{"id":13835,"date":"2019-11-22T16:52:25","date_gmt":"2019-11-22T21:52:25","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13835"},"modified":"2023-12-20T04:55:56","modified_gmt":"2023-12-20T09:55:56","slug":"humans-of-ee-meet-2019-philly-gala-honorary-chairs-kami-and-josh-verne","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/humans-of-ee-meet-2019-philly-gala-honorary-chairs-kami-and-josh-verne\/","title":{"rendered":"M\u00e4nniskor inom EE: Tr\u00e4ffa hedersordf\u00f6randena f\u00f6r Philly Gala 2019, Kami och Josh Verne"},"content":{"rendered":"

P\u00e5 fredagar vill Emily's Entourage (EE) lyfta fram de anm\u00e4rkningsv\u00e4rda ber\u00e4ttelser och olika perspektiv som utg\u00f6r v\u00e5rt expansiva, otroliga Entourage i serien \"Humans of EE\", en riff p\u00e5 fotoprojektet och fenomenet <\/span><\/i>M\u00e4nniskor i New York<\/span><\/i><\/a>. Denna speciella bloggutg\u00e5va av \"Humans of EE\" presenterar den anm\u00e4rkningsv\u00e4rda duon Kami och Josh Verne, hedersordf\u00f6rande f\u00f6r den 8:e \u00e5rliga galan \"Evening with Emily's Entourage\" den 7 december, och hur de driver fram snabba genombrott f\u00f6r nonsensmutationer av cystisk fibros (CF)!\u00a0\u00a0<\/span><\/i><\/p>\n

Kami och Josh Verne \u00e4r b\u00e5da aktiva filantroper i lokalsamh\u00e4llet och man kan lugnt s\u00e4ga att deras passion inte k\u00e4nner n\u00e5gra gr\u00e4nser! N\u00e4r de inte engagerar sig f\u00f6r EE eller andra organisationer som ligger dem varmt om hj\u00e4rtat \u00e4r Kami en hemmamamma som tidigare var f\u00f6rsvarsadvokat och Josh \u00e4r en erfaren entrepren\u00f6r.\u00a0<\/span><\/p>\n

\"\"<\/p>\n

Familjen Kramer-Golinkoff tr\u00e4ffade Kami f\u00f6rsta g\u00e5ngen p\u00e5 en promenad i v\u00e4nskapskretsen och bef\u00e4ste sin relation n\u00e4r de bes\u00f6kte familjen Verne f\u00f6r att \u00e4ta shabbatmiddag. Josh minns s\u00e4rskilt att han f\u00f6ll f\u00f6r Annie, Emilys lillasyster och hedersordf\u00f6rande i EE, och han ser fram emot att vara hennes s\u00e4llskap p\u00e5 galan.\u00a0<\/span><\/p>\n

\n

\"Jag \u00e4r besatt av familjen och n\u00e4r de s\u00e4ger \u00e5t mig att hoppa s\u00e4ger jag \"hur h\u00f6gt?\", f\u00f6r
\n<\/strong>vi testamente<\/em> hitta ett botemedel f\u00f6r Emily och s\u00e5 m\u00e5nga andra.\"<\/strong><\/p>\n<\/blockquote>\n

Som hedersordf\u00f6rande f\u00f6r den 8:e \u00e5rliga <\/span>Kv\u00e4ll med Emilys entourage <\/span><\/i>galan har b\u00e5de Kami och Josh arbetat h\u00e5rt f\u00f6r att se till att evenemanget n\u00e5r sina insamlingsm\u00e5l, s\u00e4rskilt med hj\u00e4lp av f\u00f6retagssponsring. N\u00e4r de tillfr\u00e5gades om sitt engagemang i EE uttryckte de sin uppskattning f\u00f6r den positiva attityden och det obevekliga h\u00e5rda arbetet hos alla Entourage-medlemmar. \"Jag \u00e4r besatt av familjen och n\u00e4r de s\u00e4ger \u00e5t mig att hoppa s\u00e4ger jag \"hur h\u00f6gt?\" eftersom vi <\/span>testamente <\/span><\/i>hitta ett botemedel f\u00f6r Emily och s\u00e5 m\u00e5nga andra\", s\u00e4ger Kami.\u00a0<\/span><\/p>\n

\"\"<\/p>\n

\n

\"De h\u00e4r m\u00e4nniskorna \u00e4r hj\u00e4ltar p\u00e5 v\u00e5r bakg\u00e5rd. Hela samh\u00e4llet borde samlas runt dem
\n<\/strong>och jag hoppas att jag kan inspirera m\u00e4nniskor till att g\u00f6ra det.\"\u00a0<\/strong><\/p>\n<\/blockquote>\n

EE \u00e4r alltid i Vernes tankar och de \u00e4r \"hedrade \u00f6ver att bli hedrade\" den 7 december inf\u00f6r en fullsatt publik av andra filantroper, yrkesverksamma och samh\u00e4llsmedborgare. De \u00e4r angel\u00e4gna om att hj\u00e4lpa till att finansiera ett botemedel f\u00f6r de 10% av CF-gruppen som inte kan dra nytta av de godk\u00e4nda livr\u00e4ddande modulatorer som finns p\u00e5 marknaden. \"Dessa m\u00e4nniskor \u00e4r hj\u00e4ltar p\u00e5 v\u00e5r egen bakg\u00e5rd. Hela samh\u00e4llet borde sluta upp kring dem och jag hoppas att jag kan inspirera m\u00e4nniskor att g\u00f6ra det\", utbrast Josh.\u00a0<\/span><\/p>\n

Emily's Entourage \u00e4r oerh\u00f6rt tacksamt f\u00f6r att ha s\u00e5dana \"game-changers\" involverade i sin signaturgala i Philadelphia och ser fram emot att presentera Verne's med deras hederspris under EE in Bloom-programmet den 7 december med b\u00f6rjan kl. 21.00. F\u00f6r att k\u00f6pa biljetter eller sponsring till den 8:e \u00e5rliga galan \"Evening with Emily's Entourage\", bes\u00f6k evenemangets webbplats h\u00e4r<\/a>. <\/span><\/i><\/p>","protected":false},"excerpt":{"rendered":"

On Fridays, Emily\u2019s Entourage (EE) likes to highlight the remarkable stories and diverse perspectives that make up our expansive, incredible Entourage in the “Humans of EE” series, a riff on the photography project and phenomenon Humans of New York. This special “Humans of EE” blog edition features the remarkable duo Kami and Josh Verne, honorary… <\/p>\n

<\/div>\n

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