{"id":2414,"date":"2015-03-03T15:53:30","date_gmt":"2015-03-03T22:53:30","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=2414"},"modified":"2018-02-15T14:26:06","modified_gmt":"2018-02-15T19:26:06","slug":"tbt-a-look-back-at-our-third-annual-evening-with-emilys-entourage","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/tbt-a-look-back-at-our-third-annual-evening-with-emilys-entourage\/","title":{"rendered":"#TBT: En tillbakablick p\u00e5 v\u00e5r tredje \u00e5rliga kv\u00e4ll med Emily's Entourage!"},"content":{"rendered":"<p>F\u00f6r v\u00e5r tredje \u00e5rliga \"Evening with Emily's Entourage\" begav vi oss till Philadelphias v\u00e4stra f\u00f6rorter och hittade en underbar lokal p\u00e5 Baldwin School. Vi var helt \u00f6verv\u00e4ldigade av deltagarantalet - \u00f6ver 400 av er kom f\u00f6r att hj\u00e4lpa oss att fira tre \u00e5r med Entourage, dra ig\u00e5ng v\u00e5r \u00e5rliga insamlingskampanj och fira Emilys kommande 30-\u00e5rsdag!<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"aligncenter size-full wp-image-3643\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_140.jpg\" alt=\"20141213_emilys_birthday_140\" width=\"1200\" height=\"799\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_140.jpg 1200w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_140-600x400.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_140-300x200.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_140-1024x682.jpg 1024w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><br \/>\nV\u00e5r nya lokal var den perfekta bakgrunden f\u00f6r en ut\u00f6kad tyst auktion med hundratals f\u00f6rem\u00e5l, inklusive weekendresor, unika konstverk, handgjorda smycken och lyxiga sportbiljetter. Det bj\u00f6ds p\u00e5 cateringmat, liksom v\u00e5ra karakteristiska minicupcakes, hemlagade bakverk och ett uts\u00f6kt godisbord. Naturligtvis hade vi \u00e4ven interaktiva element som kunde delas via sociala medier, bland annat en luftballong som var st\u00f6rre \u00e4n verkligheten och en gigantisk f\u00f6delsedagst\u00e5rta d\u00e4r vi alla l\u00e4mnade f\u00f6delsedags\u00f6nskningar till v\u00e5r k\u00e4ra Emily.<\/p>\n<p><img decoding=\"async\" class=\"aligncenter size-full wp-image-3645\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_157.jpg\" alt=\"20141213_emilys_birthday_157\" width=\"1200\" height=\"799\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_157.jpg 1200w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_157-600x400.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_157-300x200.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_157-1024x682.jpg 1024w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/p>\n<p>Kv\u00e4llens k\u00e4nnetecken var v\u00e5rt talprogram. Det b\u00f6rjade med Hope Cohen, matpersonlighet p\u00e5 TV, som var kv\u00e4llens konferencier f\u00f6r tredje \u00e5ret i rad. D\u00e4refter gav Dr. Kevin Foskett, ordf\u00f6rande f\u00f6r fysiologiska institutionen vid Perelman School of Medicine vid University of Pennsylvania och medlem i Emily's Entourage Scientific Advisory Board, en gripande f\u00f6rklaring till de unika utmaningar som f\u00f6ljer med Emilys specifika genetiska mutation, de vetenskapliga framsteg som g\u00f6rs och varf\u00f6r det \u00e4r viktigare \u00e4n n\u00e5gonsin att forts\u00e4tta samla in pengar till forskning.<img decoding=\"async\" class=\"aligncenter size-full wp-image-3642\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_122.jpg\" alt=\"20141213_emilys_birthday_122\" width=\"1200\" height=\"799\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_122.jpg 1200w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_122-600x400.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_122-300x200.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_122-1024x682.jpg 1024w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/p>\n<p>D\u00e4refter f\u00f6ljde den efterl\u00e4ngtade premi\u00e4ren av <a href=\"https:\/\/youtu.be\/YutKkKv07z0\" target=\"_blank\" rel=\"noopener\">video om \u00e5rskampanjen<\/a>. Videon p\u00e5minde publiken om de viktiga framsteg vi har gjort, men att vi fortfarande har mycket kvar att k\u00e4mpa f\u00f6r och att situationen \u00e4r allvarlig. F\u00f6delsedagsbarnet sj\u00e4lv talade och som alltid gav hennes extremt gripande och v\u00e4ltaliga tal full energi till rummet. Vi h\u00f6rde ocks\u00e5 Emilys f\u00f6r\u00e4ldrar och syskon som alla delade med sig av sina personliga f\u00f6delsedags\u00f6nskningar till sin dotter och syster. Det fanns inte ett torrt \u00f6ga i rummet!<br \/>\n<iframe src=\"https:\/\/www.youtube.com\/embed\/YutKkKv07z0?rel=0&amp;showinfo=0\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>Kv\u00e4llens mest r\u00f6rande \u00f6gonblick kom d\u00e4refter. Under ledning av nyhetskorrespondenten Heather Braver ombads alla g\u00e4ster att h\u00e5lla upp lila \"ljus\" i form av lysstavar medan vi d\u00e4mpade belysningen och sj\u00f6ng \"Happy Birthday\" f\u00f6r EE:s namne och st\u00e4ndiga inspirationsk\u00e4lla, v\u00e5r egen Emily. Detta kraftfulla hav av lila - den officiella f\u00e4rgen f\u00f6r Emily's Entourage och cystisk fibros - p\u00e5minner oss om kraften i gemenskapen att h\u00e5lla ljusen t\u00e4nda f\u00f6r m\u00e5nga fler f\u00f6delsedagar f\u00f6r Emily och alla som k\u00e4mpar mot CF precis som hon. Forskning, som de studier EE finansierar, \u00e4r det som kommer att belysa genombrottsbehandlingar och ett botemedel - och vi beh\u00f6ver pengar f\u00f6r att finansiera detta livr\u00e4ddande arbete.