{"id":3154,"date":"2015-08-30T16:12:50","date_gmt":"2015-08-30T23:12:50","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=3154"},"modified":"2015-08-30T16:12:50","modified_gmt":"2015-08-30T23:12:50","slug":"an-inspired-poem","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/an-inspired-poem\/","title":{"rendered":"En inspirerad dikt"},"content":{"rendered":"

\u00c4ven om vi kanske \u00e4r partiska, s\u00e5 \u00e4r vi ganska s\u00e4kra p\u00e5 att vi har den mest otroliga Entourage som finns! Varje dag lyckas ni n\u00e5 ut till oss och ber\u00f6ra oss p\u00e5 de mest omt\u00e4nksamma s\u00e4tt. En mycket speciell Entourage-medlem inspirerades av Emily till att skriva en originaldikt och vi \u00e4r s\u00e5 r\u00f6rda att vi bara m\u00e5ste dela den med er alla! Julie Zibelman Wool \u00e4r en integrerad och entusiastisk medlem av EE och hon har gett en liten bakgrund till hur hon kom att bli en del av Entourage, tillsammans med sin vackra dikt. Julie, vi \u00e4lskar dig!<\/em><\/p>\n

Jag tr\u00e4ffade Emily f\u00f6rsta g\u00e5ngen genom mitt jobb, och det hade faktiskt absolut ingenting med EE att g\u00f6ra. Vid den tiden var Emily en del av marknadsavdelningen p\u00e5 Penn Medicine och n\u00e4r Emily kontaktade mig var hon mycket uppm\u00e4rksam p\u00e5 den aktuella uppgiften. Jag s\u00e4ljer reklamprodukter, och hon var p\u00e5 marknaden f\u00f6r dem. N\u00e4r vi talades vid var hon kortfattad och fokuserad, och precis som nu skulle jag aldrig ha gissat att Emily levde med CF.<\/p>\n

Jag k\u00e4nner mig s\u00e5 lyckligt lottad. Att n\u00e5gra \u00e5r senare f\u00e5 reda p\u00e5 att Emily \u00e4r den<\/em> Emily of EE, och att l\u00e4ra k\u00e4nna henne p\u00e5 ett personligt plan snarare \u00e4n bara p\u00e5 ett professionellt plan har f\u00f6r\u00e4ndrat mig. Best\u00e4mning<\/strong> \u00e4r inte ett nytt ord f\u00f6r mig, men Emily har omdefinierat det. Under hela mitt liv har jag aldrig tr\u00e4ffat en kvinna, en familj eller en organisation som \u00e4r mer sammanl\u00e4nkad med k\u00e4rlek - \u00e4kta k\u00e4rlek. Att vara i n\u00e4rheten av familjen Kramer-Golinkoff fick mig inte att fr\u00e5ga mig sj\u00e4lv \"vad kan jag g\u00f6ra?\" utan jag k\u00e4nde omedelbart \"vad kan jag inte g\u00f6ra?\"<\/p>\n

Jag \u00e4lskar att ha en roll i Entourage, men \u00e4rligt talat uppskattar jag ocks\u00e5 min egentid med Emily och hennes familj. De g\u00f6r mig lycklig.<\/p>\n

N\u00e4r allt k\u00e4nns f\u00f6r tungt
\nOch du kan inte ta ett andetag
\nJag har h\u00f6rt att det \u00e4r precis som att leva
\nN\u00e4r du f\u00f6ds med CF<\/p>\n

F\u00f6r att f\u00e5 en inblick i min v\u00e4ns v\u00e4rld
\nJag blev tillsagd att ta ett sugr\u00f6r och kl\u00e4mma fast det i ena \u00e4nden<\/p>\n

\"F\u00f6rs\u00f6k nu att andas in, vad tycker du?\"
\n\"Det finns ingen luft, jag kan inte andas, var det meningen?\"<\/p>\n

Kl\u00e4mmer ihop mitten och f\u00f6rs\u00f6ker andas
\nHur skulle n\u00e5gon n\u00e5gonsin kunna lyckas?<\/p>\n

F\u00f6rest\u00e4ll dig nu
\nAtt g\u00f6ra detta
\nVarje dag
\nMen det finns inget halmstr\u00e5
\nTa bort det<\/p>\n

Min banbrytande v\u00e4n
\nL\u00e5ter inte detta stoppa henne f\u00f6r s\u00e4ker
\nHon \u00e4r p\u00e5 ett uppdrag, en jakt
\nVi beh\u00f6ver ett botemedel<\/p>\n

S\u00e5 precis som v\u00e5r or\u00e4dda ledare
\nVi skyr inga medel f\u00f6r att stoppa en kamp
\nV\u00e5r Entourage \u00e4r fullastad och redo
\nVi kommer att g\u00f6ra djupa andetag
\nEmily, h\u00e5ll i dig!<\/p>\n

Vi \u00e4lskar dig!<\/p>","protected":false},"excerpt":{"rendered":"

Although we may be biased, we\u2019re pretty sure we have the most incredible Entourage around! Every single day you manage to reach out to us, and touch us in the most thoughtful ways. A very special Entourage member was inspired by Emily to compose an original poem and we are so touched, we simply had… <\/p>\n

<\/div>\n

L\u00e4s mer om<\/a><\/p>","protected":false},"author":59,"featured_media":3025,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1,6],"tags":[],"class_list":["post-3154","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/eegala2.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/3154","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/59"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=3154"}],"version-history":[{"count":1,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/3154\/revisions"}],"predecessor-version":[{"id":3155,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/3154\/revisions\/3155"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media\/3025"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=3154"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=3154"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=3154"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}