{"id":447,"date":"2012-02-02T08:46:41","date_gmt":"2012-02-02T15:46:41","guid":{"rendered":"http:\/\/lw.screammedia.net\/?p=447"},"modified":"2023-12-19T01:30:43","modified_gmt":"2023-12-19T06:30:43","slug":"exciting-new-cf-drug-approval","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/pt_br\/exciting-new-cf-drug-approval\/","title":{"rendered":"Aprova\u00e7\u00e3o de novo e empolgante medicamento para FC!"},"content":{"rendered":"

Ol\u00e1 a todos,<\/p>\n

Temos uma not\u00edcia ENORME para compartilhar com voc\u00eas, com a qual todos n\u00f3s da Emily's Entourage estamos extremamente empolgados. No in\u00edcio desta semana, foi anunciado que a FDA aprovou um novo medicamento, o Kalydeco, que \u00e9 o PRIMEIRO medicamento a corrigir o problema gen\u00e9tico subjacente na fibrose c\u00edstica (FC). Entretanto, o medicamento ajudar\u00e1 apenas 4% da popula\u00e7\u00e3o com FC que tem uma determinada muta\u00e7\u00e3o gen\u00e9tica (G551D). Infelizmente, os 96% restantes de pessoas que vivem com FC, incluindo Emily, ainda est\u00e3o esperando pelo tratamento que salvar\u00e1 suas vidas.<\/p>\n

Com essa enorme not\u00edcia, nos lembramos por que todos os nossos esfor\u00e7os de arrecada\u00e7\u00e3o de fundos s\u00e3o T\u00c3O importantes. O dinheiro que arrecadamos financia pesquisas que alteram vidas como esta. Essa incr\u00edvel descoberta nos mostra que estamos muito pr\u00f3ximos, mas ainda n\u00e3o chegamos l\u00e1. Precisamos continuar insistindo e arrecadando fundos vigorosamente para que Emily e todas as outras pessoas com FC tamb\u00e9m possam se beneficiar de um tratamento que mude suas vidas. Voc\u00ea pode ajudar fazendo uma doa\u00e7\u00e3o e continuando a divulgar a mensagem da Emily's Entourage.<\/p>\n

De todos n\u00f3s da Emily's Entourage, obrigado por seu apoio cont\u00ednuo!<\/p>\n

-Emily's Entourage<\/p>\n

 <\/p>\n

Leia o comunicado \u00e0 imprensa do CFF: https:\/\/www.cff.org\/News\/News-Archive\/2012\/FDA-Approves-Kalydeco-(VX-770)-%E2%80%94-First-Drug-That-Targets-the-Underlying-Cause-of-Cystic-Fibrosis\/<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Hi all, We have some HUGE news to share with you that all of us at Emily’s Entourage are extremely excited about. Early this week, it was announced that the FDA approved a new drug, Kalydeco, which is the FIRST EVER drug to correct the underlying genetic problem in Cystic Fibrosis (CF). However, the drug… <\/p>\n

<\/div>\n

Leia mais<\/a><\/p>","protected":false},"author":58,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_seopress_robots_follow":"","_seopress_robots_imageindex":"","_seopress_robots_snippet":"","_seopress_robots_primary_cat":"","_seopress_robots_breadcrumbs":"","_seopress_robots_freeze_modified_date":"","_seopress_robots_custom_modified_date":"","_seopress_robots_canonical":"","_seopress_social_fb_title":"","_seopress_social_fb_desc":"","_seopress_social_fb_img":"","_seopress_social_fb_img_attachment_id":0,"_seopress_social_fb_img_width":0,"_seopress_social_fb_img_height":0,"_seopress_social_twitter_title":"","_seopress_social_twitter_desc":"","_seopress_social_twitter_img":"","_seopress_social_twitter_img_attachment_id":0,"_seopress_social_twitter_img_width":0,"_seopress_social_twitter_img_height":0,"_seopress_redirections_value":"","_seopress_redirections_enabled":"","_seopress_redirections_enabled_regex":"","_seopress_redirections_logged_status":"","_seopress_redirections_param":"","_seopress_redirections_type":0,"_seopress_analysis_target_kw":"","_seopress_news_disabled":"","_seopress_video_disabled":"","_seopress_video":[],"_seopress_pro_schemas_manual":[],"_seopress_pro_rich_snippets_disable_all":"","_seopress_pro_rich_snippets_disable":[],"_seopress_pro_schemas":[],"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[6],"tags":[],"class_list":["post-447","post","type-post","status-publish","format-standard","hentry","category-emilys-entourage-blog"],"acf":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/posts\/447","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/users\/58"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/comments?post=447"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/posts\/447\/revisions"}],"predecessor-version":[{"id":20229,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/posts\/447\/revisions\/20229"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/media?parent=447"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/categories?post=447"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/tags?post=447"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}