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-3789\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10421166_2933667788265_886327692673524566_n.jpg\" alt=\"10421166_2933667788265_886327692673524566_n\" width=\"640\" height=\"640\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10421166_2933667788265_886327692673524566_n.jpg 640w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10421166_2933667788265_886327692673524566_n-300x300.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10421166_2933667788265_886327692673524566_n-100x100.jpg 100w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10421166_2933667788265_886327692673524566_n-600x600.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/10421166_2933667788265_886327692673524566_n-150x150.jpg 150w\" sizes=\"(max-width: 640px) 100vw, 640px\" \/><\/p>\n<p>Det \u00e4r d\u00e4r DU, v\u00e5r underbara Entourage, kommer in i bilden! Ensamma kan vi inte bota Emilys CF, men tillsammans kan vi f\u00f6respr\u00e5ka, st\u00f6dja och i slut\u00e4ndan \u00f6verbrygga klyftan mellan hopp och ett botemedel. Ni har drivit oss till en framg\u00e5ngsniv\u00e5 som vi aldrig hade kunnat f\u00f6rest\u00e4lla oss, och nu \u00e4r det upp till hela Entourage att forts\u00e4tta b\u00e4ra facklan vidare.<\/p>\n<p>Kv\u00e4llen var en p\u00e5minnelse om hur l\u00e5ngt vi har kommit, men ocks\u00e5 om hur mycket vi har kvar att g\u00f6ra tillsammans. <strong>Vi kommer inte att ge oss f\u00f6rr\u00e4n det finns ett botemedel f\u00f6r alla som lever med denna f\u00f6r\u00f6dande sjukdom.<img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-3626\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_0581.jpg\" alt=\"20141213_emilys_birthday_058\" width=\"1200\" height=\"800\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_0581.jpg 1200w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_0581-600x400.jpg 600w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_0581-300x200.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_0581-1024x683.jpg 1024w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/><\/strong><\/p>\n<p>Ett djupt, innerligt tack till alla som \u00e4r en del av v\u00e5r otroliga Entourage. Ni \u00e4r v\u00e5r essens och v\u00e5rt ljus och vi tackar er f\u00f6r ert fortsatta engagemang f\u00f6r att ge alla med CF det djupa andetag som de s\u00e5 desperat beh\u00f6ver och f\u00f6rtj\u00e4nar. Ert engagemang f\u00f6r denna sak har f\u00f6rt oss ett stort steg n\u00e4rmare v\u00e5rt m\u00e5l att samla in $1 miljoner och, \u00e4nnu viktigare, ett botemedel.<\/p>\n<p>TACK till alla som deltog och st\u00f6dde en kv\u00e4ll med Emily's Entourage och hj\u00e4lpte oss att samla in n\u00e4stan $1 miljon till forskning om cystisk fibros.<\/p>\n<p><a href=\"https:\/\/www.facebook.com\/media\/set\/?set=a.904035772960027.1073741846.279384842091793&amp;type=1&amp;l=a94f3e9974\" target=\"_blank\" rel=\"noopener\">Kolla in bilder fr\u00e5n evenemanget<\/a><\/p>\n<p><em>Ett s\u00e4rskilt tack g\u00e5r till v\u00e5ra fantastiska co-chairs, Lorri Bernstein och Barbra Mellits, samt alla v\u00e5ra EE-volont\u00e4rer som hj\u00e4lpte till att g\u00f6ra kv\u00e4llen till en s\u00e5dan succ\u00e9. Inget av detta skulle vara m\u00f6jligt utan er!<br \/>\n<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>For our third annual \u201cEvening with Emily\u2019s Entourage\u201d, we headed to the western Philadelphia suburbs and found a wonderful venue at the Baldwin School. We were absolutely overwhelmed by the attendance \u2013 over 400 of you came out to help us mark three years of the Entourage, kick off our annual fundraising campaign, and celebrate&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/sv\/tbt-a-look-back-at-our-third-annual-evening-with-emilys-entourage\/\" class=\"excerpt-read-more\">L\u00e4s mer om<\/a><\/p>","protected":false},"author":58,"featured_media":3646,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_analysis_target_kw":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1,6],"tags":[],"class_list":["post-2414","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/20141213_emilys_birthday_161.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/2414","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=2414"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/2414\/revisions"}],"predecessor-version":[{"id":10659,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/2414\/revisions\/10659"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media\/3646"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=2414"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=2414"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=2414"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}