{"id":16070,"date":"2021-10-07T13:38:39","date_gmt":"2021-10-07T17:38:39","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=16070"},"modified":"2021-10-18T09:35:50","modified_gmt":"2021-10-18T13:35:50","slug":"a-lasting-legacy-the-3rd-annual-zack-bassin-memorial-golf-outing","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/a-lasting-legacy-the-3rd-annual-zack-bassin-memorial-golf-outing\/","title":{"rendered":"Ett varaktigt arv: Den 3:e \u00e5rliga golfutflykten till minne av Zack Bassin"},"content":{"rendered":"

Fredagen den 27 augusti 2021 samlades de som \u00e4lskade Zack Bassin f\u00f6r att spela en runda p\u00e5 18 h\u00e5l - och det var s\u00e5 mycket mer \u00e4n s\u00e5. Det h\u00e4r var tredje g\u00e5ngen de anordnade Zack Bassin Memorial Golf Outing, en hyllning till deras \u00e4lskade v\u00e4n, bror och son som gick bort i cystisk fibros (CF) 2017.<\/span><\/p>\n

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S\u00e5 l\u00e4nge jag kan minnas har Zack varit en ivrig sport\u00e4lskare och en talangfull idrottare. N\u00e4r han blev \u00e4ldre utvecklade han en k\u00e4rlek till golf eftersom det var en sport som han kunde forts\u00e4tta med \u00e4ven n\u00e4r hans lungfunktion f\u00f6rs\u00e4mrades. N\u00e4r hans familj och n\u00e4rmaste v\u00e4nner samlades f\u00f6r att planera ett evenemang till hans minne, valdes en golfturnering f\u00f6r att samla in viktiga medel till CF-forskning som den perfekta hyllningen.<\/span><\/p>\n

Utflykten 2021, som h\u00f6lls p\u00e5 Putnam County Golf Course i Mahopac, NY, samlade in en h\u00e4pnadsv\u00e4ckande <\/span>$10,000<\/span> f\u00f6r CF-forskning. \u00d6ver 100 personer deltog - m\u00e4nniskor fr\u00e5n hans hemstad North Salem, NY, v\u00e4nner fr\u00e5n hans grundutbildning vid Marist College och familj fr\u00e5n hela v\u00e4rlden. \u00c4ven om vi p\u00e5 Emily's Entourage tyv\u00e4rr inte fick chansen att tr\u00e4ffa Zack, \u00e4r vi \u00f6vertygade om att han var en anm\u00e4rkningsv\u00e4rd person eftersom hans entourage har \u00e4gnat sig \u00e5t att hedra hans minne p\u00e5 ett extraordin\u00e4rt s\u00e4tt.\u00a0<\/span><\/p>\n

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N\u00e4r m\u00e4nniskor pratar om Zack \u00e4r det med ett stort leende p\u00e5 l\u00e4pparna. Oavsett om Zack var deras h\u00e4ngivna son, deras respekterade bror eller deras lojala v\u00e4n, s\u00e5 ekar adjektiven: omt\u00e4nksam, sn\u00e4ll, djupt v\u00e4nlig, smart, beg\u00e5vad, \u00e4kta, fullst\u00e4ndigt hysteriskt rolig. Det som var mest speciellt med Zack, enligt hans mamma Phyllis, var hans v\u00e4gran att l\u00e5ta sig definieras av CF - att leva ett rikt och inneh\u00e5llsrikt liv trots enorma medicinska utmaningar.\u00a0<\/span><\/p>\n

N\u00e4r Phyllis tr\u00e4ffade Emily och Emilys mamma Liza blev hon glad n\u00e4r hon fick h\u00f6ra om EE:s uppdrag att p\u00e5skynda genombrott f\u00f6r personer med nonsensmutationer av CF. Precis som Emily hade Zack en nonsensmutation av CF. Faktum \u00e4r att han delade exakt samma mutation som Emily, tv\u00e5 kopior av W1282X. Phyllis s\u00e5g lite av sin son i Emilys personlighet ocks\u00e5, b\u00e5da hade en livsgl\u00e4dje och utstr\u00e5lade en inneboende v\u00e4nlighet.\u00a0<\/span><\/p>\n

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N\u00e4r <\/span>n\u00e4r det var dags valde Phyllis och turneringens planeringskommitt\u00e9 EE som sin v\u00e4lg\u00f6renhetspartner f\u00f6r den f\u00f6rsta Zack Bassin Memorial Golf Outing. Att s\u00e4ga att vi \u00e4r r\u00f6rda \u00f6ver att ha varit en del av detta evenemang fr\u00e5n dag ett \u00e4r en massiv underdrift. Vi \u00e4r evigt tacksamma f\u00f6r att Zacks n\u00e4ra och k\u00e4ra valde att anf\u00f6rtro EE med dessa v\u00e4rdefulla medel fr\u00e5n dag ett och forts\u00e4tter att g\u00f6ra det idag.<\/p>\n

Hans v\u00e4nner och familj p\u00e5minner oss om sjukdomens konsekvenser och verklighet, och det f\u00f6r\u00f6dande k\u00f6lvatten den l\u00e4mnar efter sig n\u00e4r n\u00e5gon vi \u00e4lskar och som v\u00e4rlden beh\u00f6ver f\u00f6rsvinner alldeles f\u00f6r tidigt. Det \u00e4r en \u00e4ra f\u00f6r oss att f\u00f6rvalta en del av hans arv och att vara en liten del av<\/span>Det \u00e4r ett bevis p\u00e5 Zacks outpl\u00e5nliga och best\u00e5ende p\u00e5verkan p\u00e5 v\u00e4rlden.<\/p>\n

\"\"<\/p>","protected":false},"excerpt":{"rendered":"

Fredagen den 27 augusti 2021 samlades de som \u00e4lskade Zack Bassin f\u00f6r att spela en runda p\u00e5 18 h\u00e5l - och det var s\u00e5 mycket mer \u00e4n s\u00e5. Det h\u00e4r var tredje g\u00e5ngen de anordnade Zack Bassin Memorial Golf Outing, en hyllning till deras \u00e4lskade v\u00e4n, bror och son som gick bort i cystisk fibros (CF)... <\/p>\n

<\/div>\n

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