yoktur. CureFinders Crew (CF Crew), KF toplulu\u011funun Emily's Entourage'\u0131n (EE) KF'nin nonsense mutasyonlar\u0131na sahip olanlar da dahil olmak \u00fczere KF toplulu\u011funun son 10%'si i\u00e7in hayat kurtar\u0131c\u0131 ara\u015ft\u0131rma ve ila\u00e7 geli\u015ftirmeyi h\u0131zland\u0131rma misyonunu desteklemek i\u00e7in bir araya gelebilece\u011fi bir alan sa\u011flamak amac\u0131yla sizleri d\u00fc\u015f\u00fcnerek olu\u015fturulmu\u015ftur.<\/span><\/p>\n

Sesinizi, beyninizi, yarat\u0131c\u0131l\u0131\u011f\u0131n\u0131z\u0131, fikirlerinizi ve g\u00fcc\u00fcn\u00fcz\u00fc asla k\u00fc\u00e7\u00fcmsemeyin. Onlar da\u011flar\u0131 yerinden oynat\u0131r. - Emily Kramer-Golinkoff, kurucu ortak, Emily's Entourage<\/span><\/p><\/blockquote>\n

Neden CF Ekibine Kat\u0131lmal\u0131s\u0131n\u0131z?<\/strong><\/h3>\n

\"\"<\/strong><\/h3>\n

Emily's Entourage, H\u0130\u00c7 K\u0130MSEN\u0130N geride b\u0131rak\u0131lmamas\u0131 gerekti\u011fine ve KF'li her bireyin bir gelecek ve derin bir nefes i\u00e7in ger\u00e7ek\u00e7i bir umudu hak etti\u011fine inanmaktad\u0131r. CF Crew'un bir par\u00e7as\u0131 olarak, hikayenizi payla\u015farak ve a\u011f\u0131n\u0131z\u0131 harekete ge\u00e7irerek son 10% i\u00e7in \u00e7ok ihtiya\u00e7 duyulan de\u011fi\u015fikli\u011fi ortaya \u00e7\u0131karmam\u0131za yard\u0131mc\u0131 olabilirsiniz. Fark yaratma g\u00fcc\u00fcne sahipsiniz ve ara\u015ft\u0131rma ve ila\u00e7 geli\u015ftirmeye yapt\u0131\u011f\u0131m\u0131z agresif yat\u0131r\u0131m\u0131n finanse edilmesine yard\u0131mc\u0131 olarak bizi KF toplulu\u011funun 100%'si i\u00e7in h\u0131zl\u0131 at\u0131l\u0131mlar yapma ortak hedefimize yakla\u015ft\u0131rabilirsiniz - kimse geride kalmad\u0131<\/b>. <\/span><\/p>\n

Kimler Kat\u0131labilir?<\/strong><\/h3>\n

KF Ekibi, ister son 10%'nin bir par\u00e7as\u0131 olun ister mutasyon hedefli bir tedavinin hayat de\u011fi\u015ftiren etkisini ilk elden deneyimlemi\u015f 90%'nin bir par\u00e7as\u0131 olun, KF ile ba\u011flant\u0131s\u0131 olan herkese a\u00e7\u0131kt\u0131r. <\/span><\/p>\n

Son 10% i\u00e7in h\u0131zl\u0131 ve kapsaml\u0131 ilerlemeler sa\u011flamak \u00fczere \u00e7al\u0131\u015fan, de\u011fi\u015fim yaratan, da\u011flar\u0131 yerinden oynatan KF ailelerinden olu\u015fan \u00f6zel bir gruba kat\u0131lacaks\u0131n\u0131z. Ve herkesten daha yak\u0131ndan bildi\u011finiz gibi, bu ilerleme muhtemelen yeterince yak\u0131nda olamaz!<\/span><\/p>\n

 DAHA FAZLA BI\u0307LGI\u0307 I\u0307\u00c7I\u0307N BI\u0307ZI\u0307MLE I\u0307LETI\u0307\u015eI\u0307ME GE\u00c7I\u0307N<\/a><\/p>","protected":false},"excerpt":{"rendered":"

There is nobody with a deeper vested interest in fast progress for the final 10% of the cystic fibrosis (CF) community than those living with the disease and the people who love them. The CureFinders Crew (CF Crew) was created with you in mind \u2014 to provide a space where the CF community can come… <\/p>\n

<\/div>\n

Daha fazla bilgi edinin<\/a><\/p>","protected":false},"author":1281,"featured_media":16211,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_seopress_titles_title":"Emily's Entourage >> Join the CureFinders Crew","_seopress_titles_desc":"The CureFinders Crew (CF Crew) was created with the cystic fibrosis community in mind \u2014 to provide a space where they can come together in support of Emily\u2019s Entourage\u2019s (EE\u2019s) mission to speed lifesaving research and drug development for the final 10% of the CF community.","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[{"_seopress_pro_rich_snippets_type":"none"}],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-16142","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/pages\/16142","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/comments?post=16142"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/pages\/16142\/revisions"}],"predecessor-version":[{"id":16447,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/pages\/16142\/revisions\/16447"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media\/16211"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/tr\/wp-json\/wp\/v2\/media?parent=16142"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}