{"id":6008,"date":"2017-05-05T08:47:23","date_gmt":"2017-05-05T12:47:23","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=6008"},"modified":"2023-12-20T04:58:12","modified_gmt":"2023-12-20T09:58:12","slug":"eat-a-cookie-find-a-cure","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/eat-a-cookie-find-a-cure\/","title":{"rendered":"\u00c4t en kaka, hitta ett botemedel"},"content":{"rendered":"

D\u00e5 och d\u00e5 bjuder vi in g\u00e4stbloggare som \u00e4r en del av EE-communityn f\u00f6r att bidra med sina unika r\u00f6ster till v\u00e5r blogg. Dagens g\u00e4stbloggare \u00e4r den m\u00e5ng\u00e5riga EE-skatten Julie Zibelman, den kreativa hj\u00e4rnan bakom s\u00e5 m\u00e5nga EE-magiska \u00f6gonblick - som denna l\u00e4ckra kakinsamling!\u00a0<\/span><\/em><\/p>\n

N\u00e4r jag har f\u00e5tt fr\u00e5gan om hur jag blev s\u00e5 n\u00e4ra kopplad till <\/span>Emily's Entourage<\/b> och KG-familjen bakom de lila E:na, \u00e4r det alltid det mest levande minnet som dyker upp. \u00a0<\/span><\/p>\n

Det var en l\u00f6rdagseftermiddag i Narberth Park. Det var morgonen f\u00f6r Narberth CF Run, ett lopp som jag hade sprungit m\u00e5nga g\u00e5nger tidigare. Att springa f\u00f6r en sak var inget fr\u00e4mmande f\u00f6r mig, men det var verkligen ingen s\u00e4rskild sak som l\u00e5g mig varmt om hj\u00e4rtat.<\/span><\/p>\n

Denna l\u00f6rdag \u00f6ver hela f\u00e4ltet, EE var \u00f6verallt. \u00a0<\/span><\/p>\n

Jag hade h\u00f6rt talas om <\/span>Emily's Entourage<\/b> och hade till och med tr\u00e4ffat \"den\" Emily men hade aldrig satt ihop \"de TV\u00c5\". \u00a0<\/span><\/p>\n

Den <\/span>Emily<\/i><\/b> Jag visste att jag var en kund. En livlig och ih\u00e4rdig marknadsf\u00f6rare p\u00e5 Penn Medicines marknadsavdelning. \u00a0<\/span><\/p>\n

Jag var hennes leverant\u00f6r och tillhandah\u00f6ll reklamprodukter och kl\u00e4desplagg vid m\u00e5nga tillf\u00e4llen. V\u00e5ra interaktioner var exakta, s\u00f6ml\u00f6sa och noggranna. Aldrig skulle jag ha trott att detta var EE:s ansikte ut\u00e5t. <\/span>Emily<\/i><\/b>.<\/i>\u00a0Aldrig. <\/span><\/p>\n

S\u00e5 den h\u00e4r l\u00f6rdagsmorgonen var bef\u00e4lhavaren officiant f\u00f6r packningen. Hon bar EE \u00f6ver hela kroppen och ansiktet. Liza Kramer, mamma och agent till Emily Kramer-Golinkoff, tog \u00f6ver bes\u00e4ttningen mitt i Narberth Park. \u00a0<\/span><\/p>\n

Utan att tveka visste jag att jag var tvungen att g\u00e5 till botten med <\/span>Entourage<\/b>dess uppdrag och dess m\u00e4nniskor. Efter att ha blivit presenterad f\u00f6r bara tv\u00e5 av klanmedlemmarna, Liza och EE:s ordf\u00f6rande Annie Kramer-Golinkoff, min hj\u00e4lte \u00f6ver alla hj\u00e4ltar, var jag fast.<\/span><\/p>\n

Jag fick snabbt och entusiastiskt information om Emily, cystisk fibros och de m\u00e5nga \u00e4ventyr som p\u00e5g\u00e5r f\u00f6r att g\u00f6ra skillnad i arbetet med att hitta ett botemedel. Mitt i allt detta f\u00f6rs\u00f6kte Liza ta reda p\u00e5 mer om mig. Vem jag var, om mina barn, mina hundar, mitt jobb och hur jag presenterade mig. Det var som att tr\u00e4ffa en energikraft som jag aldrig tidigare k\u00e4nt, en kraft som jag omedelbart beundrade och s\u00e5 g\u00e4rna ville vara en del av. Jag var IN.<\/span><\/p>\n

Emily's Entourage<\/b> \u00e4r banbrytande i arbetet med att hitta ett botemedel f\u00f6r sin s\u00e4llsynta mutation f\u00f6r cystisk fibros och har redan samlat in miljoner. Detta hj\u00e4lper inte bara Emily utan s\u00e5 m\u00e5nga andra med nonsensmutationer d\u00e4r lite forskning har gjorts tidigare.<\/span><\/p>\n

Genom st\u00e4ndig styrka, uth\u00e5llighet och gemenskap kommer vi att hitta ett botemedel. Det \u00e4r genom att r\u00e4kna med v\u00e5r Entourage som vi kommer att n\u00e5 dit. Varje liten donation l\u00e4ngs v\u00e4gen g\u00f6r skillnad, och det \u00e4r d\u00e4rf\u00f6r vi g\u00f6r v\u00e5r lilla del genom att s\u00e4lja dessa Emily's Entourage-cookies!<\/p>\n

\"\"<\/p>\n

Kakor \u00e4r n\u00e5got som alla tycker om, och nu kan du skicka dessa nybakade kakor som en g\u00e5va eller best\u00e4lla en upps\u00e4ttning till dig sj\u00e4lv och njuta av vetskapen om att int\u00e4kterna g\u00e5r direkt till Emily's Entourage.<\/span><\/p>\n

Ta en l\u00e5da h\u00e4r<\/a>\u00a0- Varje bidrag tar oss ett steg n\u00e4rmare ett botemedel.<\/span><\/p>\n

\"\"<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today\u2019s guest blogger is longtime EE treasure\u00a0Julie Zibelman, the creative mind behind so many EE magical moments — like this delicious cookie fundraiser!\u00a0 Whenever I\u2019ve been asked how I became so closely… <\/p>\n

<\/div>\n

L\u00e4s mer om<\/a><\/p>","protected":false},"author":750,"featured_media":6010,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-6008","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/CookiesMain.png","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/6008","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/750"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=6008"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/6008\/revisions"}],"predecessor-version":[{"id":20487,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/6008\/revisions\/20487"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media\/6010"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=6008"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=6008"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=6008"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}