{"id":16142,"date":"2021-10-15T14:01:34","date_gmt":"2021-10-15T18:01:34","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?page_id=16142"},"modified":"2021-12-10T15:04:58","modified_gmt":"2021-12-10T20:04:58","slug":"cf-crew","status":"publish","type":"page","link":"https:\/\/www.emilysentourage.org\/sv\/cf-crew\/","title":{"rendered":"G\u00e5 med i CureFinders bes\u00e4ttning"},"content":{"rendered":"

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Det finns ingen som har ett st\u00f6rre intresse av snabba framsteg f\u00f6r de sista 10% i cystisk fibros (CF)-samh\u00e4llet \u00e4n de som lever med sjukdomen och de m\u00e4nniskor som \u00e4lskar dem. CureFinders Crew (CF Crew) skapades med dig i \u00e5tanke - f\u00f6r att tillhandah\u00e5lla ett utrymme d\u00e4r CF-samfundet kan samlas till st\u00f6d f\u00f6r Emilys Entourages (EE) uppdrag att p\u00e5skynda livr\u00e4ddande forskning och l\u00e4kemedelsutveckling f\u00f6r de sista 10% av CF-samfundet, inklusive de med nonsensmutationer av CF.<\/span><\/p>\n

Underskatta aldrig din r\u00f6st, din hj\u00e4rna, din kreativitet, dina id\u00e9er och din kraft. De flyttar berg. - Emily Kramer-Golinkoff, medgrundare, Emily's Entourage<\/span><\/p><\/blockquote>\n

Varf\u00f6r g\u00e5 med i CF Crew?<\/strong><\/h3>\n

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Emily's Entourage anser att INGEN ska l\u00e4mnas utanf\u00f6r och att varje enskild person med CF f\u00f6rtj\u00e4nar ett realistiskt hopp om en framtid och ett djupt andetag. Som en del av CF Crew kan du hj\u00e4lpa oss att f\u00e5 till st\u00e5nd v\u00e4lbeh\u00f6vliga f\u00f6r\u00e4ndringar under de sista 10% genom att dela med dig av din ber\u00e4ttelse och engagera ditt n\u00e4tverk. Du har makten att g\u00f6ra skillnad och hj\u00e4lpa till att finansiera v\u00e5ra aggressiva investeringar i forskning och l\u00e4kemedelsutveckling, vilket f\u00f6r oss n\u00e4rmare v\u00e5rt gemensamma m\u00e5l om snabba genombrott f\u00f6r 100% av CF-samfundet - ingen l\u00e4mnas kvar<\/b>. <\/span><\/p>\n

Vem kan delta?<\/strong><\/h3>\n

CF Crew \u00e4r \u00f6ppet f\u00f6r alla som har en koppling till CF - oavsett om du \u00e4r en del av den sista 10% eller en del av 90% som har upplevt den livsf\u00f6r\u00e4ndrande effekten av en mutationsinriktad behandling. <\/span><\/p>\n

Du kommer att g\u00e5 med i en speciell grupp av f\u00f6r\u00e4ndringsskapande CF-familjer som arbetar f\u00f6r att \u00e5stadkomma snabba, omfattande framsteg f\u00f6r de sista 10%. Och som du vet mer intimt \u00e4n n\u00e5gon annan, kan dessa framsteg om\u00f6jligen komma tillr\u00e4ckligt snart!<\/span><\/p>\n

 KONTAKTA OSS F\u00d6R ATT F\u00c5 VETA MER<\/a><\/p>","protected":false},"excerpt":{"rendered":"

There is nobody with a deeper vested interest in fast progress for the final 10% of the cystic fibrosis (CF) community than those living with the disease and the people who love them. The CureFinders Crew (CF Crew) was created with you in mind \u2014 to provide a space where the CF community can come… <\/p>\n

<\/div>\n

L\u00e4s mer om<\/a><\/p>","protected":false},"author":1281,"featured_media":16211,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"","_seopress_titles_title":"Emily's Entourage >> Join the CureFinders Crew","_seopress_titles_desc":"The CureFinders Crew (CF Crew) was created with the cystic fibrosis community in mind \u2014 to provide a space where they can come together in support of Emily\u2019s Entourage\u2019s (EE\u2019s) mission to speed lifesaving research and drug development for the final 10% of the CF community.","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-16142","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/pages\/16142","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/users\/1281"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/comments?post=16142"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/pages\/16142\/revisions"}],"predecessor-version":[{"id":16447,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/pages\/16142\/revisions\/16447"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media\/16211"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/sv\/wp-json\/wp\/v2\/media?parent=16142"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}