{"id":5903,"date":"2017-04-14T00:16:38","date_gmt":"2017-04-14T04:16:38","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=5903"},"modified":"2020-01-08T20:28:27","modified_gmt":"2020-01-09T01:28:27","slug":"a-glimpse-into-life-with-chronic-illness","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/a-glimpse-into-life-with-chronic-illness\/","title":{"rendered":"En glimt in i livet med kronisk sjukdom"},"content":{"rendered":"

Har du n\u00e5gonsin undrat hur det egentligen k\u00e4nns att ha en allvarlig kronisk sjukdom som cystisk fibros?<\/p>\n

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Rast p\u00e5 sjukhuset<\/p><\/div>\n

Christine Miserandinos \"Spoon Theory\" \u00e4r legendarisk i v\u00e4rlden av kroniska sjukdomar f\u00f6r att den ger friska m\u00e4nniskor en inblick i livet med sjukdom (s\u00e5 till den grad att de med kroniska sjukdomar ofta k\u00e4rleksfullt kallar sig sj\u00e4lva f\u00f6r \"spoonies\"). Christine \u00e4r en ung kvinna med lupus och hon beskriver p\u00e5 ett m\u00e4sterligt s\u00e4tt en stor skillnad mellan att vara sjuk och att vara frisk: att beh\u00f6va t\u00e4nka efter noga och fatta sv\u00e5ra beslut om hur man spenderar sin energi varje dag-<\/span>n\u00e5got som vi andra helt enkelt tar f\u00f6r givet.<\/p>\n

Dessa beslut handlar ofta om s\u00e5 grundl\u00e4ggande saker som att v\u00e4lja mellan att tv\u00e4tta eller laga middag, att g\u00e5 och handla mat eller att hinna till gymmet. Med en begr\u00e4nsad reservoar av energi m\u00e5ste Emily och andra som hon st\u00e4ndigt prioritera n\u00e4r det g\u00e4ller deras energif\u00f6rbrukning - och insatserna \u00e4r h\u00f6ga. Att till exempel pressa sig \u00f6ver Emilys gr\u00e4ns kan leda till allvarliga konsekvenser, bland annat lungbl\u00f6dningar, inflammation och \u00f6kad risk f\u00f6r lunginfektioner.<\/p>\n

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Alla skedar \u00e4r slut<\/p><\/div>\n

Ut\u00f6ver piller och medicinska behandlingar, l\u00e4karbes\u00f6k och sjukhusvistelser \u00e4r det ofta den dagliga p\u00e5verkan p\u00e5 Emilys energi som \u00e4r den sv\u00e5raste delen av CF. Det visar sig att energi \u00e4r en mycket begr\u00e4nsad och dyrbar resurs. Ofta \u00e4r hennes \u00f6gon stora och hennes ambitioner \u00e4nnu st\u00f6rre, men hennes kropp kan helt enkelt inte h\u00e5lla j\u00e4mna steg.<\/p>\n

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Tre s\u00f6mniga systrar vid slutet av en l\u00e5ng dag<\/p><\/div>\n

S\u00e5 l\u00e4s p\u00e5. Och n\u00e4sta g\u00e5ng du tr\u00e4ffar Emily, fr\u00e5ga henne hur m\u00e5nga skedar hon har tagit f\u00f6r dagen. Vi \u00e4r beredda att sl\u00e5 vad om att du kommer att bli ganska chockad av hennes svar.<\/p>\n

L\u00e4s den h\u00e4r >> Skedteorin av Christine Miserandino<\/a><\/p>\n

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Spara p\u00e5 skedarna inf\u00f6r en stor dag med m\u00f6ten och tester i samband med kliniska pr\u00f6vningar<\/p><\/div>","protected":false},"excerpt":{"rendered":"

Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind of legendary in the chronic illness world for giving healthy folks a glimpse into life with sickness (so much so that those with chronic illness often endearingly refer to themselves as “spoonies”). A\u00a0young… <\/p>\n

<\/div>\n

L\u00e4s mer om<\/a><\/p>","protected":false},"author":1281,"featured_media":5908,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[{"url":"","title":"","desc":"","thumbnail":"","duration":"","rating":"","view_count":"","tag":"","cat":""}],"_seopress_pro_schemas_manual":null,"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1,6],"tags":[],"class_list":["post-5903","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_1544.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/5903","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=5903"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/5903\/revisions"}],"predecessor-version":[{"id":14103,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/5903\/revisions\/14103"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media\/5908"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=5903"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=5903"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=5903"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}