Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
SUBSÍDIOS QUE FINANCIAMOS
A EE concedeu milhões de dólares a equipes multidisciplinares em todo o mundo para avançar na pesquisa e no desenvolvimento de medicamentos para o 10% final de pessoas com FC.
Nosso programa de combinação de estudos clínicos sobre fibrose cística é direto ao consumidor, tornando o recrutamento de estudos mais rápido, mais direcionado e mais eficiente.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands.... Leia mais
Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer... Leia mais
Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena recounts how she... Leia mais