{"id":13074,"date":"2019-06-04T07:35:19","date_gmt":"2019-06-04T11:35:19","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13074"},"modified":"2023-12-20T05:20:55","modified_gmt":"2023-12-20T10:20:55","slug":"emily-speaks-at-the-2019-bio-international-convention-in-philadelphia","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/","title":{"rendered":"Emily talar vid 2019 \u00e5rs internationella BIO-konferens i Philadelphia"},"content":{"rendered":"

Emily's Entourage (EE) deltar i 2019 BIO:s internationella kongress<\/a> p\u00e5 Pennsylvania Convention Center i Philadelphia, PA. P\u00e5 dag 1 intervjuades EE:s medgrundare Emily Kramer-Golinkoff f\u00f6r God dag Bio<\/a>, en TV-talkshow som s\u00e4ndes p\u00e5 hotell runt om i Philadelphia och i m\u00f6teshallar i hela kongresscentret under veckan, med Mike Huckman, Global Practice Leader, Executive Communications p\u00e5 W2O Group, som v\u00e4rd. I talkshowen delade Emily med sig av patientperspektivet och talade om EE:s uppdrag och arbete f\u00f6r nonsensmutationer av cystisk fibros (CF). <\/span><\/p>\n

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P\u00e5 dag 2 kommer Emily att delta i Fireside Chat med titeln \"Understanding the Voices of Patients: Unique Perspective on Healthcare\" kl. 11.00 den 4 juni. Emily kommer att \u00e5tf\u00f6ljas av Christopher Anselmo, M<\/span>marknadsk\u00e4nnedomschef f\u00f6r<\/span> Muscular Dystrophy Association och Eve Bukowski, Vice President of Patient Advocacy p\u00e5 CLCA. Denna huvudsession kommer att modereras av Julie Gerberding, Executive Vice President och Chief Patient Officer p\u00e5 Merck & Co, Inc. <\/span><\/p>\n

Panelen kommer att fokusera p\u00e5 den viktiga och f\u00f6r\u00e4nderliga roll som patienterna har spelat under \u00e5rens lopp, d\u00e4r de inte bara \u00e4r alltmer involverade i att driva sin egen h\u00e4lsov\u00e5rd, utan ocks\u00e5 outtr\u00f6ttligt arbetar f\u00f6r att fr\u00e4mja forskning och l\u00e4kemedelsutveckling och f\u00f6r att s\u00e4kra en offentlig politik som st\u00f6der patienterna. I panelen kommer Emily och hennes kollegor att dela med sig av sina h\u00e4lsoresor, sina perspektiv p\u00e5 vad det inneb\u00e4r att vara patient och hur de arbetar f\u00f6r att patienterna ska f\u00e5 tillg\u00e5ng till behandlingar snabbare.<\/span><\/p>\n

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BIO International Convention \u00e4r ett \u00e5rligt evenemang som arrangeras av Biotechnology Innovation Organization och samlar \u00f6ver 16.000 deltagare fr\u00e5n 74 l\u00e4nder, med \u00f6ver 1.500 utbildningssessioner. EE \u00e4r tacksamt f\u00f6r att \u00e5terigen f\u00e5 m\u00f6jlighet att n\u00e4rvara och delta i denna konferens och ser fram emot nya samarbeten med organisationer som delar samma str\u00e4van att snabbt kunna erbjuda patienterna nya, omv\u00e4lvande behandlingar. <\/span><\/p>","protected":false},"excerpt":{"rendered":"

Emily\u2019s Entourage (EE) is attending the 2019 BIO International Convention at the Pennsylvania Convention Center in Philadelphia, PA. On Day 1, EE co-founder Emily Kramer-Golinkoff was interviewed for Good Day Bio, a TV talk show broadcast in hotels around Philadelphia and in meeting halls throughout the convention center during the week, hosted by by Mike… <\/p>\n

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L\u00e4s mer om<\/a><\/p>","protected":false},"author":1704,"featured_media":13082,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[93,94,98,12,99,95,103,96,102,100],"class_list":["post-13074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-bio-international-convention","tag-bio2019","tag-christopher-anselmo","tag-emilys-entourage","tag-eve-bukowski","tag-good-day-bio","tag-life-sciences","tag-mike-huckman","tag-muscular-dystrophy","tag-philadelphia"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13074","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=13074"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13074\/revisions"}],"predecessor-version":[{"id":20547,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13074\/revisions\/20547"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media\/13082"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=13074"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=13074"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=13074"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}