{"id":25393,"date":"2025-07-01T09:00:11","date_gmt":"2025-07-01T13:00:11","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=25393"},"modified":"2025-07-01T09:47:09","modified_gmt":"2025-07-01T13:47:09","slug":"run-with-heart-race-for-breakthroughs-join-team-ee-at-the-2025-philadelphia-marathon-weekend-to-support-people-with-cystic-fibrosis","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/run-with-heart-race-for-breakthroughs-join-team-ee-at-the-2025-philadelphia-marathon-weekend-to-support-people-with-cystic-fibrosis\/","title":{"rendered":"Spring med hj\u00e4rtat. T\u00e4vla f\u00f6r genombrott. G\u00e5 med i Team EE vid 2025 Philadelphia Marathon Weekend f\u00f6r att st\u00f6dja personer med cystisk fibros"},"content":{"rendered":"<p style=\"text-align: center;\"><i><span style=\"font-weight: 400;\">G\u00e5 med i Team EE f\u00f6r att f\u00f6rvandla varje kilometer av Philadelphia Marathon Weekend 2025 till ett momentum f\u00f6r livr\u00e4ddande genombrott f\u00f6r dem med cystisk fibros som fortfarande v\u00e4ntar p\u00e5 ett botemedel.<\/span><\/i><\/p>\n<p><b><img fetchpriority=\"high\" decoding=\"async\" class=\"alignright wp-image-25396 size-medium-portfolio\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/EmilysEntouragePhiladelphiaMarathon2023-108-650x530.jpg\" alt=\"\" width=\"650\" height=\"530\" \/>Philadelphia, PA<\/b><span style=\"font-weight: 400;\">-July 1, 2025-Emily's Entourage (EE), en innovativ 501(c)(3)-organisation som p\u00e5skyndar forskning f\u00f6r personer med cystisk fibros (CF) som inte drar nytta av befintliga mutationsinriktade terapier, \u00e4r stolta \u00f6ver att meddela att registreringen nu \u00e4r \u00f6ppen f\u00f6r att g\u00e5 med i Team EE f\u00f6r Philadelphia Marathon Weekend 2025, som \u00e4ger rum 21-23 november 2025.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Oavsett om du springer f\u00f6r f\u00f6rsta g\u00e5ngen eller \u00e4r en erfaren idrottare har Team EE startnummer tillg\u00e4ngliga f\u00f6r alla lopp, inklusive <\/span><span style=\"font-weight: 400;\">Rothman Orthopaedics 8K<\/span><span style=\"font-weight: 400;\">, <\/span><span style=\"font-weight: 400;\">Dietz &amp; Watson Philadelphia Halvmaraton<\/span><span style=\"font-weight: 400;\">, och <\/span><span style=\"font-weight: 400;\">AACR Philadelphia Marathon<\/span><span style=\"font-weight: 400;\">. Philadelphia Marathon Weekend, som utspelar sig mot den livliga bakgrunden av ett av de 10 st\u00f6rsta maratonloppen i USA, \u00e4r ett \u00e4lskat evenemang som \u00e4r k\u00e4nt f\u00f6r sin flacka, snabba bana, historiska landskap och en stark samh\u00e4llsanda.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Men det h\u00e4r \u00e4r mer \u00e4n bara en t\u00e4vling - det \u00e4r en t\u00e4vling f\u00f6r att r\u00e4dda liv.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">N\u00e4r du springer med Team EE bidrar varje kilometer du tar till att p\u00e5skynda livr\u00e4ddande genombrott f\u00f6r de sista 10% av personer med cystisk fibros (CF) som har l\u00e4mnats p\u00e5 efterk\u00e4lken av nuvarande mutationsinriktade behandlingar. \u00c4ven om de senaste framstegen har f\u00f6r\u00e4ndrat utsikterna f\u00f6r m\u00e5nga, finns det fortfarande tusentals som inte har f\u00e5tt n\u00e5gon effektiv behandling - de lever med en livshotande, progressiv genetisk sjukdom.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\"Som en av de sista 10% i CF-communityn vaknar jag varje dag och m\u00f6ter en obeveklig sjukdom som stj\u00e4l mitt andetag, mina dr\u00f6mmar, mina v\u00e4nner och min framtid\", s\u00e4ger Emily Kramer-Golinkoff, medgrundare av Emily's Entourage. \"Det \u00e4r d\u00e4rf\u00f6r vi springer - inte bara f\u00f6r att korsa m\u00e5llinjen, utan f\u00f6r att skapa en framtid d\u00e4r varje enskild person med CF kan andas fritt och leva det fulla, livfulla liv de f\u00f6rtj\u00e4nar.