{"id":13046,"date":"2019-05-29T08:31:50","date_gmt":"2019-05-29T12:31:50","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13046"},"modified":"2019-06-10T09:49:38","modified_gmt":"2019-06-10T13:49:38","slug":"emily-speaks-at-translate-bios-cf-awareness-month-event","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/sv\/emily-speaks-at-translate-bios-cf-awareness-month-event\/","title":{"rendered":"Emily talar vid Translate Bios evenemang f\u00f6r CF-medvetenhetsm\u00e5naden"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Den 29 maj deltog Emily's Entourage (EE) i Translate Bio's Cystic Fibrosis (CF) Awareness Month-event i Boston. EE:s medgrundare Emily Kramer-Golinkoff h\u00f6ll ett inledningsanf\u00f6rande f\u00f6r att inleda dagens evenemang och deltog i en paneldiskussion med fr\u00e5gor och svar. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">I panelen hade Emily s\u00e4llskap av viktiga CF-medlemmar, Bob Coughlin, VD f\u00f6r MassBio, Dr. Jonathan Zuckerman, en l\u00e4kare som deltar i Translate Bios p\u00e5g\u00e5ende kliniska studie, och Dr. Ann Barbier, Translate Bios CMO. Panelen modererades av Dr. Meagan Vaughn, Senior Clinical Research Scientist p\u00e5 Rho, och <\/span><span style=\"font-weight: 400;\">f\u00f6rdjupade sig i det akuta behovet av nya behandlingsalternativ f\u00f6r CF och hur \"n\u00e5gon dag inte \u00e4r tillr\u00e4ckligt bra f\u00f6r den sista 10%\".\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Sessionen livestreamades och kan ses nedan<\/span><span style=\"font-weight: 400;\">. Medlemmar i CF-communityn uppmuntrades att lyssna och skicka in sina fr\u00e5gor.<\/span><\/p>\n<p><iframe src=\"https:\/\/player.vimeo.com\/video\/340013706\" width=\"900\" height=\"500\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\"><\/span><span data-mce-type=\"bookmark\" style=\"display: inline-block; width: 0px; overflow: hidden; line-height: 0;\" class=\"mce_SELRES_start\"><\/span><\/iframe><\/p>\n<p><span style=\"font-weight: 400;\">Under sitt anf\u00f6rande ber\u00e4ttade Emily om sin egen resa med nonsensmutationer av CF samt belyste EE:s laserfokuserade uppdrag att utveckla livr\u00e4ddande behandlingar och l\u00e4kemedelsutveckling f\u00f6r de \u00e5terst\u00e5ende 10%.<\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-full wp-image-13128 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2.jpg\" alt=\"\" width=\"900\" height=\"563\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2-300x188.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2-768x480.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_2-600x375.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">Efter sitt anf\u00f6rande deltog Emily i en paneldiskussion som behandlade \u00e4mnen som det aktuella l\u00e4get f\u00f6r innovationer inom CF-behandling, den potentiella roll som nya behandlingar kan spela i framtiden och den b\u00f6rda som 10% av CF-gruppen fortfarande b\u00e4r p\u00e5.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Translate Bio \u00e4r ett mRNA-terapibolag som f\u00f6r n\u00e4rvarande utvecklar l\u00e4kemedel f\u00f6r behandling av sjukdomar som orsakas av protein- eller gendysfunktion, s\u00e5som CF. Med banbrytande genombrott inom en snar framtid f\u00f6r cirka 90% av individerna med CF, utg\u00f6r de med nonsensmutationer majoriteten av de 10% som inte kommer att dra nytta av dessa genombrott.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Emily's Entourage \u00e4r otroligt hedrade \u00f6ver att ha deltagit tillsammans med en s\u00e5dan speciell uppst\u00e4llning av nyckelspelare i CF-samh\u00e4llet f\u00f6r att \u00f6ka medvetenheten om det kritiska arbete som fortfarande m\u00e5ste g\u00f6ras f\u00f6r de sista 10% i CF-samh\u00e4llet. Stort tack till Translate Bio f\u00f6r att ha organiserat ett s\u00e5dant underbart evenemang och f\u00f6r att ha inkluderat EE och Emily i det!<\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>On May 29, Emily\u2019s Entourage (EE) attended Translate Bio\u2019s Cystic Fibrosis (CF) Awareness Month event in Boston. EE Co-Founder, Emily Kramer-Golinkoff, provided opening remarks to launch the day\u2019s events as well as took part in a Q&amp;A panel discussion. On the panel, Emily was joined by key CF community members, Bob Coughlin, CEO of MassBio,&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/sv\/emily-speaks-at-translate-bios-cf-awareness-month-event\/\" class=\"excerpt-read-more\">L\u00e4s mer om<\/a><\/p>","protected":false},"author":1704,"featured_media":13127,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"none","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":301,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[{"url":"","title":"","desc":"","thumbnail":"","duration":"","rating":"","view_count":"","tag":"","cat":""}],"_seopress_pro_schemas_manual":null,"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[1],"tags":[87,77,7,78,79,86],"class_list":["post-13046","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-boston","tag-cf-awareness-month","tag-cystic-fibrosis","tag-nonsense-mutations","tag-rare-disease","tag-translate-bio"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/TranslateBIO_1.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13046","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=13046"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13046\/revisions"}],"predecessor-version":[{"id":13130,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/posts\/13046\/revisions\/13130"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media\/13127"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=13046"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/categories?post=13046"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/tags?post=13046"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}