{"id":13765,"date":"2019-11-01T07:00:05","date_gmt":"2019-11-01T11:00:05","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13765"},"modified":"2019-11-01T07:00:05","modified_gmt":"2019-11-01T11:00:05","slug":"ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville\/","title":{"rendered":"EE h\u00e5ller 4:e \u00e5rliga cocktailmottagningen p\u00e5 NACFC i Nashville"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Emily's Entourage (EE) \u00e4r glada \u00f6ver att vara v\u00e4rd f\u00f6r sin 4: e \u00e5rliga, inbjudna cocktailmottagning p\u00e5 North American Cystic Fibrosis Conference (NACFC) den 1 november 2019. Emily och hennes familj kommer att leda detta evenemang tillsammans med viktiga EE-ledare, inklusive Scientific Director, Pete Haggie, PhD. I \u00e5r ser EE s\u00e4rskilt fram emot att vara v\u00e4rd i det ikoniska Nashville, TN!\u00a0<\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-full wp-image-13771 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg\" alt=\"\" width=\"900\" height=\"563\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-300x188.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-768x480.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner-600x375.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">Cystic Fibrosis Foundation (CFF) anordnar \u00e5rets NACFC p\u00e5 Nashville Music City Center den 31 oktober-2 november 2019. Den \u00e5rliga konferensen samlar \u00f6ver 5 000 kliniker, forskare och v\u00e5rdgivare inom cystisk fibros (CF) p\u00e5 ett och samma st\u00e4lle f\u00f6r att diskutera den senaste forskningen, v\u00e5rden och l\u00e4kemedelsutvecklingen inom CF. F\u00f6rhoppningen \u00e4r att utbyta id\u00e9er som kan f\u00f6rb\u00e4ttra h\u00e4lsan och v\u00e4lbefinnandet f\u00f6r personer med CF. EE \u00e4r mycket tacksamt mot CFF f\u00f6r m\u00f6jligheten att vara v\u00e4rd f\u00f6r denna mottagning f\u00f6r fj\u00e4rde \u00e5ret i rad.<\/span><\/p>\n<blockquote>\n<p style=\"text-align: center;\"><strong>Relevansen och angel\u00e4genheten i EE:s laserfokuserade uppdrag att p\u00e5skynda genombrott och ett botemedel f\u00f6r nonsensmutationer av CF \u00e4r mer kritisk \u00e4n n\u00e5gonsin tidigare.\u00a0<\/strong><\/p>\n<\/blockquote>\n<p><span style=\"font-weight: 400;\">\u00c5rets EE-mottagning samlar \u00f6ver 85 CF-forskare, vetenskapsm\u00e4n, familjer och representanter fr\u00e5n l\u00e4kemedels- och bioteknikf\u00f6retag. Syftet med evenemanget \u00e4r att fira EE:s framg\u00e5ngar hittills, erk\u00e4nna och hedra den enast\u00e5ende forskarv\u00e4rlden, skapa nya kontakter och utbyta id\u00e9er och i slut\u00e4ndan stimulera till snabba framsteg n\u00e4r det g\u00e4ller nya behandlingar f\u00f6r nonsensmutationer vid CF.<\/span><\/p>\n<p><img decoding=\"async\" class=\"size-full wp-image-13772 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018.jpg\" alt=\"\" width=\"900\" height=\"437\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-300x146.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-768x373.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/NACFC_2018-600x291.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">Mottagningen sker vid en s\u00e4rskilt viktig tidpunkt f\u00f6r CF-communityn i och med <\/span><a href=\"https:\/\/www.fda.gov\/news-events\/press-announcements\/fda-approves-new-breakthrough-therapy-cystic-fibrosis\"><span style=\"font-weight: 400;\">FDA:s senaste godk\u00e4nnande av en trippelkombinationsbehandling, Trikafta, f\u00f6r 90% av CF-gruppen<\/span><span style=\"font-weight: 400;\"> t<\/span><\/a><span style=\"font-weight: 400;\">har minst en kopia av den vanligaste genetiska mutationen vid CF, F508del. De som har nonsensmutationer av CF ing\u00e5r i den perifera gruppen 10% som inte har nytta av den nya behandlingen. Relevansen och angel\u00e4genheten i EE:s laserfokuserade uppdrag att p\u00e5skynda genombrott och ett botemedel mot nonsensmutationer vid CF \u00e4r mer kritisk \u00e4n n\u00e5gonsin tidigare.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">EE \u00e4r tacksam mot CFF f\u00f6r m\u00f6jligheten att vara v\u00e4rd f\u00f6r denna mottagning f\u00f6r fj\u00e4rde \u00e5ret p\u00e5 NACFC och ser fram emot att tr\u00e4ffa b\u00e5de nya och bekanta ansikten p\u00e5 \u00e5rets mottagning. <\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Emily\u2019s Entourage (EE) \u00e4r glada \u00f6ver att kunna vara v\u00e4rd f\u00f6r sitt fj\u00e4rde \u00e5rliga, endast f\u00f6r inbjudna, cocktailm\u00f6te vid den nordamerikanska cystisk fibroskonferensen (NACFC) den 1 november 2019. Emily och hennes familj kommer att leda detta evenemang tillsammans med ledningen f\u00f6r EE, inklusive vetenskaplig chef Pete Haggie, PhD. I \u00e5r ser EE s\u00e4rskilt fram emot att kunna vara v\u00e4rd f\u00f6r\u2026 <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/sv\/ee-holds-4th-annual-cocktail-reception-at-nacfc-in-nashville\/\" class=\"excerpt-read-more\">L\u00e4s mer om<\/a><\/p>","protected":false},"author":1704,"featured_media":13771,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_hide_featured_image":false,"_jetpack_featured_image_duplicate_dismissed":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[],"class_list":["post-13765","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"acf":[],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/music-city-center-ext-corner.jpg","post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13765","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=13765"}],"version-history":[{"count":3,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13765\/revisions"}],"predecessor-version":[{"id":13774,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13765\/revisions\/13774"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media\/13771"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=13765"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=13765"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=13765"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}