\"<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Genom att g\u00e5 med i Team EE kommer du att f\u00e5:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">En Emily's Entourage-t\u00e4vlingstr\u00f6ja och en goodiebag<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Tillg\u00e5ng till ett s\u00e4rskilt teamomr\u00e5de vid start\/m\u00e5l med f\u00f6rfriskningar<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">En hejarklack full av hj\u00e4rta och tacksamhet p\u00e5 t\u00e4vlingsdagen<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">En verktygsl\u00e5da f\u00f6r insamling, mallar och expertr\u00e5d f\u00f6r att hj\u00e4lpa dig att lyckas<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">En m\u00f6jlighet att bli uppm\u00e4rksammad p\u00e5 EE:s blogg och\/eller sociala medier och ber\u00e4tta om vad som inspirerar dig att vara en del av #TeamEE<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Chansen att f\u00f6rvandla dina mil till drivkraft f\u00f6r livr\u00e4ddande genombrott<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Mer \u00e4n en nummerlapp, mer \u00e4n en l\u00f6ptur - ditt deltagande hj\u00e4lper till att driva den br\u00e5dskande t\u00e4vlingen f\u00f6r genombrott f\u00f6r dem som beh\u00f6ver dem mest och har ont om tid.<\/span><\/p>\n<p><b>\u00c4r du redo att springa f\u00f6r n\u00e5got som \u00e4r st\u00f6rre \u00e4n dig sj\u00e4lv?<\/b><\/p>\n<p><span style=\"font-weight: 400;\">G\u00e5 med i Team EE och hj\u00e4lp oss att ta oss \u00f6ver den viktigaste m\u00e5llinjen av alla: en framtid utan CF.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">F\u00f6r att l\u00e4sa mer och anm\u00e4la dig, bes\u00f6k <\/span><a href=\"https:\/\/www.emilysentourage.org\/sv\/join-team-ee\/\"><span style=\"font-weight: 400;\">https:\/\/www.emilysentourage.org\/join-team-ee\/<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">L\u00e5t oss f\u00e5 varje kilometer att betyda n\u00e5got.<\/span><\/p>\n<p><b>Om Emily's Entourage<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Emily's Entourage \u00e4r en innovativ 501(c)3 som p\u00e5skyndar forskning f\u00f6r nya behandlingar och ett botemedel f\u00f6r individer i den sista 10% av cystisk fibros (CF)-populationen som inte drar nytta av f\u00f6r n\u00e4rvarande tillg\u00e4ngliga mutationsinriktade terapier. Sedan 2011 har Emily's Entourage beviljat miljontals dollar i forskningsanslag, lanserat ett CF-genterapibolag som nu befinner sig i klinisk fas, utvecklat patientdatabasen Clinical Trial Connect (CTC) och ett matchningsprogram f\u00f6r att p\u00e5skynda rekryteringen till kliniska pr\u00f6vningar samt lett globala insatser f\u00f6r att driva forskning och l\u00e4kemedelsutveckling med stor genomslagskraft. Organisationen har omn\u00e4mnts i nationella medier, bland annat New York Times, STAT, CNN, People med flera. L\u00e4s mer p\u00e5 <\/span><a href=\"https:\/\/www.emilysentourage.org\/sv\/\"><span style=\"font-weight: 400;\">emilysentourage.org<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><b>Kontakt med media<\/b><\/p>\n<p><span style=\"font-weight: 400;\">Hannah Kleckner<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Direkt\u00f6r f\u00f6r marknadsf\u00f6ring och kommunikation<\/span><\/p>\n<p><a href=\"mailto:hannah@emilysentourage.org\"><span style=\"font-weight: 400;\">hannah@emilysentourage.org<\/span><\/a><\/p>\n<p><br style=\"font-weight: 400;\" \/><br style=\"font-weight: 400;\" \/><\/p>","protected":false},"excerpt":{"rendered":"<p>Join Team EE to turn every mile of the 2025 Philadelphia Marathon Weekend into momentum for lifesaving breakthroughs for those with cystic fibrosis still waiting for a cure. Philadelphia, PA\u2014July 1, 2025\u2014Emily\u2019s Entourage (EE), an innovative 501(c)(3) organization accelerating research for individuals with cystic fibrosis (CF) who do not benefit from existing mutation-targeted therapies, is&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/sv\/run-with-heart-race-for-breakthroughs-join-team-ee-at-the-2025-philadelphia-marathon-weekend-to-support-people-with-cystic-fibrosis\/\" class=\"excerpt-read-more\">L\u00e4s mer om<\/a><\/p>","protected":false},"author":1719,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"both","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[178],"tags":[197,220,221,222,219],"class_list":["post-25393","post","type-post","status-publish","format-standard","hentry","category-press-releases","tag-cf-research","tag-fundraise","tag-philadelphia-marathon","tag-philly-marathon","tag-team-ee"],"acf":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/25393","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/1719"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=25393"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/25393\/revisions"}],"predecessor-version":[{"id":25401,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/25393\/revisions\/25401"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=25393"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=25393"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=25393"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}