{"id":447,"date":"2012-02-02T08:46:41","date_gmt":"2012-02-02T15:46:41","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=447"},"modified":"2023-12-19T01:30:43","modified_gmt":"2023-12-19T06:30:43","slug":"exciting-new-cf-drug-approval","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/exciting-new-cf-drug-approval\/","title":{"rendered":"Sp\u00e4nnande nytt godk\u00e4nnande av CF-l\u00e4kemedel!"},"content":{"rendered":"

Hej, allihop,<\/p>\n

Vi har n\u00e5gra ENORMA nyheter att dela med oss av som alla vi p\u00e5 Emily's Entourage \u00e4r mycket glada \u00f6ver. I b\u00f6rjan av veckan meddelades att FDA har godk\u00e4nt ett nytt l\u00e4kemedel, Kalydeco, som \u00e4r det F\u00d6RSTA l\u00e4kemedlet n\u00e5gonsin som korrigerar det underliggande genetiska problemet vid cystisk fibros (CF). L\u00e4kemedlet kommer dock endast att hj\u00e4lpa 4% av CF-populationen som har en viss genetisk mutation (G551D). Tyv\u00e4rr v\u00e4ntar de \u00e5terst\u00e5ende 96% personer som lever med CF, d\u00e4ribland Emily, fortfarande p\u00e5 sin livr\u00e4ddande behandling.<\/p>\n

Med dessa enorma nyheter p\u00e5minns vi om varf\u00f6r alla v\u00e5ra insamlingsinsatser \u00e4r S\u00c5 viktiga. De pengar vi samlar in finansierar livsf\u00f6r\u00e4ndrande forskning som denna. Den h\u00e4r fantastiska uppt\u00e4ckten visar att vi \u00e4r S\u00c5 n\u00e4ra, men vi \u00e4r inte framme \u00e4n. Vi m\u00e5ste forts\u00e4tta att driva p\u00e5 och samla in pengar s\u00e5 att Emily och alla andra med CF ocks\u00e5 kan dra nytta av en livsf\u00f6r\u00e4ndrande behandling. Du kan hj\u00e4lpa till genom att g\u00f6ra en donation och forts\u00e4tta sprida budskapet om Emily's Entourage.<\/p>\n

Fr\u00e5n oss alla p\u00e5 Emily's Entourage, tack f\u00f6r ert fortsatta st\u00f6d!<\/p>\n

-Emily's Entourage<\/p>\n

 <\/p>\n

L\u00e4s CFF:s pressmeddelande: https:\/\/www.cff.org\/News\/News-Archive\/2012\/FDA-Approves-Kalydeco-(VX-770)-%E2%80%94-First-Drug-That-Targets-the-Underlying-Cause-of-Cystic-Fibrosis\/<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Hi all, We have some HUGE news to share with you that all of us at Emily’s Entourage are extremely excited about. Early this week, it was announced that the FDA approved a new drug, Kalydeco, which is the FIRST EVER drug to correct the underlying genetic problem in Cystic Fibrosis (CF). However, the drug… <\/p>\n

<\/div>\n

L\u00e4s mer om<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[6],"tags":[],"class_list":["post-447","post","type-post","status-publish","format-standard","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/447","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=447"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/447\/revisions"}],"predecessor-version":[{"id":20229,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/447\/revisions\/20229"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=447"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=447"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=447"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}