Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
SUBSÍDIOS QUE FINANCIAMOS
A EE concedeu milhões de dólares a equipes multidisciplinares em todo o mundo para avançar na pesquisa e no desenvolvimento de medicamentos para o 10% final de pessoas com FC.
On October 11, 2025, join us for the 2025 Evening with Emily’s Entourage gala as we step into a new era—one defined by clarity, precision, and fast progress for the final 10% of the cystic fibrosis community. The future is coming into focus.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Chloé Plissonneau-Duquene, Emily’s biggest fan across the Atlantic Welcome to “Humans of EE”, our riff on the photography project and phenomenon “Humans of New York“.... Leia mais
Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and it’s still reverberating... Leia mais
Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be than among other... Leia mais