{"id":13074,"date":"2019-06-04T07:35:19","date_gmt":"2019-06-04T11:35:19","guid":{"rendered":"https:\/\/www.emilysentourage.org\/?p=13074"},"modified":"2023-12-20T05:20:55","modified_gmt":"2023-12-20T10:20:55","slug":"emily-speaks-at-the-2019-bio-international-convention-in-philadelphia","status":"publish","type":"post","link":"https:\/\/www.emilysentourage.org\/pt_br\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/","title":{"rendered":"Emily discursa na Conven\u00e7\u00e3o Internacional BIO de 2019, na Filad\u00e9lfia"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">A Emily's Entourage (EE) est\u00e1 participando da <a href=\"https:\/\/www.bio.org\/events\/bio-international-convention\" target=\"_blank\" rel=\"noopener noreferrer\">Conven\u00e7\u00e3o Internacional BIO 2019<\/a> no Pennsylvania Convention Center, na Filad\u00e9lfia, PA. No primeiro dia, a cofundadora da EE, Emily Kramer-Golinkoff, foi entrevistada para <a href=\"https:\/\/youtu.be\/cyMT8o3qiT8\" target=\"_blank\" rel=\"noopener noreferrer\">Biografia de bom dia<\/a>um programa de entrevistas na TV transmitido em hot\u00e9is da Filad\u00e9lfia e em salas de reuni\u00e3o no centro de conven\u00e7\u00f5es durante a semana, apresentado por Mike Huckman, L\u00edder de Pr\u00e1tica Global, Comunica\u00e7\u00f5es Executivas do W2O Group. No programa de entrevistas, Emily compartilhou a perspectiva do paciente e falou sobre a miss\u00e3o e o trabalho que a EE est\u00e1 realizando para as muta\u00e7\u00f5es sem sentido da fibrose c\u00edstica (FC). <\/span><\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"size-full wp-image-13079 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n.jpg\" alt=\"\" width=\"851\" height=\"315\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n.jpg 851w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-300x111.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-768x284.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/43645097_10156164779577804_4283321419162451968_n-600x222.jpg 600w\" sizes=\"(max-width: 851px) 100vw, 851px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">No segundo dia, Emily participar\u00e1 do Fireside Chat intitulado \"Understanding the Voices of Patients: Unique Perspective on Healthcare\" (Entendendo as vozes dos pacientes: uma perspectiva \u00fanica sobre a assist\u00eancia m\u00e9dica), \u00e0s 11h do dia 4 de junho. Emily ter\u00e1 a companhia de Christopher Anselmo, M<\/span><span style=\"font-weight: 400;\">Gerente de Intelig\u00eancia de Mercado da<\/span><span style=\"font-weight: 400;\"> da Muscular Dystrophy Association e Eve Bukowski, Vice-presidente de Defesa dos Pacientes da CLCA. Esta sess\u00e3o principal ser\u00e1 moderada por Julie Gerberding, vice-presidente executiva e diretora de pacientes da Merck &amp; Co, Inc. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">O painel se concentrar\u00e1 na fun\u00e7\u00e3o cr\u00edtica e evolutiva dos pacientes ao longo dos anos, que n\u00e3o s\u00f3 est\u00e3o cada vez mais envolvidos na condu\u00e7\u00e3o de seus pr\u00f3prios cuidados com a sa\u00fade, como tamb\u00e9m defendem incansavelmente o avan\u00e7o da pesquisa e do desenvolvimento de medicamentos e a garantia de pol\u00edticas p\u00fablicas que apoiem os pacientes. No painel, Emily e seus colegas compartilhar\u00e3o suas jornadas na \u00e1rea da sa\u00fade, suas perspectivas sobre o que significa ser um paciente e como eles est\u00e3o defendendo o acesso mais r\u00e1pido dos pacientes aos tratamentos.<\/span><\/p>\n<p><img decoding=\"async\" class=\"size-full wp-image-13082 aligncenter\" src=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg\" alt=\"\" width=\"900\" height=\"563\" srcset=\"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg 900w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-300x188.jpg 300w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-768x480.jpg 768w, https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1-600x375.jpg 600w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/p>\n<p><span style=\"font-weight: 400;\">A BIO International Convention \u00e9 um evento anual organizado pela Biotechnology Innovation Organization, que re\u00fane mais de 16.000 participantes de 74 pa\u00edses e apresenta mais de 1.500 sess\u00f5es educacionais. A EE \u00e9 grata por mais uma vez ter a oportunidade de comparecer e participar dessa confer\u00eancia e espera novas colabora\u00e7\u00f5es com organiza\u00e7\u00f5es que compartilham o mesmo desejo de levar terapias r\u00e1pidas e transformadoras aos pacientes. <\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>A Emily's Entourage (EE) est\u00e1 participando da Conven\u00e7\u00e3o Internacional BIO 2019 no Centro de Conven\u00e7\u00f5es da Pensilv\u00e2nia, na Filad\u00e9lfia, PA. No primeiro dia, a cofundadora da EE, Emily Kramer-Golinkoff, foi entrevistada para o Good Day Bio, um programa de entrevistas transmitido em hot\u00e9is da Filad\u00e9lfia e em salas de reuni\u00e3o no centro de conven\u00e7\u00f5es durante a semana, apresentado por Mike... <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/www.emilysentourage.org\/pt_br\/emily-speaks-at-the-2019-bio-international-convention-in-philadelphia\/\" class=\"excerpt-read-more\">Leia mais<\/a><\/p>","protected":false},"author":1704,"featured_media":13082,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[1],"tags":[93,94,98,12,99,95,103,96,102,100],"class_list":["post-13074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","tag-bio-international-convention","tag-bio2019","tag-christopher-anselmo","tag-emilys-entourage","tag-eve-bukowski","tag-good-day-bio","tag-life-sciences","tag-mike-huckman","tag-muscular-dystrophy","tag-philadelphia"],"acf":[],"jetpack_featured_media_url":"https:\/\/www.emilysentourage.org\/wp-content\/uploads\/IMG_0722_web_edited-1.jpg","jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/posts\/13074","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/users\/1704"}],"replies":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/comments?post=13074"}],"version-history":[{"count":5,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/posts\/13074\/revisions"}],"predecessor-version":[{"id":20547,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/posts\/13074\/revisions\/20547"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/media\/13082"}],"wp:attachment":[{"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/media?parent=13074"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/categories?post=13074"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.emilysentourage.org\/pt_br\/wp-json\/wp\/v2\/tags?post=13074"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}